posted
After lyme was dormant for many years, I retested at Igenex last year and came up positive after I had no explanation for muscle pain.
I am in the hands of a great LLMD -- one of the best -- and am currently on two antibiotics (Doxy and Cedax), Interfase Plus, Chlorella, Cholestyramine, Niacin and several probiotics.
For the last several months, I've had pretty consistent muscle achiness in legs and sometimes back. Occasional lightheadedness but few other symptoms.
For the last 3-4 days, I've gotten bad back pain and now it's hard to even walk. Feeling really frustrated and anxious.
I'm doing everything right. Taking my meds, exercising, sitting in the sauna, and my LLMD says we're killing spirochetes but I'm not feeling any relief.
Just reaching out for support and reassurance that I'm going to be OK!!! Any kind words are appreciated!
Thanks!
Posts: 160 | From Los Angeles, CA | Registered: May 2002
| IP: Logged |
steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Bruce, Sorry to hear your back in this boat...
You could be in more pain and not getting better because of what your doc said...
quote:and my LLMD says we're killing spirochetes
Most people feel worst before they feel better.
I will tell you this> If you continue to feel frustrated & anxious, your recover will take much longer.
Hang in there, and keep positive and busy. Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
| IP: Logged |
We went from one to two antibiotics and he said his plan was to get the meds in deeper and do more killing. So that does make sense with the extra muscle pain, right?
Posts: 160 | From Los Angeles, CA | Registered: May 2002
| IP: Logged |
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Those would be Babesia symptoms for me. The physical and emotional. Will your doc evaluate and treat for co-infections?
posted
Cholestyramine can aggravate Lyme symptoms. I couldn't tolerate it. When I took it when I was on abx we blamed the abx. Later we figured out it was the cholestyramine itself. I never could take it.
It is known to aggravate Lyme symptoms, yet we all think of it as "just a binder".
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/