Topic: URGENT please- husband has lyme conjunctivitis
LisaK
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he is so stubborn and has put off dr and treatment! now his eyes are so red and hurt badly. they look terrible.
he has a history of eye problems. Lyme diagnosed last month.
he wears contacts- I told him he must stop for now.
anything to make this heal???
or at least feel better so he can live through the weekend?
I am trying to find info on line about what to do, but it is confusing my tick brain and I thought this might be faster.
Thank you!!!
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Might try OTC Alaway... I think it's OTC, anyway.
I had to give up my contacts due to Sjogren's. Wasn't worth the pain.
If he keeps them out, he can use Systane nighttime ointment.
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nefferdun
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I had that happen 6 months after I was infected. My eyes looked horrible and were so sensitive to light I had to wear sun glasses in the house. He needs treatment and to get those contacts out. Bartonella causes it most often.
I
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LisaK
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he is in such denial. I told him tonight that he is doing whatever I say on Monday. I am taking charge.
even living with me and seeing what this all does to someone first hand and still he is in denial!!!
I don't understand this mentality.
I gave him systane because I had that on hand.
he it wearing sunglasses on top of his expired rx glasses in the house.
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Carol in PA
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If his eyes are so bad, it might be worse than pink eye...it might be uveitis. This inflammation of the eyes can be caused by Lyme or by a virus.
He could try hot compresses, and must see a doctor for evaluation.
Google uveitis symptoms.
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LisaK
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seems like uveitis is same as conjuntivitis?
His main symptoms are redness and light sensativity.
he says they also feel dry.
No Lymetoo , he did not say yes to dr, but I made him start his lyme treatment tonight! he had all the stuff form our dr, but is in such denial. What is it with people?
anyway, his eye seem to improve while he sleeps an dhis contacts are out. this is why I think it is lyme induced condunctiva irritation.
it is just very strange. red then really red, take contacts out , gets better in hours, wakes up after night sleep and they are fine, then wears contacts to work and they are not red until later in the day, although they remain light sensitive 24/7
I told him if treatment doesn't help - for lyme- then he goes to dr in 4 days.
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Carol in PA
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No, uveitis is much more serious than conjunctivitis.
Uveitis can permanently damage your eyesight and cause blindness.
Symptoms of uveitis may include: Eye redness and irritation Blurred vision Eye pain Increased sensitivity to light Floating spots before the eyes
Uveitis may develop rapidly, and it is important that you see your eye doctor for a complete eye exam if you develop these symptoms, especially if a painful, red eye does not clear up quickly.
Has he tried hot compresses? Do this as often as possible, as it will increase blood circulation and help healing.
Refresh eye drops are good for dry eyes with contacts.
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LisaK
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hmmmm... ok. I will ask about floaters and blurriness.
pharmacist told me today that he cannot use the lubricating drops if he wears contacts.
is this true?
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Carol in PA
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I used Refresh eye drops without preservatives when I wore contacts.
Now that I'm using glasses, I use the regular Refresh eye drops.
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surprise
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It sounds like he needs to not wear the contacts- stick to his glasses until this is figured out.
It's been 15 years since I wore contacts (had laser surgery) and I wore daily ones that were disposable- less contamination, but contacts cut off oxygen, etc.
They make all kinds of lubricant drops for contacts- specifically just for contacts. He needs to see an eye Dr.
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The antibacterial eye drops for conjuctivitis is sold over the counter. I would think he'd use them since they'll make his eyes feel better.
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LisaK
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He wont go to dr. I hope and pray he doesnt get worse later on. eyes are a little better for now....
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Ellen101
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If the redness disappears when he is not wearing the contacts then it is related to the CL. I'm confused as to why you are thinking it's lyme related.
If his eyes remained red and inflamed after taking the lenses out than that would be cause for concern.
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LisaK
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well he has lyme. they do take hours to clear up. and it comes and goes. Like yesterday he didn't have much red at all.
It just seems to have gotten this way, this bad since he had a tick in the fall and got the lyme.
when I searched , the symptoms seemed to be exactly like the lyme related ones.
it is confusing, yes. I have no idea exactly what is causing it all. I cannot make him go to dr. whatever it is I certainly wouldn't want to live that way. he's being stupid
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If patients develop eye irritation after months or more of smooth sailing, a likely culprit is the solution they use. Such delayed hypersensitivity reactions were more common with earlier cleaning and soaking solutions that contained the mercury-based preservative thimerosal, said Bruce H. Koffler, MD, of the Koffler Vision Group in Lexington, Ky. “However, it has also been seen with solutions containing other preservatives, such as chlorhexidine and benzalkonium chloride,” he said. “Even a nonallergic person who is subjected daily to any form of chemical, solution, or eyedrop has the potential for developing a delayed hypersensitivity reaction.” But, Dr. Jacobs added, “Patients with a history of atopy, allergy, eczema, or prior contact lens–related problems will be more easily triggered into sensitivity or an allergic reaction.”
Ellen101
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See if he will go without his lenses for a few days. If the problem does not come back you have found the culprit.
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nefferdun
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I hope he is treating lyme and co's because that is the origin of the problem. I went to the eye doctor and got so angry with him when he told me nothing was wrong.
He is sick and it is affecting his mind as well as his body. He can't make good judgement calls. He needs you to take over for him and make him get those contacts out.
My eyes have never been the same since I had that infection. It was so painful. I couldn't tolerate any light and I felt like my eyes were full of sand. Nothing helped. One idiot doctor gave me steroid eye drops and that sent everything over the cliff.
Treating should help. It is probably bartonella but it could also be Ehrlichia.
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LisaK
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yes, neff, I know that and I am trying, but I am still recovering and have my own mental blocks to deal with so it is like blind leading the blind a lot in my house. unfortunately. he also has RMSF , no bart.
Ellen, good idea about taking contacts out for days, but he won't because his glasses rx are not up to date and he says he can't wear them to work for that reason- too hard to see.
Judie, tanks for that info. I an forwarding some things you are all saying here and he is beginning to see the light. I know about Thimerosol in vaccines, but I had no idea it was in contact solution! terrible!!
Lymetoo - all the labels say "consult dr if you wear contacts" . I had the pharmacist call for me and they won't tell you it is ok at all if you have red eyes or diseases associated with eye problems- like lyme. pharm man said to go see a specialist.
this will be difficult with insurance choices. the last person I hooked him up with was a dr I had seen in the past and I thought she was pretty good, but the last time he went to her he had herpes in his eye and that dr didn't diagnose that, and to make it worse
she actually touched his eye without gloves!!!
I mean, my goodness, he had blisters all over his eye! she probably infected other people! idiot
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Carol in PA
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An easy first step would be to get an eye exam and new glasses. Our local mall has a "One Hour" place to get glasses. It advertises that you can get an eye exam without an appointment. (Although you can make appointments.)
A good time to go is about noon on a Sunday, when the first appointment for an eye exam often fails to show. Allow an hour for the eye exam, some time to pick new frames if you can't reuse the old ones, and an hour for the lenses to be ground.
One way to deal with a reluctant spouse is to remove the thing he/she is resisting.
Gather the pertinent information, leave it where he can can look at it if he wants, and make sure the life insurance is paid up. Then tell him that you love him and want him to be healthy and happy, and if he changes his mind about doctor apointment/treatment, to let you know, and you'll be happy to help.
Then leave him alone!
Do NOT keep on fussing at him about it, let him make the decision.
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Ellen101
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quote:Originally posted by Carol in PA:
One way to deal with a reluctant spouse is to remove the thing he/she is resisting.
Gather the pertinent information, leave it where he can can look at it if he wants, and make sure the life insurance is paid up. Then tell him that you love him and want him to be healthy and happy, and if he changes his mind about doctor apointment/treatment, to let you know, and you'll be happy to help.
Then leave him alone!
Do NOT keep on fussing at him about it, let him make the decision.
Agreed!
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LisaK
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this is basically what I do. I've been married 22 years. I know how my man works.
I just wish we weren't all sick here and that I wasn't the only one that has to be the glue
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LisaK
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SO..... HE finally went to dr Thursday!!!
<sigh>
he has big time infection and dr says it's from
a) lyme b) or other thing c) or both
she put him on steroids. took him off of his contacts
he ordered glasses and he needs a huge rx so it will take 7-10 days to have lenses made so he is basically without proper sight for that time.
I bit my tongue so I wouldn't say "IT" but my daughter looked at my face and she knew what I was thinking and said it out loud- "mommy told you so daddy"
he is very depressed. any good thoughts or prayers would be greatly appreciated. he is kind of blind in one eye and the other is blurry.
this is a very low time for us all- so many battles
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Ellen101
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CL wearers are very susceptible to infection. At the first sign of an issue the CL should have been removed and not replaced until he was seen. I know you have had your struggles in that area. Unfortunately the reality is that some of these infections can cause blindness if not treated and it needs to be taken seriously or CL's should not be worn.
This may have nothing to do at all with lyme, but just with the CL, or the way in which he was wearing them. Another problem many CL wearers are guilty of is not having a pair of backup glasses. It is so common for them to rely solely on the lenses. Since he didn't have a back up pair I'm assuming he never gave his eyes a break from the CL's either, not good..
Sorry, don't mean to sound preachy, but this scenario played out very often where I worked. Your vision is precious it needs to be protected Posts: 1748 | From United States | Registered: Dec 2011
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LisaK
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well, you are right Ellen.
haha, people do preach to me about it- even the dr yesterday kept looking at me when speaking about husband's eyes! like *I* had something to do with it! hahahahaa
God knows I have been teling him for years to take those contacts out for bed and to wear glasses when his eyes are tired.
so, from yesterday's follow up apt:
dr says not from lyme. it is from contacts that were not fitted properly and suctioned on his iris causing blood vessels to grow and bubble up around contact. and the too tight fit also didn't allow lubrication behind it. she saw big improvement so that is a good sign.
She said he was lucky to come in when he did or he would have lost his cornea.
I asked her to please tell him how contacts should be worn- for when he can wear them again one day.
she got funny and said when that time comes she will make sure he knows and that he has endured enough punishment from this to have a life changing experience as far as his eyes go.
I wanted to tell her that she sure does not know my husband! for him to have a life changing episode WOULD have been to lose his sight. he is an extremely stubborn person and griped more about how much the glasses and eyedrops cost than the fact he can't see right!
I don't wanna sound negative, but I would bet money that one day down the road he will sleep in those contacts again!
he has always seen an optometrist in the past until now..... is it better to be fitted for contacts by an ophthalmologist?
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Ellen101
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No Lisa, an optometrist is fine as long as they are good. The main difference an optometrist cannot treat diseases of the eye.
I am glad he is improving. Slept in his contacts! Ugh! He is very lucky. Hopefully after all this he will be more careful.
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I have had ulcerated corneas several times. Zilet prescription helps. I was told by ophthalmologist not to wait but use Zilet immediately when in pain. He says I need to protect my corneas or I'll lose my sight.
Stubborn, unrealistic behavior can show up in Lyme et al cases.I suggest you see a Lyme literate psychiatrist for suggestions. It is irrational to take such terrible risks with eyesight. Maybe some way can be found to make him happy...and seeing!
My mother in law told me I looked much better without glasses...why did I wear them? To see, I said. Hmmmph said she.Then she wheeled herself into a wall! Point made!
Our beautiful view is blocked out in our bedroom...has been for years. Light is too painful.
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LisaK
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yes, farraday, he does have those psych lyme symptoms. He keeps asking me if he needs to continue on meds (herbals) or if he really needs them, ha.
He also has a very hard time holding in what he thinks which can really cause trouble! If I didnt have lyme experience myself I am not sure if I would be putting up with him.
He hasnt' told anyone he has lyme yet. He's so funny.
I think he is using Zylet. is that the same? It's a steroid.
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Marnie
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My sis had lyme induced uveitis. Dry eyes first.
It progressed so bad all she could see was the big "E" on the eye chart.
She HAD to have steroid shots (x2) directly in her eyes.
I get ya...my husband is "Scottish" (ancestry) and he would extend the use of his contacts...
Until the doc (specialist) told him he could never ever wear them again.
Lasik surgery (out of pocket) is/was *very* expensive.
Penny wise and pound foolish.
[ 07-03-2014, 06:01 PM: Message edited by: Marnie ]
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randibear
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been there done that. my husband is also complaining about redness and dryness. ive given up because I'm tired of hearing "oh for Pete's sake, give it as rest. it's old age..duhhh...not everything is lyme and I, unlike some people dont go running to a damn doctor every time some little thing happens".
so I jus make sure the bills are paid off and I get the insurance money...
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Ellen101
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quote:Originally posted by farraday: I have had ulcerated corneas several times. Zilet prescription helps. I was told by ophthalmologist not to wait but use Zilet immediately when in pain. He says I need to protect my corneas or I'll lose my sight.
Stubborn, unrealistic behavior can show up in Lyme et al cases.I suggest you see a Lyme literate psychiatrist for suggestions. It is irrational to take such terrible risks with eyesight. Maybe some way can be found to make him happy...and seeing!
My mother in law told me I looked much better without glasses...why did I wear them? To see, I said. Hmmmph said she.Then she wheeled herself into a wall! Point made!
Our beautiful view is blocked out in our bedroom...has been for years. Light is too painful.
Stubborn, unrealistic behavior can be just that...Some people I think more men than women tend to ignore symptoms. My husband is like that on occasion. Has an extremely high pain threshold as well as a strong work ethic. If something is bothering him he tends to let it go for a long time so as not to miss work, cancel plans etc. Not lyme, just his personality.
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Ellen101
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quote:Originally posted by randibear: been there done that. my husband is also complaining about redness and dryness. ive given up because I'm tired of hearing "oh for Pete's sake, give it as rest. it's old age..duhhh...not everything is lyme and I, unlike some people dont go running to a damn doctor every time some little thing happens".
so I jus make sure the bills are paid off and I get the insurance money...
I think your husband has a valid point, though maybe the approach or terminology is not the best. I do agree not everything is lyme and also not running to the doc with every issue. Some are just normal day to day occurences that the general population experiences and have nothing at all to do with lyme.
I think part of the problem is if you look at the list of symptoms that could be lyme everyone at one time or another has or will experience alot of them this certainly does not mean they all have lyme. I don't think there is a symptom not on there...not sure what to think in regards to the list. This could very well have everyone thinking they have lyme...
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randibear
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ellen ive had positive igenex and the classic bulleyes. and been treated as positive by a llmd.
my husband believes if you go to a doctor more than once a year you're a hypochondriac.
there's a lot more to the story as some here know.
no all symptoms are not lyme but some symptoms are.
I'm not a hypochondriac nor do I go running to the doctor every week.
sigh...you'd have to understand the situation.
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Ellen101
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quote:Originally posted by randibear: ellen ive had positive igenex and the classic bulleyes. and been treated as positive by a llmd.
my husband believes if you go to a doctor more than once a year you're a hypochondriac.
there's a lot more to the story as some here know.
no all symptoms are not lyme but some symptoms are.
I'm not a hypochondriac nor do I go running to the doctor every week.
sigh...you'd have to understand the situation.
I certainly didn't say you were a hypochondriac, and trust me I completely understand the situation as I would not be on this forum if I did not have lyme myself. My only point was I have learned that not every symptom I experience is due to lyme..also it is important to look beyond lyme as the possible cause at times otherwise I would start thinking every ache, pain etc is due to lyme when in fact it could be a virus, flu, normal aging, over exertion, a side effect etc or symptoms of yet another issue entirely that needs to be investigated.
I know for me it is important to push myself to get up every day, go to work, take care of the house , kids, etc otherwise it would be way too easy and counter productive for me to give into how I feel on some of my bad days. I know for some this is not possible due to their symptoms.
I also know that when I began to look beyond lyme is when I began to feel better..
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LisaK
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quote:Originally posted by Marnie:
Get to a uveitis specialist!!!
He can go blind.
OK, now you are scaring me.
I have this dry lyme eye and , great... now what? What elese can be added to this list of things?????
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LisaK
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I think looking beyond lyme is a great way to live with this, and from what I have ever seen about inspiration movies- it's the person that looks beyond their situation that finds answers and achieves personal goals and learns to live the best way possible for themselves despite physical or cerebral limitations...
I was just going through old movies and I found BORN ON THE FOURTH OF JULY with Tom Cruise. It was VHS so really bad used quality, but
his character was unstoppable! he refused to submit to the notion that what he stood for, what he did, was wrong.
and other inspiring characters- ROcky, Eliza Doolittle, Walter Mitty for a more recent,
and real people- JIll Kinmont, Bethany Hamilton, Abraham Schmitt ....
I think often now, about how I might overcome all this tick stuff, and I think that if I don't get well with one way of living, I will keep learning about what might be helpful to live a good life, to continue to strive and
reach my personal goal, whatever that may be that day! haha, or year, or lifetime.
I do notice that when I focus on the negative I start to feel way worse. and when I say to myself, "hey, thanks, God for my life" I feel really great, if even only for 2 minutes.
I sure hope that this won't be a forever thing for me, but if it turns out to be I am goiong to try and not focus on how sick I am but each single second that we get to live and how it passes just that quickly, and each new second is another
chance to start over.
All this patriotism here today (in USA) has me really thinking about what is really important
I hope I can remember how everyone suffers in some way, and that if we keep reaching out to each other we can make it
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Marnie
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The link I posted specifically mentions lyme (and other diseases) as a trigger for uveitis.
It is very serious, but CAN be stopped and
your eyesight CAN be saved! Absolutely, without a doubt!
My sis' eyesight was saved and actually greatly improved (no longer needed eyeglasses for distance vision!)with the 2 steroid shots directly into her eyes.
But...the joint destruction from lyme -> now dx'd "autoimmune"...continues.
Diseases, infections, speed up the aging process.
Having a PSOITIVE ATTITUDE (laughter, enjoyment of life) seems to offset this to a degree. Our mind, our thoughts, ARE very powerful - of course...our actions - positive ones too can offset "premature" aging.
I like what Wayne Dyer said i.e.,
"You will see it when you believe it."
Not the other way around.
Believe you can and will recover.
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lymie_in_md
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read the following link is very practical. it has to do with providone iodine. you might want to use homeopathic drops at the same time.
quote:To investigate the use of povidone-iodine in the treatment of paediatric conjunctivitis, 459 children were studied in Manila, Philippines.11 This trial is believed to be the largest controlled investigation of conjunctivitis treatment ever reported. Povidone-iodine 1.25% ophthalmic solution, applied four times daily, was compared with the effect of an antibiotic combination (neomycin-polymyxin-B-gramicidin). As determined by ‘time to cure’, povidone-iodine was as effective in the treatment of bacterial conjunctivitis, marginally more effective against chlamydial conjunctivitis (p = 0.057), but equally ineffective against viral conjunctivitis. Povidone-iodine 1.25% ophthalmic solution can, therefore, be used to treat bacterial and chlamydial conjunctivitis, especially in emerging countries where topical antibiotics are unavailable or costly.
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Ellen101
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quote:Originally posted by lymie_in_md: read the following link is very practical. it has to do with providone iodine. you might want to use homeopathic drops at the same time.
quote:To investigate the use of povidone-iodine in the treatment of paediatric conjunctivitis, 459 children were studied in Manila, Philippines.11 This trial is believed to be the largest controlled investigation of conjunctivitis treatment ever reported. Povidone-iodine 1.25% ophthalmic solution, applied four times daily, was compared with the effect of an antibiotic combination (neomycin-polymyxin-B-gramicidin). As determined by ‘time to cure’, povidone-iodine was as effective in the treatment of bacterial conjunctivitis, marginally more effective against chlamydial conjunctivitis (p = 0.057), but equally ineffective against viral conjunctivitis. Povidone-iodine 1.25% ophthalmic solution can, therefore, be used to treat bacterial and chlamydial conjunctivitis, especially in emerging countries where topical antibiotics are unavailable or costly.
Please don't put anything in your eyes that is not prescribed by your doctor. This is not an area to try to treat on your own.
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lymie_in_md
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Thanks Ellen I should have added that as well. You might want to find a doctor who at least knows what it is before you see them. I'm guessing an eye doctor or surgeon might be best. The article was from the national institute of health so you could print the article to help the doctor understand the treatment.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I have a neuropthalmolgy apt at a big eye center next month, but was thinking to call and ask if they have a lyme specialist as this would probably be better fit for my symptoms and now that I know more about all this lyme eye
Are lubricating eye drops enough to stop progression of lyme eye problems? all regular eye drs are telling me "you just have dry eye", but no one seems to know about what is being said here.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Ellen101
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posted
lubricating drops are just that, lubricating. They will not stop the progression of a disease process, just help dry eye.
Is this for your husband, or you, I'm confused..
Posts: 1748 | From United States | Registered: Dec 2011
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LisaK
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posted
Ellen, it is def for me *and* my husband ( he is newly dx with lyme et al) who has had dry eye for some time....
his dr told us his contacts were sticking to his eyes because they werent' fitted properly, but could that be possible? I mean, he has seen
several drs over the last decade or so and they have all been getting it wrong with fitting? he has had past ER visits for his eyes- one time the contact was so stuck that it took the ER guy 5 minutes to suction it off!
I am not sure how long he has had lyme, but since it is sexually transmitted and I was undiagnosed for at least 17 years I think the probability of him having it a while is pretty good- plus he hunts and other outdoorsy things all the time
I have been having terrible visual disturbances for years and the past 18 months have been the worst of it. I have not seen a lyme literate eye dr, so ..... I wish that was possible. I will try and find one. :/
I asked my husbands new eye dr if she felt she could help me with lyme eye and she seemed confident but I am not sure I think she knows as much as she thinks she does about it. I briefly told her I was concerned for my eyes from having lyme and told her some of my symptoms and she said it was AGE and sounded like *only* dry eye to her.
Am I wrong to feel this way?:::
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Ellen101
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Member # 35432
posted
As you will see from the post below dry eye syndrome can cause numerous symptoms and has multiple causes. Alot of people are surprised just how symptomatic they may feel from what they perceive as a benign condition. But without proper treatment they could run into serious consequences.
You had mentioned your husband sleeping in his contacts, wearing them without any breaks etc. That behavior alone is going to cause issues with the fit, comfort, and removal of his lenses as well as infections etc.
If you don't feel your issues are being properly addressed then I would consult with someone you are more comfortable with.
Posts: 1748 | From United States | Registered: Dec 2011
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LisaK
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posted
thanks Ellen
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Judie
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Member # 38323
posted
I found some medication/natural treatments make my eyes dry. This includes allergy sinus spray that I use.
Anything that causes a dry mouth also effects my eyes too.
When I have too much salt, my eyes get dry.
I've been using refresh eye drops when I need more moisture and it helps.
I developed central serous choroidopathy (permanent eye damage) from steroids from a mild steroid cream so I can't recommend any steroids unless it's an emergency. A positive attitude has done nothing to stop disease in my life. Some of the most positive people I know have succumbed to illness.
I'm glad you're trying to figure this out. I'd get a second opinion and third opinion, etc... until you're confident with the diagnosis.
I was told by an optometrist that some of my more recent eye stuff is from aging, but I know it's bartonella doing it.
Posts: 2839 | From California | Registered: Jul 2012
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Ellen101
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LisaK
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Member # 41384
posted
Judie, positive thinking - for me- isn't about getting better. It is about hanging on and doing the best I can.
Funny how all the drs- and people out there- equate everything happening to people over 40 to age.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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