posted
I was bit in 2010, treated in 2012 and parts of 2013. Began to feel normal and stopped the treatment and stopped going to the doctor. I have been off of all meds since April of this year.
I am begining to get some strange symptoms again. I am begining to wonder if I didn't kill everything and now it is coming back.
My question is, all of the symptoms that I had before are not the same symptoms that I am having now.
I am having a lot of headaches, eyes hurt and one day I had incomplete vision. That only last a day. I did go to the doctor and it showed on the tests that my right quadrant vision was impaired/blocked.
The incomplete vision hasn't happened again. I still get the bad headaches and my eyes hurt really bad. I can't hardly keep them open.
I have a lot of bruised feeling all over my arms and different parts of my body at different times.
The ears are ringing and they are full again. Hurts most of the time.
Today for about a couple of hours I had horrible pain from my waist down. It was mostly on the backside of my 'butt', thighs and legs. Not in the front side.
It was so tender, when I went to the bathroom, the bit of strain it caused hurt from my hips to my feet.
All of these symptoms, except for the ears, are not symptoms like I had before. Would the symptoms be different?
I did have some blood tests run. My RBC was low. HGB was low. RDW was low. MPV was high. Vitamin D level was low. ESR was high.
Also CO2 was high. And the BUN/Crea was high.
I haven't been back to see the doctor since I had these tests.
They took an MRI on my brain because of the sight issue. The only thing they found was a small left mastoid effusion, which I am not sure what that is. No lesions.
I am waiting for appointment with a doctor at Vanderbilt. I am pretty sure that I am going to have to find an LLMD and go back to treatment again.
The blood tests and the symptoms, do they sound familiar?
Thank you.
Posts: 213 | From Tennessee | Registered: Jan 2013
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
If it is Vanderbilt, they are not going to help you with lyme or any of the usual coinfections. But you probably know that.
Posts: 2888 | From USA | Registered: Mar 2004
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I believe you. It has been three weeks tomorrow. They were supposed to look my MRI over with my other med records and get back with me for an appointment.
I think that they saw "Lyme" in my records and they are ignoring me.
I am searching for a new LLMD. Went to one that was awfully far away. I am looking into some that was given to me off of this site.
Very frustrating.....
Posts: 213 | From Tennessee | Registered: Jan 2013
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Sorry to hear this but all so familiar. I honestly don't know what the answer is..I don't have an answer but sure can sympathize.. Best of Luck.
Posts: 1058 | From VA | Registered: Oct 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
It sounds like you may be anemic from your blood work results.
Unfortunately, you will not find proper treatment for Lyme in Tennessee.
Posts: 4681 | Registered: Oct 2000
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
When you were treated for lyme the first time, what coinfections were treated?
I was losing my vision also, but bartonella treatment reversed it.
Also the sore legs from the hips down is something I have also. My doc says this is a coinfection.
Mycoplasma can also cause the bruised all over feeling, as can lyme.
I am sorry you are going through a relapse.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I think the doctor tried covering all coinfections. I only was treated for one year. I thought I was fine.
I think that he had it in his mind that it wouldn't take long for me to get rid of the lyme since I hadn't been carrying it around for 10-20 years or more.
I was bit in 2010. Two years later I began treatment. I treated for exactly one year. I felt good and thought I was cured.
I know better now.
Posts: 213 | From Tennessee | Registered: Jan 2013
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Sorry carolann-- but maybe this time will be easier- meanwhile how's your diet/ exercise--
I hope I don't jinx here, but my daughter took a long break in treatment, then started back up with instant improvement-
I'd like to think that's because all the work we've done previously with her-
Hope you can get to someone LL soon-
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
I mainly do Yoga from a DVD, It is for over "50" group. I do it okay maybe three or four times a week for about an hour.
Diet....I had originally gained about 50 pounds. I quit smoking three years ago. That was one reason I gained.
I have lost about 15 pounds since I have gained. Very slow to lose it, but I have kept it off so far.
AT the time that I lost the weight, I was doing Zumba. I lost it in about two months. I was eating vegetarian.
I ate fish (mainly salmon) and chicken. Very rarely did I eat any red meat. I don't care much for red meat.
But, I like a good juicy hamburger every now and then. And I like a good hot dog too!
No sugar. That is hard to give up. I do cheat now and then.
I tried gluten free for three months and never could tell a difference. So I gave that up. I live in a rural area where you can't buy gluten free stuff.
Hi LymeToo! I think you are right. I have a lot of Babesia symptoms. I will probably go back to Dr. C. It is about as close as I am going to get.
I did get better with him so I am going to see about getting another appt with him soon.
Posts: 213 | From Tennessee | Registered: Jan 2013
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Check out the PARASITE WARRIORS SUPPORT THREAD. Also google parasite symptoms. Over 40% of ticks are carrying the Filarial Worm co-infection and many with chronic Lyme are infected with other parasites. www.lymephotos.com
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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