Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Have you ever wondered why it is that we normally don't just get Flagyl or Tindamax?
Have you ever wanted either of the two, but could not just get it or get it long term?
After pressing hard for answers from a TOP LEVEL source, I finally have my answer.
The side effects from those drugs & especially neuropathy from Flagyl is high & in those given the drugs for months. It ends up not resolving much or anything for the majority.
This is the reason why the LLMD's are reserved to give it out as we would like them to & it seems like a wise decision.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
I was told my my primary that after treating a patient long term with it for an infection the person developed foot drop. It never reversed itself for the patient.
I have severe muscle loss in both ankles and hands and wonder if the long term antibiotic treatment is the culprit.. They say sometimes the cure is worse than the disease.
Posts: 281 | From san francisco | Registered: Jun 2006
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posted
My llmd always told me to stop it immediately if I experienced any nerve/neuropathy type of pain.
Posts: 151 | From North East | Registered: May 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I only had 5 months worth & wanted more and was willing to take it months on end. I too experienced shooting pains down my feet & bottom of my legs & I thought it was just Lyme symptoms.
Luckily those symptoms went away for me.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
I took Tinidazole for months and never had a problem, pulsing. This is the only thing that will go after the cyst form, that and flagyl. When you take either of these you need to take a lot of b vitamins, that is critical to not getting nerve damage. Any good LLMD should have explained this. You need to take this along with other abx to go after all three forms of the borrelia.
Posts: 160 | From somewhere | Registered: May 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I totally agree with KH111. Load up on magnesium too. Foot drop is a common symptom of Lyme Disease and co's, as well.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I was on Flagyl for almost 3 years with no breaks and no pulsing. I don't believe I had any nerve damage from the Flagyl. I always took a multivitamin that had B Complex in it, and extra B12 (injections).
Lookup,
The person who told me about Thuja did not go into details, just mentioned that they would give me Thuja at some point for Flagyl detoxing if I continued treatment from them (homeopathic medicine).
I was put on Thuja by a different homeopathic physician to treat numerous moles on my skin (combination of topical tincture on each mole, and taking the pellets sublingually - I don't remember what potencies were used). The remedy actually caused several of my moles to fade and disappear.
posted
I was taking B vitamins and B12 at the time.. also magnesium, but perhaps not enough of it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
" This is the only thing that will go after the cyst form, that and flagyl. "
Yea, we hear that all the time. BUT what is one to do when the LLMD is not willing to provide it or prescribe it for a longer term than what you think you may need?
Posts: 2087 | From NY | Registered: Oct 2011
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Alinia goes after cyst form too according to my LLMD. It's suppose to be better than tinidazole/tindamax.
Posts: 2839 | From California | Registered: Jul 2012
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
"Alinia goes after cyst form too according to my LLMD. It's suppose to be better than tinidazole/tindamax."
Do you know what brand they recommend?
And what ever happened to GSE? Because it is so cheap, the same docs that sell expensive herbs do not carry this because they cannot make much on it? It is less than 10-$15.
Posts: 2087 | From NY | Registered: Oct 2011
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Alinia is a drug and I don't think there's a generic. The company has a drug plan if your insurance doesn't cover it.
Posts: 2839 | From California | Registered: Jul 2012
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