posted
My daughter was on Plaquenil for about one week. She got terrible weakness that might have been low blood sugar.
The doctor had her stop it and all her other meds which included Tindamax, Biaxin and Augmentin.
The weakness lifted but what remains is brain fog.
Any thoughts?
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Did the Biaxin and Augmentin help the brain fog? They help my daughter.
Phosphatidylserine (PS100) and Pycnogenol have been helpful.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
the brain fog came after adding the plaquenil to the other meds, she never had the brain fog before.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
Would you think trying her Adderall would help?
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
If I am reading this correct, she was doing pretty good (no brain fog) on Biaxin, Augmentin, pulse Tindimax,
added the Plaq. and a big NO. Removed the Plaq. AND all other antibx.,
so now she's off everything, side affect weakness/ Plaq. gone, but left w/ brain fog.
But, she is off the Biaxin and Augmentin. Sounds to me (and I see this here in my own dd),
the Biaxin and Augmentin were clearing brain fog/cognitive gains.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
brain fog lifted an hour ago. thank heavens. hoping it was the plaquenil. se's gong back on the other awhile ago. meds in a few days. never had brain fog before. shes getting ready for med school applications. just took the mcat and has a final on tuesday, really bad timing.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
Thanks, Surprise. Lymetoo, she's really careful with the diet, probiotics, etc.
Unfortunately the brain fog is back. It seems to come and go all day.
It's all so frustrating.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
Also, night sweats for the first time ever last night. She's never tested positive for anything but Lyme... other than the genetic realtime labs testing for mold susceptibility which came back positive.
Maybe the Plaquenil hit Babesia?
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
In our area of the country, nearly 100% of all lyme patients have babesiosis. So, you have to treat for it regardless of test results.
She is exhibiting the symptoms now that you evidently attacked it. This was my experience also; I had no real babs symptoms until my doctor started treating it. Then, look out!
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thx TF. That's what I was thinking, too. She says that her doctor has treated it at some point during the years, but my daughter also thinks she may have had another bite last summer.
My son tested positive for duncani, so his doctor hammered it. I actually think what worked for him was Larium and Alinia, but who knows, really. And he's been cured so long now that maybe what his doctor did is not being done now. He's been well since early 2012.
She's going to talk to her doctor on Monday.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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