posted
I feel like I have slow asepectic meningitis. Is it worth going to walk in care or er? Went to pcp and was told my symptoms are all over the place and he doesnt know and thinks i need counseling.
Posts: 159 | From usa | Registered: Sep 2014
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do you have a fever? If it is high, maybe seek medical care. There are other things besides lyme, of course, but as for lyme you will not find any doctor in any ER or Urgent Care to help you. And some states are even worse than others.
If nothing different from at the GP appointment and no fever of concern, or just low grade as is often with lyme, you will find zero help, just as with your GP. And be labeled even further in the process.
As your GP blew you off, you may be responsible for all of the ER or Urgent Care bill if you go without your GP's order in place.
I really can't continue but, as you sort this out, do the best you can to take care of yourself. I've been where you are, and kicked out of a few ER for very serious symptoms, too . . .
you will soon learn what you can to help yourself as you wait for a real doctor who knows what they are doing. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- WATER - be sure to drink enough. Not all at once, but about a good full glass every hour at least. Not too much more than that, though, as it can go overboard.
MAGNESIUM - are you taking this now, if so what KIND and how much ? It is your best support right now.
Are you taking any support supplements - herbal or nutrients (vitamins)?
Rx?
OTC - some over the counter products can make pain worse due to liver or kidney stress.
posted
No high fever, but still neck, tighness in neck and headaches. sometimes pressure in my headm, eyes and ears. I feel ok then crappy. Getting worse and worse.
Just sick of waiting
Posts: 159 | From usa | Registered: Sep 2014
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-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Neck tightness, headaches, pressure in head - all of these are Lyme symptoms.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I've had meningitis before. Twice admin to hospital. I have always had a low grade fever, not a high one. Had to have spinal taps to confirm it.
Your head will hurt like no other. Your eyes will not be able to handle any lights. You will not be able to bend your head/chin to your chest. Your whole spinal column will hurt when you walk, like the fluid is 'bad' inside and all will hurt from your head to your tail bone.
You won't be able to 'wonder' if you should go to the ER, you will have to be taken, as you will be that sick.
Both my times have been a major herx reaction that went 'bad'..... Die off for me cannot be done in a major kill off scenario.
Yes, otherwise, like Razzle said, the symptoms are all lyme symptoms.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
Have you asked in Seeking a Doctor for referrals to a Lyme doctor in your area? That's the only kind of doctor who's going to recognize what you're going through.
The others who don't know what they're doing re Lyme usually say we need counseling. Sure, for dealing with an onslaught of unwanted symptoms! But, we need to see a Lyme-literate doc for recognition and treatment.
Pressure in your eyes could be relieved by drinking some mangosteen juice. We're all different in how we respond, but that's what stops all Lyme eye symptoms for me. It's an anti-inflammatory juice.
Healthfood stores and online carry the juice. I like the Mango-Xan version as it's the most tart. It should work quickly if you try it.
You can keep posting symptoms and we can respond to what we've found to help alleviate them. Getting the suffering down is key and at least you'll be starting to do something about it all.
Treatment falls in three categories: kill/deter the organisms, detox, and fortify the body. Each area is an experiment to see what we're going to respond to. The Lyme doc can also do bloodtesting to see your blood chemistry and help supplement you appropriately.
You can use the Search function at the top of the page and type in any word or phrase and archived threads will come up. Just know we're all different in what we respond to.
Posts: 13116 | From San Francisco | Registered: May 2006
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quote:Originally posted by DaleS: I just started taking a magnesium, calcium pill. Usually 5 a day. It says take 3 daily. Do I need more or different kind?
-
Leave off the calcium .. just take magnesium.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Doses must be divided throughout the day and will a FULL GLASS OF WATER - this is for the safety of the kidneys. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say that you " . . . havent been drinking enough water. I'm depressed so I dont eat much or drink enough. Lost 40 plus pounds in a year." (end quote)
I'm sorry to hear this. Magnesium can help lift mood, too. Water, food, are absolutely required. Sometimes, if I don't feel like it I just have to pretend I'm in charge of this science project called "myself" -- and this body requires tending. It's a matter of biology.
If you leave a plant sitting on the counter and never water it, what happens? When you do, see how it can pop back up within an hour? It' a matter of biology.
We are a collection of cells and require hydration and nutrients. But, I would hope that soon you will enjoy food and enjoy the taste of pure fresh water, too. Not everyone on the planet has that gift right at their kitchen tap. Very few do, really. So let it work for you.
Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks Robin. There is a health food store around here so I will give it a shot. Any ideas for bad neuropathy besides magnesium? My feet aren't so hot anymore. I didn't know anything about the bloodtesting the lyme dr can do.
I was just wondering because I had done some research about meningitis and with lyme. It might be asepectic. Just worried about it.
I guess I need to dump my magnesium. I read how tablets actually fuel the the fire too. I think DR K** said something about that. No one seems to carry drops around here. Thanks for the great info on that.
The concrentrateo looks good. I need to get that. Just wondering your thoughts on if tumeric would also be helpful for lyme.
Very true. I did eat some guacomole today that I made. When I don't feel great I want to eat some comfort food like pizza, homemade pasta, chicken fried steak and gravy etc but I know I shouldn't eat much of that. I miss candy and ice cream too. I'll have to find some alternatives.
Thanks everyone for taking your time to respond and for your knowledge. If it wasn't for people on here I don't know how I would get through the day.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I like Natural CALM magnesium powder you make a hot drink with. does wonders
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
If you're experiencing neuropathy, in your legs and feet, with the hot/cold thing going on, it could be that you are low on B12.
The hot/cold thing in the feet can also be thyroid.
But.... with lyme, it screws up our whole body, so it's not really a thyroid problem per se, it's a lyme induced problem.
A good LLMD will know all this, so yes, that is the best place to go. They should/will check all blood levels for D3, B12, magnesium, etc. We usually are low on all of them.
Meningitis and encephalitis are by products of lyme symptoms. Really, you would be terribly sick and not be able to sit at a computer and type if you had meningitis. Trust me.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
I did have a normal cmp 2 months ago. Thyroid was checked in july and was normal. Don't think Ive done b12, d3 or mag. I have been taking lots of mag recently and it really is helping with twitches. I have lots of twitches on a tendon on the outside of my left ankle. It makes my whole foot jerk but has been much better recently.
Not meningitis now but I think its slowly happening.
Posts: 159 | From usa | Registered: Sep 2014
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- About your grub.
You say that you " . . . did eat some guacomole today that I made. When I don't feel great I want to eat some comfort food like pizza, homemade pasta, chicken fried steak and gravy etc but I know I shouldn't eat much of that. I miss candy and ice cream too. I'll have to find some alternatives. . . . (end quote)
By what you crave, it seems you may need better fats in your diet -- and SEA SALT.
I guarantee if you go with colors of real food, you will feel better enough to gather some hope and energy for the road ahead.
The REAL COMFORT FOODS: much of which can just be pushed into the oven, by the way.
Indeed, AVOCADOS are excellent food for you, for any meal or snack. Alone or as your home made guacamole: Stir in Extra Virgin Olive Oil, garlic powder, sea salt, chili spice to your taste - diced tomato. Sprinkle with lemon or lime juice.
Think: VEGGIES - carrots; yams; squashes of all kinds;
purple or yellow potatoes;
red cabbage; eggplant; kale; chard; broccoli; zucchini;
SAUTE onions; garlic; ginger and you have a gourmet meal on your hands.
& low glycemic BERRIES, CRANBERRIES (so easy to make, add a little stevia and a touch of honey 7 a dash of nutmeg). ORGANIC APPLES
Baked CHICKEN . . . Roast BEEF . . . LAMB . . . from free range / free grazing "happy" and well tended sources
DRIED BEANS - Kidney beans are very nice. Just soak overnight, cook in unsalted water and then do whatever you want with them after removing them from the simmering water.
Wild Planet SARDINES . . . Organic TOFU (only if you are low in iodine would that not be a good idea, otherwise, soy is good).
Extra Virgin Olive Oil, Organic Ghee for satiety / flavor and brain food
to round out any meal, a little: WILD RICE, RED RICE, BLACK RICE . . . RED QUINOA . . . season with spices / garden herb and rich oil
MILLET . . . AMARANTH . . . BUCKWHEAT GROATS cook up for a nice breakfast with a touch of GHEE or COCONUT OIL, cinnamon and touch of honey / stevia.
RAW NUTS and raw nut butters
EQUAL EXCHANGE PANAMA EXTRA DARK 80% dark chocolate is the best I've found. I suggest not going lower than 80 percent and this is the only brand I've found that does it so well. the label does not say but this is Gluten-Free, too.
About one ounce a day, with nuts or after a meal.
COCONUT "BUTTER" - Artisana is one fabulous brand. One spoonful of this is dessert heaven. -
[ 10-28-2014, 12:02 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Wow, thanks for all the food ideas. That is a very comprehensive list.
The good news is I do love veggies so none of this will be a problem at all. There is a nice coop where I can get local produce and organic and natural meats. A little more expensive but 1000 times better and healthier
Posts: 159 | From usa | Registered: Sep 2014
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