posted
Maybe mast cell activation also? Is this something I should be super worried about? Is it something that regular docs are usually helpful with, or is it just another obscure malady that hardly anyone actually has
This makes a lot more things make sense to me now. Four years ago I started getting crazy histamine reactions to chicken (congestion, bright red burning face, neck and chest). Ate it much less often after that.
Recently, the same thing has been happening to me with other foods. Red meat, pork, cheese, kefir, and other things. And I get awful gut pain along with it now. My lips have been really itchy for many hours at a time also.
I have a lot of diet revamping to do, but can this be controlled with H1 and H2 blockers? Is there other tx I should seek out?
Funny thing is, long before this I had really crazy skin rashes and immune problems. My doc suspected an auto immune disorder of sorts and wanted me tested for lupus and other things, but I had no insurance.
After being dx'ed with GERD and going on nexium many of these problems went away completely (incidentally, I had made a diet change when I went on nexium). It was soon after I went off the nexium that the problems began with the chicken.
I have tried reading about this, but it is new and strange to me and I have a very difficult time processing the info. Some of the stuff I am reading is very frightening to me, so wondering if I am over-reacting to be very concerned, or if I should just chill and wait for it to work itself out with the changes I am making.
Posts: 474 | From US | Registered: May 2014
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posted
I'm pretty sure I have the same issue. It's been murder on me. Throw hives into the picture and it's definitely life-changing.
Evidently, Lyme disease can cause the mast cells to go haywire.
I would go to the Facebook groups and get some help. Find out what people are doing to help themselves.
There is a Mastocytosis Group there... has a long name... it's the "closed group"... avoid the open one. It's rather wild.
You do have good doctors not that far from you that may be able to help.
I have found that (for me) salicylates are a bigger issue than the histamine.
Regarding the H1 and H2 .. they help but may be counter-productive. I avoid them when I can. Have you seen the Low Histamine Chef website? Lots of learning there!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Thank you for giving me some directions to explore. I don't have FB though.
Apparently this can be caused by bacterial overgrowth? When I stopped tinidazole last month I decided to take a break from all abx until I restart my new regimen.
My histamine intolerance greatly increased after stopping the abx. I will be starting the new meds soon, but in the meanwhile I went back to tini and doxy (it put whatever is causing my air hunger, headaches, and disabling fatigue immediately into check, for now anyway).
It will be interesting to see if my histamine intolerance is reduced with the use of abx. If so that will be great, except I know it will probably be a big issue to deal with once I can go off of the abx.
I have also been chewing aspirin for the awful headaches I have while off treatment. Maybe another contributor.
I generally try to avoid things like histamine blockers. I wasn't sure if getting the symptoms under control is important for damage control.
I will have to check out the Low Histamine Chef. So far everything I find lists the high histamine foods to avoid, which all happen to form the staples of my diet, so I feel a little lost on food choices beyond egg yolks.
Posts: 474 | From US | Registered: May 2014
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posted
There is supposed to be a free online healthygut summit starting today - haven't checked on it yet - see threads I posted about it in Medical and General.
I've also been reading about reactivity. Seems that there's a stomach enzyme, something like DAO, that processes histamine. Maybe that's being interfered with. Don't know - only a guess re reading about physiological processing of histamines.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
PS .. I see the health gut summit is by Donna Gates .. as of right now I can't follow her program. The sauerkraut is very high in histamine. Just posting this so others will be aware of that issue.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my doc said I have some kind of histamine response but he doesnt know what. I start sneezing aft err r I eat. I will sneeze at least 7 to 10 times. very barrasing in restaurants. I jus look a round and say oh darn allergies....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Ha - I sneeze too, and so does my mom - we used to rate restaurants by how many times my mom sneezed - ah, this is a 5-sneeze restaurant, etc! I think it was from eating items with heavy cream in them.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I've been listening to the healthy gut summit. Last nite, speakers talked about leaky gut allowing food particles into the bloodstream, and then you start reacting to all the foods that aren't supposed to be there! Makes sense. So the speakers were saying that we have to heal a leaky gut.
There's a lot of insults to the gut lining, which is only one cell thick! I thought, one cell thick, no wonder we would get leaky gut!
But they're saying it's due to eating the wrong kinds of foods, and that if we ate healthy, we wouldn't get leaky gut.
That also includes not eating GMO foods, which can wreck the gut lining. That means, you need to google the list of GMO foods so you don't eat them, and shop organic or at farmers markets, basically.
The gut lining changes over every 3-5 days, so this problem can be healed if you know the right foods to eat and not eat. That's the good news, that this is fixable. But you have to get educated first about what all causes it and what and where to eat.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I'm on this histamine band wagon too... want to follow this... Up!
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
My doc put my son on this. His blood work showed high histamines and low DAO. He was anaphylactic.Histamine Block by Seeking Health is a patented enzyme formula containing diamine oxidase (DAO)—the main enzyme responsible for the degradation of ingested histamine. This enzyme has been clinically tested and found to break down food-derived histamine in the digestive tract. DAO is not absorbed and does not have systemic activity. Histamine Block does not manage or address antibody-related or IgE-related food allergies. He also eats a low histamine diet and takes zyrtec.
Posts: 58 | From GA | Registered: Dec 2014
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I am gearing up to grow my own pea sprouts. They contain the needed DAO. I've been unable to find a supplement I can handle. They all contain Vit C and I can't take it.
I'll go check the one you mentioned.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Yes he has congenital lyme. We just found out. He is 12 years old. He had 8 anaphylactic episodes in a short period of time. Docs said he had mast cell issues. 18 months of me not giving up we found out that the lyme was causing leaky gut which was causing Anaphylaxis. We went on a leaky gut diet, antihistamines, dao, and lyme treatments. He hasn't had an episode in 9 months!
The histamine bock has 20mg of vit c Posts: 58 | From GA | Registered: Dec 2014
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