posted
I am in my 4 month of treating my family of 4 for Lyme, bart and babesia. Do you think it is necessary to get the igenex complete co-infection test done? I believe my son has mycoplasma. Should I just allow my LLMD to treat on symtoms alone?
Posts: 58 | From GA | Registered: Dec 2014
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Some LLMD's order more test, some don't.
Most treat on symtoms only.
Maybe more members can give you their experiences.
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I have always been told the coinfection tests are not really very good
Llmds sometimes feel strongly about testing for some and dont care so much about others
I felt my babs and bart sx clearly with herx and then go away
I was glad to know erlichia was taken care of with doxy
I think fewer coinfection tests is a good place to save money
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Save your money. If you herx on the meds for each coinfection, that should tell you enough.
Might want to get a test for bartonella since the bart meds are so horrendous that you don't want to be using them needlessly.
(and they'd make you feel like you are herxing anyway)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymeboy
Unregistered
posted
It's always good to have a positive test. But Kayak is right, the tests are not good. Pretty bad actually.
Igenex is better than most. I tested neg for babs 3 times through labcorp and lit up the IGX fish test with holiday cheer. Definite positive.
Bart tests all negative, but I DEFINITELY HAVE BART. I never got an IGX Bart test because I finally got with some people that treated the symptoms. I will be getting a Bart test at some point in the future though, when I get the scratch up to treat it. Next time I hit Bart, he's going down.
If you have a good LLMD that will listen to you and treat your symptoms, you do not need all those tests if you are lacking in funds. But a positive is good to have. It'll help get your drugs covered and protect your LLMD.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Experienced LLMDs ARE often the best detectives - and detectors! There is a lot to be said for acquired wisdom of those who have made this their life's work / research. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Tutu...i didnt think rifampin was that bad. It worked. And i had to start real small and ramp up. But i herxed and many if not all sx went away
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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