Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Thanks Keebler...you're a fount of good info
Update:
I have no seizure-like or pre-seizure-like symptoms if I get the essential oils on my body before 6pm. I think time of day is my biggest trigger. 7pm-9pm. Doesn't seem to matter when I get the TPN hooked up.
So if I get the oils on me at least an hour in advance, no problem. If I'm too late, I get the pre-seizure-like symptoms, but still no tremoring or jerking, and no paralysis.
I'm also switching to the non-melting Zofran (the melting type has aspartame), and am off all the abx (Cefazolin & Flagyl).
Using Ray Tube machine and will be using some anti-bacterial essential oils for now to keep the Lyme/co's from going too crazy.
I think my body just needed a break from the toxic drugs...my liver enzymes have been elevated for a while (TPN side-effect), so I'm sure my body will appreciate the break.
Going to try to get some Artichoke for my liver, and just orderd PepZinGI to try to get my stomach calmed down, too (dealing with an h-pylori-like bug, also - treating w/ Ray Tube machine helps some, but need the stuff to heal the stomach).
The low-dose Hydrocortisone certainly helps the vertigo, too.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
I am late reading all of this, but I hope the doctor's recommendations help you. I have tremors and jerky episodes at times where I can't focus, speak clearly or walk straight (not nearly as bad as the ones you are describing tho), and my doctor said to back off antibiotics until they clear up and then slowly start back.
Apparently these episodes are my form of herxing, where the dead Lyme toxins are overwhelming my brain and CNS. They eventually clear up and then I start the process all over again.
I also get in the early am due to adrenal fatigue and low glucose. I don't have a glucose problem per se, but sometimes my blood sugar just drops. I guess it is situational with diet and sleep, bc it is normal the rest of the time. I agree with Keebler about having a glucose reader at home just in case. Checking your levels right after an episode may provide additional clues that a weekly glucose blood test may not catch.
Hopefully everything is alright now. Toxic drugs and toxic die-off can wreck havoc on our systems. Hopefully the break will help heal you. Please keep us posted on how you are doing.
-------------------- Amy
Possible infection date 6/21/05 (no history of tick bite but went to hospital with "unexplained" high fever) Tested positive for Lyme and RMSF in Feb 2014 / suspected Babesia as well Posts: 65 | From Atlanta, GA | Registered: Feb 2014
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