posted
What should I have prepared or be ready to ask during my first visit with an llmd?
My Igenex test came back positive this week and I am at the very beginning of this journey.
A few very wonderful and kind people who are a little further along on this path through the Lyme briar patch have shared great deal of information with me to read.
Being disabled for several years with an MS diagnosis has added much complication.
The quantum challenge is weakness x wheelchair + will divided by meds vs. infection = ?
confused courageous corrosion collapse
-------------------- . Posts: 10 | From nyc | Registered: Jun 2014
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- With a real LLMD, you really won't have to ask anything. Just go, be, let them see you - the real you.
If a real LLMD, they will see, hear, understand - and they will know.
Ask if their office can send you any forms to fill out at home so you don't have to do that in the waiting room.
TuTu posted the thread above while I was typing this.
I hope you have more than one assurance that this is an ILADS educated LLMD -- not just some doctor who says they treat lyme.
If the real deal, just show up. Let THEM ask the questions. Let them see the real you, how you walk, talk, move, think. Just be your honest self as you are. Also do jot down some things that may not be apparent during the appointment such as how you might move through door ways or manage certain environments and temperatures, etc.
Best of luck. You are on your way. Just be yourself. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
These 4 things if you can muster it:
1) All your labs
2) A list of all your meds and supplements, including dosages
3) A list of symptoms (I tend to be forgetful, so I need the list or I won't tell the doc something important)
4) A list of questions if you have them
You might find this helpful (don't stress yourself out trying to do everything though)
posted
Thank you all! This is most helpful. The doctor I am seeing is a highly recommended Dr. in NY (I read no names are permitted in posts).
I am also bringing an updated copy of my drug coverage formulary as it has been brought to my attention that some prescribed drugs might not be covered and can be highly costly.
-------------------- Went through five years of hell because an IDSA doc ignored a CDC-positive Western blot in 2009. Started Lyme treatment in early 2014. Trying to wrap my foggy brain around the intricacies of this disease. I also have Hashimoto's thyroiditis. Posts: 30 | From NY | Registered: Jul 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic