posted
I know about an equal number of people with lyme by itself as with coinfections.
There are many less symptoms, fatigue is usually profound, treatment is shorter and more straightforward.
A good llmd can help sort this out. I remember reading a statistic for this somewhere. It stated the percentage of ticks that carry Lyme, 1 coinfection, 2 coinfections etc…
Maybe someone else will recall the specifics.
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I was talking to another patient in my doctor's office. She said she got infected several years ago and just has Lyme, but people more recently infected seem to have a bunch of coinfections.
I was infected with Lyme in 2012 and 2013. I had several more coinfections the second time around (though I did have a bunch the first time). The total ones I've tested positive for are 13.
I also have babesia and bartonella, but never tested positive (I had the telltale red streaks though and other symptoms the second time around that were completely different than the first time I was infected).
This is completely anecdotal though. I know people who have been infected with the 3 Bs for several years.
Posts: 2839 | From California | Registered: Jul 2012
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
From what lyme doctors are saying, most patients who have lyme also have babesiosis and bartonella.
Lyme docs call these "the big 3."
Burrascano said a few years ago that if a person has had lyme for at least a year, then they also have coinfections. That is the rule.
See the Guidelines, pages 3-4 where he talks about having lyme for one year and the coinfections then becoming an issue.
I have found that the more a person educates himself, generally the further back he can see lyme symptoms in his past. So, it is good to study the disease and try to estimate how long you may have had it. That helps the doctor in determining your treatment.
Posts: 9931 | From Maryland | Registered: Dec 2007
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desertwind
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posted
I did not begin making progress till I treated for co-infections.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Yes, I tested negative for Babs but had all the classic symptoms. Treated for a long time and got better. Stopped tx and relapsed and there goes the merry go round. But yeah, it is very common. Good luck w/ treatment. DW
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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