posted
Head pain started prior to noon June 8th of 2014 described as a Pain/pressure located in right Occipital/Parietal juncture area Aprox 1 month later started complaining of Shortness of breath & heart racing (especially in AM)Checked finger pulsox showed sats of 97-98 consistently However heart rate changes varied by as much as 30 points when going from laying to sitting to standing Also after about 1 month of Head Pain She also complained of intermittent neck pain. Unlike the head pain it was not constant and varied quite a bit. Additional symptoms that have since shown up:
Regular stomach pain & nausea Chest discomfort & palpitations Short of breath (“lungs feel tired”) Fatigue Bruising without remembering an injury. Bruising that takes an extended amount of time to heal A couple of syncopal episodes Hearing echo’s of things that have been said, i.e. hearing something she has heard before but is not currently being said. Complaint of right leg feeling funny Neck pain Extremities sometime tingling but not the same as a “pins & needles” Significant problems sleeping Symptoms worsen with activity Vitamin D deficiency
Has had 2 negative lyme tests 1 in august of last year & 1 a few weeks ago
Posts: 9 | From Richmons Va | Registered: Apr 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, indeed it sounds like it could be lyme (no "s") &/or other tick-borne infection.
I will limit my energy to just the hearing part.
The hearing symptoms, especially, it sounds like a sort of hyperacusis, very common with lyme. Also could be a brain nerve function relay with auditory parts of brain, neuron firing and ear connection.
The ears and the sensory functions of the brain can become jumbled in all kinds of ways with lyme as it can attack the cranial nerves VI & VII (and, well, anything else it wants to attack, too).
The neck pain is a classic lyme symptom and can also contribute to brain / sound sensory dysfunction.
the little "hammers" in the ears could be spasming from the "hit" of sound, too. Mine did. Very odd. Fortunately, I had a very interested ear researcher have machine that showed this.
MAGNESIUM might help if this is part of what is happening - as magnesium can help lessen spasms.
Most doctors have no clue about all this, though a good lyme literate doctor (LLMD) will.
So, she should be evaluated / assessed by a LLMD if at all possible.
Negative tests run by regular doctors are often not accurate. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "syncopal episodes"
oh, yes, many are no stranger to passing out. This can be for various reasons and is fairly common with lyme.
A Tilt Table Test might be good to help figure out if NMH is involved. If standing still is hard, that's clue. Neurally mediated hypotension - orthostatic hypotension is similar. Can be connected to the severe adrenal dysfunction that lyme can cause.
And, if the inner ear is affected as it seems, that can also trigger syncope - even just from sounds or the turning of head - or shift of eye focus.
I really have to stop now. Others will add to this. Good luck you both. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
The negative tests mean nothing
A lot sounds like lyme
One of best new books to help you sort it out is "why cant i get better"
Its written by one of top llmds lyme literate docs
You need To get patient to llmd and have igenex test done...even if neg ir gives good info to doc who understands lyme
Another exceklent resoyrce is ilads.org
There is a forum on here called seeking a doc
But best to talk with ppl who have experience with doc
Good luck. Sorry for typos. Im really tired
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Diagnosing Lyme Disease (&/or whatever else is going on)
Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
Thanks for all the information. We are ordering the Kits from a lab to get co-infections test & c6 peptide tests done
Posts: 9 | From Richmons Va | Registered: Apr 2015
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