posted
I've been dealing with so much pain in my body for so long, that I feel like I just can't do anything. I washed my hair last night and could tell that my fingers while scrubbing were hurting more than normal.
Got up this morning and was getting ready for the day, when the pain in my fingers started hurting so bad. I tried to ignore it, but got in car and that's when I seem to realize how bad things are when trying to manipulate steering wheel.
I had planned to go eat lunch with some friends and then had an appt to see if I was able to help someone do a bit of work to try and make some money, but the pain in my fingers and spine started to get so bad, that I had to call and cancel both events.
Even typing this is killing my arms and those muscles. My muscles feel like i've been lifting weights way beyond what I can lift.
Is anybody dealing with their muscles in their arms always hurting??.. pain in SPINE, back, especially hands, and finger joints. I just can't deal with it.. i've cried my eyes out today..
Why won't God heal me....WHY does this keep going on.. almost 6 years now. I've got a great LLMD, that i'm scheduled to see on Monday, Sept 8th by the way. Have no idea what to even say anymore.
I've done ALL antibiotics, am using a Rife machine GB-4000 that helps, but now all of a sudden it feels like using the Lyme frequencies actually is starting to make me feel bad, instead of good, like it used to.
I had carpal tunnel surgery a few years ago.. and since then there is left over pain in my hands still, especially my right hand, which is NOT my dominate hand. My thumb muscle is sooo severe at times, it makes me bawl my eyes out.
I'm on 225 mcg of Fentanyl patches, which is the only way I can even function and then I have Tramadol for break thru pain that I can't get thru. I've had to cancel more events, lunches, meetings because the pain is just too bad.
Fighting depression and trusting and know that God and my Lord Jesus are for me.. I just need some ideas from somebody who might be dealing with the same things and have ideas on how to help me...
Thank you for reading..... I pray that God will download something that i haven't thought about, maybe I need to be tested for something else.. should try something else.. anything.. God help me!
.............................................
Breaking up a couple paragraphs for easier reading for many here -
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
What about diet? Some like myself have had huge success when removing gluten, soy, dairy, starch and grains as well as nightshades.
Posts: 1750 | From United States | Registered: Dec 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I found Benadryl to be more helpful than narcotics for nerve pain when I had RSD/CRPS. Histamines are also a neurotransmitter, and apparently can be involved in pain.
Consider also consulting a Lyme-Literate Naturopathic physician or Integrative practitioner to find alternatives or adjunctive therapies for pain, such as homeopathics, herbs, acupuncture, etc.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Multiple possible suggestions to what you're describing -
First I want to echo what Lymetoo is saying about magnesium for muscles - have you tried versions like Natural Calm powder, etc?
Second, I get muscle and joint relief from taking turmeric powder that I put in 00-size capsules.
Third, have you ever tried teasel root tincture? I mention it as one remedy that has helped some.
Fourth, have you ever had a full-body lymphatic drainage massage? That can help take pain down.
Fifth, I initially got total pain relief from taking oral clindamycin - have you tried all antibiotics or are there still some out there to try?
Sixth, pain meds - I rotated four heavier-hitting ones for a long time, mostly to get sleep but also to cover if I wanted to do something - vicodin, tylco#4, meperidine, and like you said, the tramadol.
I much preferred to find a couple to rotate so I didn't develop tolerance quickly to any one of them. If I did get tolerant as in dosage increase, then I dropped it out for a few months.
Seventh, have you ever tried putting lidocaine 5% patches on anywhere to reduce pain in that topical local area?
These are my first ideas - hopefully folks will have more.
[ 09-05-2014, 12:53 AM: Message edited by: Robin123 ]
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I am so sorry that you are having so much pain. I have a lot of similar pain to you.
Have you tried Voltaren gel? That is an NSAID in a gel form that you can rub on muscles and joints.
Biofreeze is something else that I spray on my muscles to get relief.
An epsom salts bath will increase your magnesium levels and help with painful muscles, even its temporary.
Don't stop looking for answers - I will say a prayer for you.
Posts: 187 | From Connecticut | Registered: Jun 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
So sorry you have that level of daily pain.
It sure is awful how these infections mess up just about everything.
I had pain like you describe in my hips and legs bones.
I could not find a comfortable position anytime because even the slightest pressure on my hips or legs would feel like they were freshly broke.
My doc is real good, and said that mycotoxins can cause inflammation in the tissue that coats the outside of bones. Some fancy term I think starts with an "I". Anyways, he suggested treating mycotoxins and upping the detox between medications.
I realized when I read your post I didn't have that bone pain anymore...
I think treating systemic fungal (in my case aspergillus and black mold), has made a huge difference.
That being said, the detox regimen could be responsible for the relief also.
I take chlorella powder, diecetomous earth and activated charcoal twice daily in large doses. If you need the dose PM me. We are not supposed to post dosages.
It is something for you to try. It is cheap and hopefully will help you in about 2 weeks. It costs me bout 30 per month.
He said mycotoxins get reabsorbed into tissues and are notorious for causing inflammation in bones and joints. Hence the binders above.
Keep on trucking. It does get better, honestly. I was at my wit's end with the bone pain.
Other suggestions above are good also.
Sometimes it seems hopeless, but that's the thing about lyme and co, it seems to come in waves. Right now you're at the bottom, but another wave will come and lift you up again.
Hugs Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I am so sorry to hear that you are dealing with these seemingly unending issues. We all ask the same questions you are asking yourself. Sometimes it is hard to believe that we will get better, but if we do the best that we can, the body does start to respond.
While you continue healing from lyme, I wonder if it might be helpful to manage your symptoms through a pain management clinic. They may be able to help you. If you chooses this route, make sure they know your diagnosis, and keep lines of communication with your llmd open.
I see a neurologist for symptomatic management of distressing movement disorder issues (twitches, spasms, dystonic-like muscle tightening). It is not the ultimate answer but I do believe that we should do everything possible to reduce physical suffering that can be so disabling at times.
Best of luck, and don't give up hope, things can and do get better.
Posts: 172 | From ohio | Registered: Feb 2010
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posted
If I did not have a Chronic Pain Management doctor working with me, I would probably.....well, I don't want to go there.
There are meds out there that will get you out of pain. There is not reason to live like this. Please, if you don't have a pain management specialist that is heing you, please find another one. I have to drive 2 hours to mine, but considering the alternative, that is nothing.
My prayers are with you.
p-
Posts: 67 | From Fredericksburg, VA USA | Registered: Jun 2005
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posted
I take Oxycontin and dilaudid for break through pain. That has removed enough of the pain that it isn't so bad anymore.
Posts: 27 | From North Carolina | Registered: Aug 2014
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
When I was where you are, my llmd switched my antidepressant to cymbalta. It helped with the pain within a few days... And then my mood lifted. I could not have continued without it.
I want to also suggest the poco ionic magnesium lymetutu recommends. I just started taking it... But it helped my muscle pain right away.
Posts: 1728 | From USA | Registered: May 2011
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