posted
Our LLMD used Labcorp for this. Everyone has this, even people without lyme. Our LLMD thinks it will resolve once lyme and co-infections are addressed. If you are chronic with lyme that is more difficult to treat. I'm sure you've read all the papers Dr Garth Nicholson has on myco. If not you should look into that.
Posts: 160 | From somewhere | Registered: May 2010
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I have read if Myco is an issue, you want to see the titers going down- redo the test after some treatment from the same lab.
Just had my daughter tested for this, with Labcorp for Myco P. It can be an issue with PANDAS/ PANS kids- I am not going to test for different strains.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Everyone has myco.
Most immune systems can deal with it.
Ours can't.
Myco + Lyme + bartonella + babesia are common in patients presenting with ALS-like symptoms, my doc says.
I noticed when we treated myco, it improved my swallowing and chewing.
I wish I could be more help lulu. Aside from dr Nicholson, myco seems to be a dark horse.
Ps. My mom has sarcoidosis, and tested positive for myco.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Well, I am looking for a pretty high IgG or obviously IgM to treat-
from what I'm reading, if the IgG is high, like out of range high, you've got an issue.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
posted
The thing that is important is that treatment depends on the species.
Also since the species cross react on the antibody test, if you test high IgG for M pneumonia, you could in fact be infected with M fermentans.
M fermentans is really bad and requires different treatment.
I would encourage you to read the posts on LymeNet from Mathias. Very educational.
-------------------- You won't know how sick I was until you see me when I'm well ! Posts: 123 | From Colorado | Registered: Sep 2012
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thanks lulu, I have read it, I'm a read fanatic, and he is extremely knowledgeable.
M fermentans is the species they seem to have found in Vets- and spread to some of their family members upon returning.
My dd is a different presentation with PANS- absolutely no outward signs of physical illness- long story- at this point, I am sticking to the labcorp Myco P, see what that says,
and a retest of Lyme with Advanced Lab.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
My myco p titers have come down since treating. I also asked to be tested for myco f and it was negative, all done through Labcorp.
We had blood work on my son this week, waiting for the results. Curious if it came down.
Posts: 160 | From somewhere | Registered: May 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/