About 3 days ago noticed neck pain, it's progressed to me being bed bound unable to move my neck. It's been 48 hours severe neck pain, it radiates down my back, into my shoulder joints. My hips hurt too, like my legs are gonna fall out.
Decided to go to ER as I can't hardly move my neck, maybe they can give me pain medicine. Perhaps I need a neck CT or spinal tap. I
I've thought Lyme meningitis, I just don't know, my Zllmd Is off Fridays. Don't know if I should stay mum about Lyme and just let them examine me. I'm either suffering from imflamation or maybe my immune system is attacking things like Guillaine-bar syndrome.
I'm afraid they won't help me but this is the 3rd time this has happened but it's worse and I'm immobile. Thinking a CARA SCAN or spinal tap might be good.
Do I play dumb on the Lyme? Mention I was treated this winter for it? This is so scary. I don't want to go cause I don't trust doctors but I think I need help.
Posts: 35 | From Boston | Registered: Jul 2014
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posted
You may want to mention you've "had Lyme" .. but if you are on antibiotics you will need to tell them and then they will want to know the reason for the meds.
Just don't tell them the name of your doctor.
I'm glad you are in the ER... keep us posted. I hope they give you something for the pain!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Told them I was treated for Lyme, they were very confused why I'm not inclined to see an infectious disease specialist,
Want to send me to rheumatologist. Ive already been worked up by one though and she said gradual exercise and antidepressants should cure me. Idiot.
Hoping to get a pain killer and muscle relaxer.nthis is the 3rd time it's happemed so I'd like something to help, esp if this is going to be a reoccurring event.
Wish I knew why, they might scan my neck area. The weakness and susceptibility to neck pain worries me, I've compketed 10 weeks IV abx therapy AND 3 months oral zith and ceftin.
I don't think I'll be going on them again, but I don't know what else I can be treated with besides just suck it up and suffer.
Posts: 35 | From Boston | Registered: Jul 2014
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Magnesium citrate as much as u can tolerate by bowel
Add potassium or half banana if necessary
Skelaxin or flexeril if you can sleep a lot and not drive for 3 days
Ice, heat, massage, stretches Whatever helps
You need to break the cycle
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Are you still there, moxy? Hope you get a scan.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
On another thread i started about resp/sinus bug everyone is getting someone posted it could be an entero virus that also causes encephalitis so if head/neck p as in gets worse its reall important to get it checked out
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
You could try chiropractic care - someone should do xrays of your neck to look at it, and if appropriate and needed, to adjust your neck gently and accurately. That's what helps my neck. I am not a doctor. I am reporting on what has worked for me throughout the years.
I also recall when I did some Natural Calm magnesium powder, all muscle relaxed in my body, including in my neck. I have a theory, and it's just a theory, that the tight muscles are pulling on the bones, and can do that anywhere - this just happens to be the neck.
Also, check your posture out, that your neck is in alignment over your body and not sticking out in front, which all by itself can tighten the neck muscles.
Then, the bacteria love to go where it's tight without much oxygen flow. I remember that I always used to take hot showers to relax the neck. Does doing that help at all? Just curious.
And beyond - you say your hips hurt too. I have found that taking bulk turmeric from the healthfood store that I put in 00 size capsules greatly takes down body pain.
Also, I rotated narcotic-level drugs for years, so I wouldn't develop tolerance to them. I rotated vicodin, tylco#4, demerol, tramadol. I tried to save them for sleeping purposes. I lasted 17 years doing that. Now I do turmeric and just aspirin.
My opinion is you haven't treated enough. There are so many other options to antibiotics - herbs, oxygen, supplements, electromagnetic treatments, etc. Many people do Buhner herbs. www.betterhealthguy.com has a huge website about complementary care.
I suggest you start using the Search function here to type in these words and start reading the archives. Treatment lands in three categories - treat/kill the organisms, detox, and fortify the body. Keep in mind we're all different in what works for us. It's good to work with someone who does bloodtests, etc.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Had this same sort of thing for several days and could hardly move.
I refuse to go to the emergency room to yet again get a saline iv, pain killers and be sent home with Ativan. But that's just my choice.
You need to do whatever you feel is in your best interests.
I know better than to mention Lyme at emergency here as the docs eyes just glaze over and I get the same response "that lyme disease is very rare here and we doubt that's what it is."
Anyway, I feel a whole lot better today. I took homeopathics, used laser light on the neck and shoulder area after applying essential oils and even applied some pink Light-Emitting Diodes that we had in the house.
posted
You know what? I feel fairly certain that I contracted Lyme when I was around 8 yrs old. I remember one time it took hours for me to be able to get out of bed due to neck pain.
I was about 12 yrs old!!! The doctor said it was "glandular fever" .. since he didn't know what else it could be.
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I hope your pain will be much better in the morning, moxy!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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I had previous neck injury and sometimes when I am starting a new herbal antibiotic, my neck takes the brunt of it.
My LLMD said that it's injury sites that the buggers like to hang out at - something about poor blood circulation in the area of previous injury.
For me at least, it may be a sign of progress, even though it can be incapacitating.
But always trust your gut - stiff neck symptoms (especially in the presence of fever or other meningitis symptoms) are never to be taken lightly. Better safe than sorry.
Posts: 348 | From NJ | Registered: Sep 2011
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posted
Well, this is the 3rd time I've had severe neck pain since getting treated. Docs just think I twisted my neck, but that doesn't explain why ibuprofen didn't help, or why it continues to happen without a precipitating event.
Usually when you twist your neck you remember. Or you wake up with it. This was a gradual 3 day onset, radiating back of head into neck, into right shoulder. Pulsing hip pain AND OCCASSIONAL numbness of hands and feet.
So no, I did not twist my neck unless I have a weakness in their from infection that causes it o happen from everyday neck movement.
I only got ibuprofen and Valium. I appreciate the valium to relax my muscles, but what I wanted was an x-Ray to check for imflamation, they ran blood work, but I know it's in my nerves, not my blood.
I was at least hoping for a pain killer, but I think they don't give that out much due to drug abusers faking pain to get it. What I really need is a drug to block nerve pain, but you know, just a twisted neck so DISMISSED.
I'm very upset and I didn't want to go, but not being able to move or turn your head for over 48 hours is difficult. Il just have to follow up with someone to see what I need if it happens again.
Posts: 35 | From Boston | Registered: Jul 2014
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
My heart goes out to you since I too have had this and it's horrid.
I don't believe you tend to see things like inflammation on an x-ray so not sure that would have helped you.
I know that I do have blood work quite often and they will tell me that my inflammation levels are higher, lower, blah blah blah....
Hopefully your neck is feeling better and this has started to settle down for you.
Keep us posted and good luck.
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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lpkayak
Honored Contributor (10K+ posts)
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posted
If your still there moxy a muscle relaxant like flexeril(cant drive) or skelaxin(may be able to drive) might help you
And making sure magnesium is ok
But i have been dealing with lyme and cos for 30 yrs and recentlyi am having almost exactly what you are having so im wondering if there is something new going on
I did just start an herbal/homeopathic protocol so maybe it is a type of herx like bitten says
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
tdtid...im looking for you...i have a question!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've got it. er's are a waste of time unless you're bleeding out.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
" er's are a waste of time unless you're bleeding out"
Agree!
I am going thru the inflamed meninges thing again, can't tilt my neck forward, keep falling over to the right etc.
I had such a negative experience when I broke a bone in January, I would rather die at home from this than be humiliated and in pain in an ER.
I hope this isn't against LN rules to post this. Just my opinion on my experiences. Let me know if it is I will delete it.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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