posted
I don't know how to read a Stonybrook test. I don't think they test for all bands and it looks like they didn't even list the bands that were positive??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
The test itself says "IgM WB positive", so that's a positive test. I don't know how the neurologist can argue with that. Then again, I don't know what "[neg]" means farther over on the test and I can't read the full sentence under that since part is cut off.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The trick comes from the CDC definition and criteria and that they don't usually want to acknowledge the IgM at all.
They have a multi-tiered requirement, even if one test is positive.
Any doctor that requires you meet all criteria for CDC lyme diagnosis is just not one that has the full understanding required.
See the Western Blot test explanation articles in the set below.
Also know that you will need someone specifically lyme & tick-borne disease literate to take it from here.
[With just one or two LL neurologists in the entire country] . . . Most neurologists know very, very little about the realities and complexities of lyme. Most are married to the IDSA in this matter. See detail in second thread below as to why this is never good for patient.
If this one is trying to discount your symptoms (which you obviously have or you'd not be with a neurologist or doing such a test) and he is not looking at the test results and also acknowledging that this test does NOT even test all important bands . . . Don't even try. Find a LLMD.
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Nicole,
Your second link shows nothing - just a main site for smurfy. You might want to adjust that so we can see what you intended to share.
by chance, did you EVER have a bulls eye rash? Was this want you were trying to post? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
. I've had my dealings with neurologist -
neurologist and Lyme don't mix well! They don;t know squat about Lyme & Co's...
You need an LLMD...
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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quote:Originally posted by sixgoofykids: The test itself says "IgM WB positive", so that's a positive test. I don't know how the neurologist can argue with that.
-
That's what I thought at first, then I saw the negative. Weird test.
Looking at it again, it looks like the IgM is positive and the IgG is "Indeterminate"....so it's still overall POSITIVE.
--
Neurologists don't generally know ANYTHING about Lyme.
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