posted
Who keeps an eye on your IV line for Rocephan? We live in rural area, far from our LLMD in SF. I am improving on my IVs but my last line site may be infected. My son cares for it meticulously , but he feels that a nurse should see it at least monthly.
We are looking for a visiting nurse. I have no PCP because the ones near me have no idea about lyme disease and are afraid to touch me. A nurse did come to show us how to manage it, but that was all and we can't find him.
I will probably go to SF to see the surgeon who installed it. But we need a regular nurse. I am on Medicare so I don't know if they will cover it.
The good news is that after 24 years of this misery I am finally beginning my path to recovery! The Rocephan is definitely working.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
You should google nursing services/nursing agencies in your area and start calling.
Odds are Medicare will not cover the visit, so it will be out of pocket.
IMO, a picc needs to be seen by a nurse more than once a month but that's me.
And again, IMO, a picc should be removed/replaced after several months, at the latest.
Great news that the rocephin is making a difference. Sometimes it takes many months.
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Razzle
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Member # 30398
posted
A well-cared-for PICC can last more than a year (personal experience, discussion w/ local PICC-experienced doctors).
However, weekly evaluations of the site and arm are required. This is usually done by a nurse from a home infusion service (there are many - the one I use is Coram, but there are others depending on where you live).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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beaches
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posted
Razzle, Coram wouldn't provide a nurse for us. I guess it depends on what state you live in. It was a bit bizarre that I had to find my own nursing agency to provide the picc care.
But it's a great idea for farraday to check with Coram in CA if that's the infusion company.
I know piccs can last more than a year. I've always been uncomfortable with those things being in more than 7-8 months, eventhough there were no problems. Interventional radiologist I've dealt with said no more than 6 months, but that's probably erring on the side of caution.
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
First PICC I had, they didn't tell me anything about life-expectancy of the PICC, and I didn't know to ask. Thankfully, I only needed it for a month.
Second PICC I had, they told me it should be swapped out every 6 months.
My current PICC - lasted a year and 3 months before the line clips stopped working and I needed to get it replaced.
When I went in to Interventional Radiology for the replacement, they told me my line looked like it'd been placed yesterday even though it'd been in for 15 months. I expect this line to last a similar length of time...
My DH does my dressing changes this time around, and he's meticulous and very, very careful. I don't have any irritation, redness, or other problems at the site like what I had trouble with on my second PICC (2008-2011) when the nurse was doing the dressing changes (she was sloppy & had poor technique).
posted
Thanks everybody! Good input. My line is not a pic. It is a central line in my chest. I had a port last 6 yrs (for IV pain meds). I've had 3 lines.
We called surgeon. He said to scrub at least 2x daily with peroxide, rebandage with neosporine. Shower and wash it. If it's still infected in 3 days, go see him.
Nursing agy said to get Dr referral and then they will come.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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