posted
I have stopped my treatment as of this past March. I feel symptoms coming back but all in a different way.
I have had trouble with my eyes. They have been very dry and burning. WEnt to the doctor and he said I had dry eyes and for me to use Systane 3 times a day.
I did this and not much help. This was in March when I went to the eye doctor.
I had a problem yesterday morning...my periphireal vision was not right. Out of my right eye Some of my vision was blocked.
I went to the doctor and the tests said that I had blockage of vision in my upper right quadrant. But the problem did not come from my eyes, it was something going on in my brain.
Today, except for the headaches, my vision is fine. I am scheduled for an MRI this afternoon.
I am going to feel like an idiot if my MRI comes up fine.
Does this sound like a symptom of Lyme and will it be terrible one day and then perfect the next day? Will my MRI come up normal since my vision is good today?
Posts: 213 | From Tennessee | Registered: Jan 2013
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posted
If you get a test result that shows something, then that can be helpful. But so many times, we don't get any result when we have symptoms. So you don't need to feel bad if your test comes out ok!
If you feel like trying an experiment, as I cannot say what's going on with your eyes, this is something that helps mine - I drink mangosteen juice, an anti-inflammatory juice, to stop my eye symptoms, which have been floaters, light sensitivity, muscle eye pain and blurred vision.
I drink the Mango-Xan version, as it is the most tart. It's in healthfood stores and online.
Posts: 13171 | From San Francisco | Registered: May 2006
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I asked the person that gave me the MRI how they looked. He said they looked okay to him, but he didn't know what the docs were looking for.
The MRI person said that most of the tests that he gives is usually normal. He has been giving them for awhile.
The doctor will call me tomorrow to get the actual results.
So, I shouldn't be surprised if they come up normal?
My vision hass been good today. The only thing is I still have pressure behind the eyes and a headache, and the headache isn't really a bad one, a lot of pressure.
Posts: 213 | From Tennessee | Registered: Jan 2013
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Some migraine headaches can cause partial vision loss as part of the migraine...it is temporary, only lasting for part of the migraine. I think an MRI in this situation would be normal...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
It's the nature of this illness to be erratic, as it does whatever it pretty much pleases, so we need to get used to symptoms changing around and go with the flow - I call it whack-a-mole! And remember that, when we get a new symptom out of the blue in a new body area, that it might be the Lyme acting up.
2nd, it's the nature of this illness for us to go through tests and test normal. It happened to me for example when a neuro-opthalmologist tested my eyes when I was developing blurred vision. My tests all came back normal even tho he had to anesthetize my eyes for me to be able to look at light.
I suggest you read a little more about the spirochetes and how they operate in the body, then YOU can start telling others how it works, and not the other way around! Knowledge is power.
And yes, the money part of it can be hard. That's why I think it's important that you go in with your eyes open to the fact that you may, or may not, get a test result that shows something.
The one test I'm aware of that can show stuff going on in Lyme patients' brains is the SPECT scan, which can show hypoperfusion, areas where bloodflow is not happening fully. Then after treatment, a SPECT scan can show "the lights are on again," so to speak!
Posts: 13171 | From San Francisco | Registered: May 2006
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I have a hard time reading and comprehending if it is in the least bit complicated. I read and think I have it and then I realize that I don't understand a thing that I have read.
I have always learned by reading. It just doesnt' work like that for me anymore. But, it isn't impossible, it just may take me longer for it to soak in. May have to read it three or four times.
Posts: 213 | From Tennessee | Registered: Jan 2013
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