LymeNet Flash: Everyday is a new adventure in being sick

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Everyday is a new adventure in being sick

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Topic: Everyday is a new adventure in being sick

campermom
Member
Member # 39856

posted

HI there. I have been sick for many- maybe 12 years...maybe more but really sick for 8. I was diagnosed and put on doxy and flagyll about 2 1/2 years ago and have been doing supplements and off and on doxy during that time. I did get better. Not perfectly better but my horrible pain went away, my face stopped drooping...things like that. I have been failing since last August. And now it is hard for me to even get out of bed, to do household chores and to shop for groceries and cook dinner.

I am not sure what to do. I meet with my dr. on June 15 and I want to have a plan of my own. Last time I was sent home on doxy (no Flagyll because my extremities were getting numb)...more numb that normal Lyme. and Claritin. I have gotten progressively worse and need a new plan.
I have to be careful of which antibiotics I am on due to lyme in my heart. Could cause long QT.

I am open to whatever it takes to get better.

Posts: 53 | From USA | Registered: Jan 2013 | IP: Logged |

campermom
Member
Member # 39856

posted

I was going to tell you how my days go but forgot to include. Two days ago I took my children to a museum and was so weak and tired that I basically sad on a bench in whatever area they were in. I had to drag myself in and out of the place. Then I went to my Chiro who does body work...muscle testing stuff and I have had some success with getting more energy when I go there.

I had a herx from the treatment and my heart was misbeating all night. Yesterday, I was treated to a migraine and from pushing a cart in a grocery store, I was up all night with sore muscles. My heart is still misbeating.

I would describe my sickness as Chronic Fatigue and MS right now.

Posts: 53 | From USA | Registered: Jan 2013 | IP: Logged |

lolo
Member
Member # 43186

posted

Do you see a LLMD? Its customary to be on at least 2 ABX at a time or you can build up a resistance

Do you do any herbals with the ABX?

Do you have Lyme and co infections?

Posts: 51 | From Albuquerque | Registered: Feb 2014 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Sounds like you may have untreated babesia. Have you treated for it yet?

Also.. get some high quality magnesium for that heart!!! You might try some Mag Glycinate for starters.

I sure hope you get some help at your next appointment. It doesn't sound like your LLMD is very aggressive with his protocol??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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