Topic: Intracranial Hypertension and doxy side effect
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I think this is a common tick disease symtom or complication or whatever you call it.... Intercranial Hypertension, and I have had this happen to me also from severe food allergies (from pork)
has anyone bee diagnosed with IH? from what I read it is hard to get this dx. '
I was put on doxy a couple weeks ago for a new tick bite and I am feeling this terrible head pressure again and other sx like more blurry vision and nausea.
I am slightly worried that if it's from the doxy it may do bad damage- I know that chance is slim, but who knows. I might be the lucky one like I often am.
thinking about it today I realized that I have had sx of IH come and go for years.
from this link:
"Most people with chronic IH experience three characteristic symptoms: severe headache; visual changes due to swollen optic nerves (papilledema); and a whooshing noise in one or both ears that is correlated with the pulse (pulse-synchronous tinnitus). While these three symptoms occur most frequently, it doesn’t mean that every person will have all of them. It is possible, for instance, to have chronic IH with pulsatile tinnitus and severe headache, but without papilledema. "
"other symptoms": Dizziness, lightheadedness and balance problems: These symptoms can range from mild to severe, depending on the person. Gait ataxia (difficulty walking) has also been reported in chronic IH cases but the exact cause is not understood.
Parasthesias (numbness/tingling in hands, feet, face)
Nausea/vomiting: This symptom is associated with the chronic, severe IH headache.
Rhinorrhea: Spinal fluid leakage from the nose (rhinorrhea) is a result of high intracranial pressure erosion of the bone separating the skull from the nasal cavity.
Endocrine problems: While uncommon, endocrine problems can be due to the flattening of the pituitary gland and empty sella syndrome.
Malaise: Malaise and fatigue can be a side-effect from medication. It can also be a result of chronic debilitation from headache pain, inadequate diet, and sleep deprivation.
Depression: Depression and anxiety are associated with chronic disorders. However, recent research has found higher rates of depression in women who experience chronic headache. Whether this is also true for chronic IH and depression is unknown at this time. Depression appears to occur at somewhat higher rates with chronic IH than expected but research is needed to confirm this observation.
Memory difficulties: Short-term memory problems and dysgraphia (trouble spelling and recognizing words) are often mentioned by people with chronic IH. This is another area in which answers about chronic IH and its effects can be uncovered through research.
Exercise intolerance: For some, physical activity may exacerbate head pain and other IH symptoms. Unfortunately, this can be especially challenging for someone with idiopathic IH, who is trying to lose weight.
I am guessing the doxy can make it worse, rigth? how do I get dx ? I am also guessing this could be from the recent tick bite? and if I stop the doxy I could get worse?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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posted
Doxy can increase your intracranial pressure.
Increased intracranial pressure (pseudo-tumor cerebri) is diagnosed from a high opening pressure reading when doing a lumbar puncture.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Is it possible you are herxing? I will start hearing and blame it on everything else in the world but a herx, like I am too "cool" to herx like everyone else?
Don't know why I do that, but once the herx is over THEN I realize it was a herx. I think I feel like the herx is an insult. I know, crazy I am.
I don't want to see you bypass important symptoms, but neither do we want to see you fret yourself stupid either. (From Ms. Fret Stupid herself.)
Another note- all of the listed symptoms can be caused by Lyme and coinfections without added medications.
It will be, as you are experiencing, hard to sort out.
If any symptoms get worse be sure to report them to your doctor. OK?
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do review your liver support, etc.
Bottom line, though, is that you need to talk with your doctor, directly about your reactions and questions.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Oh, and be sure to stay away from fireworks of July 4. This is really important in light of the symptoms you list. Really important. Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- While your symptoms are not at all unique to intracranial hypertension, if this is going on to any degree . . .
Brain pressure, inner ear issues, pain and the whole reaction to infection all go hand in hand with edema (inflammation). The inflammation and edema / water swelling inside our tissues is the reaction not just to infection but also to liver load.
Be sure to look for all the Rx and OTC products you take to be sure edema is not a side effect.
Same with foods that cause holding of water weight.
A LL ND might be good to also consult for very particular methods to help you. Just one thing that comes to mind (but should be discussed with a LL ND who may also have other ideas)
. . . Boswellia serrata is a natural anti-inflammatory that appears to have a significant effect on controlling and reducing cerebral edema . . . . -
[ 07-04-2015, 02:09 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I had forgotten all about Boswellia serrate. I used it many years ago and recall that it was wonderful for me. Still, it may nor may not be right for you at this time. there are certainly many excellent anti-inflammatory nutrients that are up for consideration.
It's about inflammation. Remember that is why the antioxidants used with liver support matters so much, and that also involves diet, so being free of gluten, dairy and corn really matters as those can cause lots of inflammation.
MANGOSTEEN may be especially good, too. ASTAXANTHIN as well.
Good luck. -
[ 07-04-2015, 02:10 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
The NIH has information about intracranial hypertension on its website, and says in part:
...patients who complain of headache after using doxycycline should be examined carefully, including their visual acuity, and formal testing of the visual fields. Funduscopy after dilating the pupils to look for papilloedema is mandatory.
I read this on another website:
The most common symptoms of intracranial hypertension are headaches and visual loss, including blind spots, poor peripheral (side) vision, double vision, and short temporary episodes of blindness. Many patients experience permanent vision loss. Posts: 119 | From Pennsylvania | Registered: Jul 2010
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
pab, yes, I did read that. I am considering..... I know many people would be like "don;t puncture your fluid!!!!!" but I am realizing that , in reviewing these sx, I have had this IP for a loooong time.
years and years. I get strong pulsatile tinnitus all the time. they checked me for an aneurism years ago when it got real bad, but I don't recall anything they told me when that test came back negative.
I don't think now that doxy making it worse really. it has come and gone for so long so how coul d I blame doxy?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Tincup, I totally know what you mean by not being the one that herxes. haha. I do that too, but always with doubt, so I have considered it could be a herx, but now today I don't think so since I thought back to my medical history and remembered how I've had the PT and IP for years coming and going.
I can def. see (and feel) the doxy and what it's doing as it's doing what it likes to me- giving me a bloated belly with pain.
maybe I am herxing too, but who knows. when I am done my dose I will see. it's almost over, yay.
my tinnitus has really increased again with the doxy. it was going away FINALLY last couple months, so I hope this dose doesnt make it stick around more. ugh
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Keebler, (I have the strong desire to write you as Keebs- would that be offensive?)
so keebler, I forgot about the liver until yesterday when I got a sudden sharp with dull ache right there and it brought back memories!
OK, so I will read to refresh my mind about liver. darn. so much work to do to take care. I am so tired of it..
and tired. I stopped my adrenal meds 'cause everyone told me they were fine and now they are not. so back I go on them and take that pill that really helps but has bovine whatever in it that creeps me totally out!!!
and another pill 3x a day- I just wanna cry. it's not fair. I know- nothing is fair.
one thing doxy does is make it really hard for me to drink water and swallow pills. why is that????
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Edema. hmm. I have been really bloated. I have been gaining weight too. the genetic (ND) has me on stuff for my mthylation cycle and it seems to be making me fat and constipated.
he said it is because my thyroid is messed up now.
I am so confused. so many issues. why can't there just be one pill that solves them all!
he is about 1.5 hrs away and my apt is in a few weeks.
about liver- I do have genetics for developing cirrhosis, so he has warned me about taking alcohol in minimal amounts. would this also be something to consider on how the doxy affects liver? I wonder.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Alisandne, thanks, yes I saw that too. scary. but for me to get a dr to admit to this or actually be concerend would be a tremendous feat, blelieve me.
I had seen eye specialists a couple yrs ago and one found hemangioma on my optic nerve- or at least that is what he thought it was he said. he wasn't 100% sure.
so maybe this thing in my eye is changing or growing or something?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
oh, and plus , my visual changes were getting worse before I was on the doxy. not saying doxy couldn't be at fault at all here, but somethign is going on regardless
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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