Okay, so it's official. My LLMD office is clueless about the problems with fluoroquinolones.
I'm STILL dealing with horrible pain after stopping levaquin in September.
At my appointment in October, the doc prescribed primequine. I asked point blank if it was a quinolone and was told it wasn't. My Achilles swelled up to 3X it's normal size on the 2nd dose. It turned out primequine IS a quinolone.
I just had my November appointment and informed my doc about my reactions and that I don't want quinolones. She just blamed my reaction on it must just be Bart, ignoring all the FDA warnings (she said another patient just came in being concerned and she had a look like "these patients know nothing...")
Anyway, Bar-1 has Cat's Claw in it. I expressed concerned and she gave a non-commitable, "I've never seen a patient react to it..."
Posts: 2839 | From California | Registered: Jul 2012
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Ugh. I'm sorry you're dealing with this. I've developed abx sensitivities and treatment has been much more difficult. But at least I'm not in constant pain.
Sorry about the Primaquine, too. I'm the one who told you I did fine with it, even after rupturing my Achilles on Factive. But I am also off the Quinolones, after a tendon flair on Cipro.
No advice re: herbs. I've taken both with no problems, but you seem to be in a super sensitive phase.
How do people detox/recover from Quinolone injury?
posted
My acupuncturist was talking to me last time i went...he has chronic Lyme as well. He said that he did buhner's protocol in the beginning without cat's claw because it was in the same family as the quinolones.
Something i never knew, so i stopped using it.
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Judie,
I got joint pain from cat's claw, but that was using high dosages.
I use Bar I and it hasn't caused problems. Bar I has many herbs in it, about seven herbs, so with each drop of tincture, there is very little cat's claw.
If you try it, start slowly. Maybe just one drop every other day and see how you do.
Then one drop per day. Then one drop two or three times per day and gradually work your way up to the dosage that works for you.
They say 10 drops three times per day, for the standard dosage, but everyone is different.
If you have pain at all during this, then reduce the dosage or stop if a lower dosage doesn't help.
Sorry your doctor doesn't understand the quinolone connection.
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Judie, Thank you for posting this. I didn't know cats claw was a quinolone.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Sorry your doctor doesn't understand the quinolone connection.
- Your Dr needs to get a clue.
I would skip the cat's claw myself. I don't think it does much anyway.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Judie
Frequent Contributor (1K+ posts)
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posted
Thank you! I'm actually thinking of dumping the LLMD and doing something radically different at this point.
I think I'll call Beyond Balance and ask their dosage protocol. That's the ONLY reason I'm going to my LLMD right now.
I just feel like the LLMD is taking stabs in the dark.
The LLMD is also doing a phospholipid exchange protocol on me, but if I'm not feeling different soon, I really don't believe they know what they are doing.
I'm done with pharmaceutical drugs. I've been feeling better without them anyway.
It just feel like I'm educating THEM whenever I go in there.
Posts: 2839 | From California | Registered: Jul 2012
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Boy, I wish I could get along without the pharmaceuticals.
Along with the drugs, I'm taking BB-1 Bar-1 and lots of different Buhner herbs. But I'm taking small dosages of Buhner. Need to increase.
Everytime I lower the dosage of the drugs or stop the drugs, the lyme rashes come back at the bite sites, and I get sick again. This is really scarey to me.
I understand that the lady at Beyond Balance can actually formulate tinctures specifically for you. You might ask them about this.
I just think they are charging too much for their tinctures. But I think a lot of people are charging too much in this business.
Good luck Judy.
Greta, Cat's Claw can act like a quinolone in some people, maybe. But it is still debated as to whether or not it really is a quinolone, because supposedly it has a different chemical signature than a quinolone. And I don't know chemistry very well.
I just can't take it in large dosages. But maybe that's because I might have tick bugs in my arm joints, and the Cat's Claw was having an effect on them. Not sure what happaned, really.
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