Topic: Co Flare or the Big L... ? sigh...need opinions
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi guys,
Last 8 days have had bad head pain not relieved by migraine meds, NSAIDS, increased electrolytes, tumeric.
Slurring speech, mostly in evenings.
Lost my car for three days. Parked it when I was slurring, exhausted.
Didn't realize hadn't parked it in my spot.
Mostly a feeling of being oxygen starved. Like "getting the vapours", but not actually passing out.
As soon as I lay flat, my mind clears, I feel like it gets busy.
Went to the docs today.
O2 saturation 98 Heart sounded good. Pulse 72
Blood pressure 140/80
Never been that high ever. Makes me think I am inflamed.
Anyways, I called my LL and was put on two oral abx until I can get in to the office.
Just wondering if this "starved for O2" feeling in your experience has been a coinfection, or if you think I'm in a relapse.
Found my car. Was walking my dog and saw the parking officer. Then saw a car, "hey that car is like mine". Then realized it WAS my car...
Argh.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Oh Greta, it sounds awful. I have something similar when my babs symptoms flare.
It's like I'm not getting enough oxygen and it's hard to breath. My chest feels like the muscles don't want to move either.
That head pain is DEFINITELY A big one for me too with babs.
I'm so sorry you're feeling so bad.
I didn't have any of this when I was first infected with just Lyme.
My reinfection brought on these symptoms (which is when I got babesia).
My doc and I tried pulsing malarone a couple months back. I went into the office when I was off the malarone.
I was so bad off, I needed help just to walk from the chair to the exam bed and had to remind myself to breath. It wasn't anxiety, it's like my body forgot how.
My doc and I went up on babs meds and no more pulsing.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
posted
Could be babs (though only the air hunger sounds like it). Also could be all the toxins. I still think you should try going off the abx. Worth a try.
Candida is also a possibility.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
I strongly suggest an oxygen concentrator, use nightly when sleeping, 3 LPM, some LLMDS are open to prescribing these, but you can also buy online w o a script.
Posts: 532 | From Texas | Registered: Oct 2004
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Ok thanks Judie. The way you described it is exactly how it feels. Like my chest muscles and lungs forget how to expand.
Lymetoo: been off abx since May of this year. Was working on detox via chlorella, activated charcoal and DE.
Started up abx just Wednesday this week when I realized a week with no relief in sight and phoned my LL.
Otherwise, I would totally agree with you, if I had been on abx all this time (one and half years) and was not going b-t-t-w with the detoxing currently.
Dal-ok that is a great suggestion of an oxygen concentrator. Do you find it makes it better during the day to have it on at night?
I do feel like the slower I move, the slower my breathing becomes.
Not sure if it happens to you guys also but sometimes I feel like maybe I even stopped breathing, and then my body sighs to bring in more air?
Well I feel a bit better you guys sharing what your experiences were like/are like because it is very scary here worrying lyme has relapsed, or some non TBD related thing has come up.
Just reviewd babesia symptoms and I know I still have bart, so those two...well anyone could misplace their car...right?! Haha.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"I do feel like the slower I move, the slower my breathing becomes."
When I was laying down I had to remind myself to breath (move the air in and out of my lungs). I definitely noticed it when I was stationary.
It's hard to describe because it's not like anxiety where you hold your breath.
I don't feel like I'm holding anything, I just need to remind the muscles to work.
It might be related to muscle weakness. That's the other symptom that I get relief from when I'm on bab meds.
There must be muscles around the lungs.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
So sorry Greta,
Hope this passes quickly.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Hey Judie,
Are you saying that since stopping the Levaquin, you are doing babs treatment now? Sounds like the malarone was (or, is) helping?
I hope you are getting some relief!
Posts: 1308 | From Eastern USA | Registered: Oct 2013
| IP: Logged |
Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I have to use my phone to take a picture of where my car is parked- if I am not in an everyday parking lot- or if my brain is clogged.
Sorry you are having a rough time.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic