After several months of treatment with different antibiotics, my Dr. suggested I try ciproflaxin for a likely case of bartonella (clinically diagnosed). Because I have had stubborn symptoms of spasms and twitches, I embarked on this new protocol. I was aware of "rare" tendon rupture issues-and under the impression that if you felt tendon pain you should stop.
Well, I didn't feel very good from the get go-but no tendon issues so assumed a herx. By day 4.5 I had a terrible three dimensional, almost hallucinatory nightmare of the sort I have never had before. I didn't relate this to cipro, but continued to have anxiety through the next day. By day 6 I decided to stop takin Cipro. I had no pain whatsoever.
Day 7 I had a tiny pain in the heel of my hand. I iam now on day 11 since I took my first pill and I have very tender tendons throughout my whole body. It is hard for me to walk more than a few minutes because my legs will get a feeling of weakness and I feel like they could buckle. This pertains to all tendons, including achilles.
Well, I have now read all the nightmare stories on the internet of people being disabled from short regimens like mine. I refusef to take my mind to that scenario, but I would NEVER take a quinolone antibiotic again. I have had lyme for 25 years and have never had pain and weakness like this.
I am taking lots of magnesium, vit b12 shots, transdermal glutathione and a potent antioxidant (the one in krill) in addition to gaba, meltaonin at night. Fortunately the anxiety went away when I stopped the medication.
From what I have read, these antibiotics can damage your mitochondria, leading to cell death. Most people recover, but it can take time.
Two weeks ago I went ice skating outside on a beautiful winter day. Impossible now.
Please do not take this class of antibiotics. It is not worth the risk. I am hopeful that I will stabilize soon and heal. But it is very scary.
If anybody knows what helped them most, would appreciate hearing.
Posts: 172 | From ohio | Registered: Feb 2010
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posted
I took alka seltzer gold and that has lessened the pain a bit. I am taking the weekend and today off as these apparently are the days of highest possibility of tendon rupture.
Nutritional support+ tons of detox and magnesium. Good luck to those healing from this....will update on progress.
Posts: 172 | From ohio | Registered: Feb 2010
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posted
Thank you. It is a problem of mitochondrial dysfunction...so mitochondrial support is the way to go. I am getting a vitamin c iv on Sunday . I bought leg supports to wear around my ankles. It helps. Another healing "journey". Those who got better let us know what helps!
Thanks
Posts: 172 | From ohio | Registered: Feb 2010
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posted
Randibear, Have you tried wrist supports? Until the inflammation starts to go down it may be of help.
Posts: 172 | From ohio | Registered: Feb 2010
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I'm sorry. I'm still dealing with pain hell from 8 days of levaquin last September.
What it gave me was worse than most Lyme symptoms.
Here's a thread I did on the damage these do:
2013 FDA Warning about Fluoroquinolone antibiotics causing PERMANENT damage
If you can find a doc with a pain-x-2000 machine and k laser they can help heal the mitochondria.
What's also helped me is a good ND (naturopathic doctor) and TCM (Chinese medicine doctor who specializes in the old-timey, custom, boiling herb protocol, NOT the ones who give pre-made pills).
Good luck.
Posts: 2839 | From California | Registered: Jul 2012
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Magnesium lotion with MSM (Ancient MInerals) plus Magtab SR + Natural Calm.
It helps, but it is definitely more than just a magnesium issue. It will take time to heal. But thanks Lymetutu Posts: 172 | From ohio | Registered: Feb 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I have supports for both right and left.
when I told the doc he said oh you react to everything because its not the cipro. there are no other drugs for divert disease I can give you. jus take it.
not only no but heck no.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Honestly, I did tons of magnesium before, during and after levaquin.
Magnesium made NO difference in healing or prevention for me.
I did research to figure out where the idea about magnesium came from.
There's a short reference in Dr. B's paper that it may be helpful, but no studies were cited.
Sure, magnesium may be depleted, but there are WAY more problems than just magnesium.
If magnesium gives symptom relief, that's great. I wish it helped me, but it didn't. I got more relief from a heating pad.
If the DNA is altered and the body's healing is interrupted, the body doesn't quite know what to do even if you give it what is missing.
Posts: 2839 | From California | Registered: Jul 2012
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posted
my doc said omega 3 fish oil 4000-6000mg a day vit c 1000-2000 2xa day cooper .5-2mg a day to prevent tendonitis
Posts: 58 | From GA | Registered: Dec 2014
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I believe the best thing to do to get the medicine to pass out your body is drink a lot of water.
Posts: 107 | From new jersey | Registered: Dec 2009
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Day 7 update (7 days after stopping) 5.5 days after starting Cipro:
Last night I slathered magnesium lotion (brand is ancient minerals) with MSM over my leg tendons, calves and knees. This along with a double dose of transdermal glutathione.
I woke up in the morning with muscle weakness, but tendon pain in the legs was 80% reduced.
This morning: vitamin b12 injection double dose transdermal glutathione body wide slathering of magnesium lotion over entire body-I'm talking ALOT of magnesium. 2 magtabs Quercetin olive oil leaf extract 3,000 mg liposomal vitamin C omega 3 flax oil enhansa (cucurmin)
At 4:15 pm, I am feeling 65% better than yesterday.
Still have floppy tendons and weak muscles, but feel like I have stabilized. I took a short walk outside and did a little house cleaning. Also spent several hours in bed.
Will do more of the same this evening.
magnesium apparently can help get rid of this horrid stuff, as well as compensate for the severe magnesium deficiency we suffer.
I read that cipro will increase oxidants (damaging ones) by 70%-so antioxidants are crucial to helping reduce toxicity.
Then to heal-collagen and mitochondrial support, as mitochondria definitely seem to be damaged-.
I was taking many supplements and glutathione while I was on my 5 days of cipro, maybe this is helping me now.
It is as debilitating, or even more, than some of the worst lyme days.
Posts: 172 | From ohio | Registered: Feb 2010
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