posted
I have not been diagnosed with Lyme yet and I am still questioning if I have it or not.
Last night I had about 12 beers and was fine the whole night and woke up with a normal hangover, the hangovers were terrible when I had mono and i could barely handle 4 beers, that was like a month ago, and now im up to drinking more again like i used to,and thats even after going with no alcohol for a month, but i recently took a monospot and it came up negative so i guess it is gone.
My question is, would i be able to handle that much beer if I did have Lyme? Im starting to think maybe i am just feeling the after effects of Mono now since my monospot was negative this time around, im not sure what to think at this point.
The anxiety is still bad and the depression and DP/DR are still around somewhat but i have flare ups now compared to when it was 24/7 about a month ago.
I really dont know if this is me getting better from Mono or if I might have Lyme but now it is going easy on me? no real pain lately, just horrible fatigue, spleen discomfort from the mono, and the worst symptoms were all psychological and Depersonalization.
Im not sure now since i was able to handle a full 12 pack of beer with no problem at all and a mild hangover, but who knows at this point, ive been running around like crazy to get a diagnosis as to what caused my depersonalization bout, seems like ill never know sometimes with how up and down my symptoms are.
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Breaking up a paragraph here for easier reading for many here -
steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
chaZ, I believe you’re in denial; I’ve followed all your other post throughout the past month or so. (Did you ever see the doctor you mentioned)?
As for as drinking beer, and or any alcohol, the side effects from Lyme can change day to day. If you feel fine after drinking alcohol it doesn’t mean you don’t have Lyme & Co’s, we all react differently to everything – food, alcohol, meds etc, etc, etc….
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Ive been dealing with lyme a long time but of course i am not a doc
My guess is tht you do have lyme from the sx I cant tolerate alcohol anymore like many with lyme but what i have found for years when helping ppl if they dont have suport ormoney for treatment they often self medicate with alcohol or pot
Im sure they are very frustrated about not beung able to get goodlyme tx so they take what they can to take immediate pain and sx away
Over time things get worse-because it is well known that alcohol Makes lyme worse and harder to treat for many reasons
Can you get an igenex test? It would be really helpful-well it might be...there are problems with all testing. But it is your best bet to answer your question.
We can help you with results if you get it done
Igenex.com
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Read www.thehumansideoflyme.net written by a now-retired Lyme-literate psychiatrist. It will give you a better perspective.
You do need to be evaluated and treated by a LLMD (Lyme-literate doctor). There are none in GA - you need to go where they are (far and few between, unfortunately!). I have a couple of names in neighboring states - PM me if you want their contact information.
posted
I agree with the others that you appear to be symptomatic. www.lymetap.com offers 75% off of IGeneX testing for those who are low-income.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Let's just "suppose" the lyme is gone.... Your anxiety and depersonalization could get worse and worse just from a leaky gut and gut dysbiosis. (drinking can make this really bad)
Rein in the drinking and other bad eating habits and you stand a better chance at feeling "well." .. from whatever it is that is making you ill.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Well see thats the thing, I did see the doctor I said I was going to. Got tested for Lyme and about 5-7 other co infections then the doctor called me back and said that in their opinion they checked thoroughly and said that they honestly don't think i have it, and this is why i am so confused, and most of their patients are Lyme patients as well.
That was the last thing I could do for a while, I plan on kicking bad eating and drinking habits to treat stuff like candida for now, but i do not think i will truly ever get a diagnosis on if i have it or not unless it is years down the road, but honestly my symptoms came on so fast that if it IS lyme i could not wait that long.
If only doctors took this disease more seriously and tests weren't so bad for it there would be no problem, but sadly that is not the case, I am five months in from the tick bite exposure and i don't think the tick was on me for more than 30 minutes or less.
I cant stand that it is so hard to get a diagnosis for this disease.
Posts: 24 | From atlanta | Registered: Jul 2014
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Who was the doc(pm it to one of us)
What are your test results...you need to have them in your posession
Get them and post them here and we can help you more
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Well i got the results earlier i just did not see them until about an hour ago or so, but For the Elisa it was the same result as last time at 0.91, i do not think they gave me the western blot because i did not see anything regarding bands or numbers or anything pertaining to it, just "Lyme Disease, quant, IgM." and "Lyme IgG/IgM Ab."
everything else was just saying negative next to it with none of my numbers showing, just the reference ranges and a bunch of negatives under my results. Negative for bart, ehlrichia, babs, and rmsf.
RH factor positive that's the only thing that came up, elevated EOS, negative ANA, low potassium by one point, and elevated calcium by one point, My CD57 was 141 as well.
All results came from LabCorp, not sure what to think of these, any more questions about the results just let me know and i can look them over to see if maybe i missed something, thanks everyone.
Posts: 24 | From atlanta | Registered: Jul 2014
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randibear
Honored Contributor (10K+ posts)
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posted
I never ever touch alcohol.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
ChaZ,
* You'll never know for sure unless you send your blood to (Ca. igenex test)?
* or see a real LLMD
* Do you still have Lyme symptoms?
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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I have lyme and have never had any issue tolerating alcohol. I don't drink it now while on treatment but I don't think that inability to handle alcohol is a good indicator of the disease.
Posts: 28 | From New Jersey | Registered: Mar 2014
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Dude, you have lyme. You need to see a REAL lyme literate MD (LLMD). Go to www.lymediseaseassociaton.org and they will email you some names. All the other docs think they are lyme literate, but they are not. A doc absolutely must be familiar with the ILADS protocols or you're wasting your time.
As for drinking, my husband has lyme and he drinks a case of beer every weekend. It's his thing, he loves it, and is still able to do it. Everyone is different. Some people can't handle one drop of alcohol, and others can.
Don't live in denial just because you want to drink. You still need to treat. And lyme is never just lyme. There are co infections that come with the tick.
Steve is right, your blood test must go to IgeneX lab. No other lab will do. Other labs are not sensitive enough to pick up the bands to identify it. Once in a blue moon they do though, but it's hit or miss (not worth risking). IgeneX is the best.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Whoops, forgot to post this. Lyme does different things to everyone. Not treating means you will deteriorate, so you really need to find a LLMD. There is a really good book called: Cure Unknown (weintraub). It explains everything.
Also, watch this. Again, we are all different, so when it comes to lyme, different things happen to different people. These people went to regular docs and their lyme was missed (happens all the time), so they deteriorated.
This doesn't mean the same thing will happen to you, but why risk it?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
It might be better to find an llmd on the seeking a doctor here
I have had questionable docs given to me by ilads(there are reasons-it doesnt mean ilads is bad)
And i get complaints about the link catgirl gave that the docs are not practicing or you get a neuro when you need pediatrucian...
Its hard keeping lists current
Recently someone from IL gave a list to someone frim GA
Th er e arent too many close
Once you get igenex results you will have a startingpoint if you need to use buhner or zhang
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
If you didn't see an LLMD then you have not been properly evaluated for it.
LabCorp is fairly useless and the ELISA is notorious for false negatives.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I agree, I never got a positive anything form LabCorp, not even on co infections.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Hmm, I wish I knew more before instead of wasting my time with these other doctors. But I do not currently have the funds to see an LLMD at the moment so I am kind of screwed.
Are there any natural treatments I can start on for the time being? Like some supplements That are not too expensive until I can save up enough to get to an LLMD ?
Posts: 24 | From atlanta | Registered: Jul 2014
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
chaZ, Read through the sites below, lot's of natural treatments.
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The
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