posted
My 38 year old son was dxd a couple of years ago.
Before that he was throwing up continually and then ended up in ICU for several weeks with Pancreatitis. He has Chronic Pancreatitis and is in pain all the time.
Then he was tested and found to have IBS, diverticulosis, Barretts Esophogus, Hiatal hernia, and others. (Leaving hesrt conditions aside for this topic)
He is now in the hospital and they think he has gastroparesis. I am very concerned about his health obviously. Luckily he has Medicare and Medicaid. Buy other than a very small amount of money from the government he has no other source of income since he is sick so much of the time.
I have Lyme as well, but it shows up more in Chronic Fatigue, Fibro and a host of other problems.
Other than taking oral antibiotics he doesn't get medical care for Lyme. My family has for all practical purposes disowned us as we are not working. (I'm on early retirement.)
I can't stand to see my son just continually go downhill with his health. He has a Lyme friendly MD but he can't pay for anything that Medicare won't cover. He is so deeply depressed although he tries to put on a good face. His wife has health problems although does not have Lyme. Just not sure what to do.
Posts: 132 | From Texas | Registered: Apr 2012
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quote:Originally posted by JBS: My 38 year old son was dxd a couple of years ago.
Before that he was throwing up continually and then ended up in ICU for several weeks with Pancreatitis. He has Chronic Pancreatitis and is in pain all the time.
Then he was tested and found to have IBS, diverticulosis, Barretts Esophogus, Hiatal hernia, and others. (Leaving hesrt conditions aside for this topic)
He is now in the hospital and they think he has gastroparesis. I am very concerned about his health obviously. Luckily he has Medicare and Medicaid. Buy other than a very small amount of money from the government he has no other source of income since he is sick so much of the time.
I have Lyme as well, but it shows up more in Chronic Fatigue, Fibro and a host of other problems.
Other than taking oral antibiotics he doesn't get medical care for Lyme. My family has for all practical purposes disowned us as we are not working. (I'm on early retirement.)
I can't stand to see my son just continually go downhill with his health. He has a Lyme friendly MD but he can't pay for anything that Medicare won't cover. He is so deeply depressed although he tries to put on a good face. His wife has health problems although does not have Lyme. Just not sure what to do.
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Reglan is the only FDA approved medication for Gastroparesis currently. Compassionate use exemption can be obtained for Cisapride. Can also get Domperidone from Canada (see link about meds for gastroparesis, below).
Treating the Lyme will ultimately be the most helpful, as that has a chance to actually remove the Gastroparesis altogether (if Lyme is the only cause).
Experimental:
Lyme is known to generate ammonia as a toxin. BH4 deficiency has been connected with Gastroparesis. BH4 is used by the body to detoxify ammonia. There is a version of BH4 that can be taken orally, which may help.
I have not tried BH4 yet, but am considering doing so for my Gastroparesis.
Other info:
Be aware that other (chronic) infections may also cause or contribute to gastroparesis (including h. pylori, Bartonella, Babesia, parasites, viruses, etc.).
Also, some with Gastroparesis find they need to stay away from certain foods (such as gluten, dairy, etc.) to improve their symptoms. I myself find gluten to contribute to my symptoms, and feel better on a gluten-free diet.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: Treatment / Support for Gastroparesis -
Posts: 48021 | From Tree House | Registered: Jul 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Check out the PARASITE WARRIORS SUPPORT THREAD. Parasites/worms can imbed themselves in the small intestine and can cause gastroparesis and many other digestive problems. Also check out the symptom list at Humaworm.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
You may want to look into food elimination challenge diet since many of us with lyme develop sensitivities to any foods or products we use. Another idea would be to look into yeast in the digestive system. It is all to common and not many docs put us on anti fungal(yeast) medication when we are on antibiotics that cause these multi symptom infections. None of these may help but after over a decade of tx I try to use as many low cost/free ideas to see if they can help and actually I have had the most success with diet and yeast meds which are really cheap than I have with a lot of the "fancy" hospital recommendations (expensive drugs)
-------------------- Jane M Haltmeyer Posts: 10 | From Hunstville AL | Registered: Dec 2014
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