LymeNet Flash: Quick Pls. Blond Lyme Girl on Lyme site?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Quick Pls. Blond Lyme Girl on Lyme site?

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Topic: Quick Pls. Blond Lyme Girl on Lyme site?

canadianmama
LymeNet Contributor
Member # 36298

posted

Please help.

I NEED that web page that has the little blond girl with Lyme on the cover.

I'm in a FB group and a child is crashing and it sounds SO MUCH like lyme.

Thanks.

Posts: 372 | From british columbia | Registered: Feb 2012 | IP: Logged |

GretaM
Frequent Contributor (1K+ posts)
Member # 40917

posted

Is it drjoneskids.com

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013 | IP: Logged |

canadianmama
LymeNet Contributor
Member # 36298

posted

It's a Lyme advocacy group. The child is a big pic with words something like

" lots of people have Lyme over half of them are children"

It's okay I sent her doc Jones page for info anyway.

Some one posted from

www.rheumatology.org search: PFAPA

SERIOUSLY check out part of it...

WHAT IS PFAPA?

This syndrome includes recurrent episodes of fever with aphthous stomatitis (mouth sores) and pharyngitis (sore throat with redness).

Occasionally, there also may be exudate (white patches on the tonsils) and usually the lymph nodes in the neck are enlarged (adenitis).

Episodes of fever start suddenly and last for 3-7 days. Fevers occur routinely every few weeks; often, families know the exact day when an episode will start.

Some children have other symptoms like joint pain, abdominal pain, rash, headache, vomiting or diarrhea.

Children are completely well between episodes.

Posts: 372 | From british columbia | Registered: Feb 2012 | IP: Logged |

surprise
Frequent Contributor (1K+ posts)
Member # 34987

posted

It's here:

http://www.childrenslymenetwork.org

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011 | IP: Logged |

canadianmama
LymeNet Contributor
Member # 36298

posted

Thank you Surprise!

Posts: 372 | From british columbia | Registered: Feb 2012 | IP: Logged |

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