posted
Calling UK Lymies, M.E., CFS etc. Please complete this short survey if you have had tests or medical investigations for Lyme borreliosis by the NHS (UK National Health Service) through a GP or Consultant and are 18 years or older.
It should take about 10 minutes.
The survey is designed to provide insights into some questions about how the NHS investigate possible cases of Lyme borreliosis: What are patients told about Lyme Borreliosis testing on the NHS? What tests and investigations do they get? What symptoms do patients have? Are they satisfied with their medical assessment?
If anyone finds the text of the survey too small, your browser zoom should work or press CTRL and + (plus key) together.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Peter,
So glad to see you have organized such a good survey and are active in making the UK better for those there with tick borne disease. I'm not in the UK, still, I wish you very well.
In your headline above (I did not see it on the survey), use of the nick-name "lymies" caught my eye. I wonder if you might consider the reasons inside my post for why I think that term can be so detrimental to those with lyme:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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