posted
OH wow... then she is bound to have bartonella.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Clarissa, I think she does too, you're a very good friend to her, guide her in the right direction.
Hives, rashes & allergies - (do not) - have to be related to meds, but they are both related to these diseases. They could last a month or two, or they could last for years, treatment or no treatment.
Keep us updated on your friend’s status.
Good luck to both of you!
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
Through ART I tested positive for Bartonella and not lyme, but the Dr. said it didn't necessarily mean that I didn't have lyme. It just may not have been present at the time of testing.
For all these years, I`m wondering if it is Bartonella itself that has been plaguing me. I have always helped and taken in feral cats and I have been scratched by many over the years going back to my younger childhood.
Wouldn't that be something if a tick was never involved and my issues are all due to a cat scratch? Aside from muscle/tendon pain-weakness, brain fog and fatigue, the mental stress, anxiety, irritability, ADD, OCD, depression are the my worst symptoms. I could never hold down a full time job due to both the physical and mental inconsistencies, and never handle the stress to be in a relationship. Could this be all due to Bartonella?
I remember 15 years ago when I was first tested for everything through Igenix, none of the lyme Dr`s were even testing for Bartonella at the time.
Posts: 85 | From Northeast | Registered: Mar 2011
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I remember 15 years ago when I was first tested for everything through Igenix, none of the lyme Dr`s were even testing for Bartonella at the time.
- Yes.
Would it even be worth blood testing for Bartonella at this point, since I`ve never done it before? Is there a decent enough test out there where I could possibly test positive?
Posts: 85 | From Northeast | Registered: Mar 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
It would be worth it to get treated for Bartonella by an LLMD,
with those symptoms. So even if your test came back negative, your clinical presentation and history would merit a trial of treatment with specific Bartonella protocols.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Here is the leading Dr./ happens to be in vet medicine/ researcher about Bartonella:
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Bartonella Hensalae is Cat Scratch Disease. The tests are very inaccurate so it is common to get a false negative. Galaxy has a 3 draw test that they claim is 95% accurate, but it is very pricey. Fry lab claims to have a good test too but it is also expensive.
Even with the bad tests, up to 50% of cats test positive for bartonella. Most of them are asymptomatic. Some of the things they might exhibit are gingivitis, diabetes, sores and acne. They get it from fleas and the white footed mouse.
I thought I was re-infected from my diabetic cat but he was negative at Galaxy, so I guess not. I believe it is the worst infection because it affects your emotions, personality and mind as well as your body.
I believe the most obvious symptoms are changes to your skin. You can get pea size brown spots and loss of pigment, which makes your skin look very aged. You can also get crusty moles, skin tags and the other markings like the streaks, stretch marks and things that resemble stacked clams. Broken blood vessels and spider veins are common too. It can cause swelling that is not edema because it does not leave a dent when pressed. It made my eyes very irritated and dry.
Those symptoms just alert you to it is bartonella and not another disease. The symptoms that are hard to live with are the overwhelming anxiety, outbursts or rage, feeling disconnected to everyone and everything and not being able to follow a train of thought.
Then there are the headaches, sometimes like an ice pick. the burning shins, sore feet in the morning, back pain, frequent urination and muscle twitching and jerking. Horrible!
I hope your friend can find treatment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
I contacted my llmd when my son was diagnosed with cat scratch fever. He got enlarged lymph node close to where he was scratched and his behavior became combative.I was concerned the zithro he was prescribed might not be enough.
She said cat scratch fever and bart aren't the same. Maybe she meant it is different when it isn't coming from a tick but i kinda felt she was just trying to pacify me.
His symptoms resolved after abx.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank God you caught it so early in your son.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
nefferdun,
I don't remember ever reading that bart can cause increased urination. Do you have a source for that? I would be very interested in looking into that more.
Also, if increased urination is a symptom, what about thicker, filmier, darker yellow urine (that really smells... similar to sulphur)?
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
TNT, I've had increased urination AND the thick, filmy, dark urine from Bart, so I say yes.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"I don't remember ever reading that bart can cause increased urination"
My doc said it causes incontinence.
Posts: 2839 | From California | Registered: Jul 2012
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posted
NJFitness Guy... You could still test positive, but as with everything tick-borne .. the testing is not all that reliable. Check with your LLMD to see about testing and TREATMENT.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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