WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Does anyone have insights or experience with chronic or recurring chlamydia pneumonia?
I first came down with this over a year ago, and have had recurring asthma symptoms since. After a worsening of asthma sx this spring, LLMD again tested me for chlamydia pneunomia and it came back positive again.
He said the results indicate a new infection, but I'm wondering if it has been there chronically all along. This is all while I've been on biaxin, which *should* have done away with it.
He wants me to do a 10 day course of Levaquin now (yes I'm aware of s/e of that drug class, willing to do it). Any insights on how to get rid of this??? thanks!
Posts: 1737 | From Virginia | Registered: Aug 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes. I suggest you do the Burrascano weightlifting requirement. It will boost your immune system and end this problem. See my other post to you saying the same thing.
I did the weightlifting even when I took 30 days of Levaquin to kill bart. Just be on the look-out for any pain beginning in tendons. Stop levaquin as soon as you notice anything like that.
Wish you the best.
Posts: 9931 | From Maryland | Registered: Dec 2007
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WPinVA
Frequent Contributor (1K+ posts)
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posted
That's a good idea. I was doing pretty well with yoga for a while, then had to stop due to trouble with breathing/asthma, probably all caused by the c. pneumonia. So circular.
And now I've gotten out of the routine. It's a good reminder to get back to the exercising. thanks!
Posts: 1737 | From Virginia | Registered: Aug 2011
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WPinVA
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posted
what do you think I should start at? 3 lbs? 5?
Posts: 1737 | From Virginia | Registered: Aug 2011
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TF
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posted
You have to lift light enough weights that you can continue lifting for one continuous hour.
So, lift what you can lift for say 5 minutes without stopping. After that lift, go to another machine and do it for 5-10 minutes.
Switch back and forth so that you do upper body for 30 minutes and lower body for 30 minutes.
Do arms, chest, back, abs, and legs. Include some crunches and various types of arm and leg weights.
You need a full body workout each time.
So, on some machines you can likely lift 20 lbs, on some machines less, etc. On a leg press, for example, you can likely press 20 pounds with no problem.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- 10 days' treatment of chronic Cpn will not be long enough. It's nearly a twin sort of treatment regime to lyme, really.
The IgA is the test for chronic, though, so check to see what kind of test you had done.
Cpn HELP
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- That said, I would NEVER take Levaquin, ever, even for a new, acute case of anything. You said you are aware of some questions about it. In case you want to review the range.
Fluoroquinolones (Levaquin, Cipro, etc.) - LINKS set
For a more detailed look into this topic, it's alarming that so many have experienced devastating effects. It's not unusual at all. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- If you are having asthma symptoms, I'd stay out of the gym. So many chemicals, scents, sprays, powders.
Better to get your own light weights and set up a place to do gentle pilates or Qi Gong on your own, out of doors or at a good friend who has good clean air. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
Frequent Contributor (1K+ posts)
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posted
The CPNhelp link is great - thank you so much! Depressing, but better to know.
IgG and IgA were normal. IgM was elevated.
LLMD said that indicates a new infection. Is that right? He's very good but his specialty is Lyme, so not sure how familiar he is with CPN.
Also, I have low IGG so I'm wondering if I just am not able to mount the expected level of antibodies.
[ 07-04-2015, 09:50 AM: Message edited by: WPinVA ]
Posts: 1737 | From Virginia | Registered: Aug 2011
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WPinVA
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posted
Well now I have the script for Levaquin but am unsure whether to take it because I actually feel pretty good on "just" Biaxin/Ceftin. Thoughts?
Posts: 1737 | From Virginia | Registered: Aug 2011
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Keebler
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posted
- Do you have precautions on hand to take prior, during and afterward? Have you been able to research whether any precautions can greatly minimize the serious risks?
For a new acute Cpn infection, direct treatment is important with treatment that is strong enough to really do the job. It's just that the risk of getting floxxed requires study & planning.
Not sure if the other two will do what you need, even if you do feel better - while that's good, there is more to clobbering infections from the get-go than that.
Also, if you take it, be sure not to go stretching, lifting, twisting, driving much of a distance or sitting still long periods of time, either. You'll need to be very clear on body mechanics self preservation not just during but for quite a while afterward. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
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posted
What's giving me the most pause is that I've been having heart palpitations for a while now and Levaquin apparently increases the risk of that.
Also, Biaxin, which I'm on does too.
So confused - I need something to address the c. pnemonia but the drugs that seem to do that also increase palpitations, which I'm having and which are FREAKING ME OUT.
Posts: 1737 | From Virginia | Registered: Aug 2011
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WPinVA
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I decided to go off of Biaxin to see if it helps reduce heart palpitations. Nervous tho because I think it was controlling the C. pnemonia.
Retook blood test for c. pnemonia today. Original result was so strange showing a new infection when I actually don't feel sick.
LLMD offered doxy or mino as a replacement for Biaxin. Think I'm going to take him up on it.
Posts: 1737 | From Virginia | Registered: Aug 2011
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WPinVA
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posted
I just had another test come back positive. Lab was supposed to run a test for chlamydia pneumonia to confirm prior positive finding, and they ran the wrong one - but it too came back positive!!! Ugh.
Second positive was for chlamydia trachomatous, which apparently can cause pulmonary issues but it's unusual.
LLMD referred me to an infectious disease doctor. Which was also v. surprising.
Posts: 1737 | From Virginia | Registered: Aug 2011
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randibear
Honored Contributor (10K+ posts)
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posted
ugh...i can't take levaquin and cipro...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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WPinVA
Frequent Contributor (1K+ posts)
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posted
I have been on mino for the past week for the CPN infection and lung sx have been improving.
However, now I'm unsteady on my feet and kind of dizzy. I have this strange full feeling in my head. Sde effects from the mino?
I hate being so sensitive to all of these meds. Wondering if I push through if this will go away, or if I need to stop it?
Posts: 1737 | From Virginia | Registered: Aug 2011
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tricia386
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posted
Mino made me vert dizzy at first it did pass though
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You may need different liver support to help your ears - to protect against the ototoxic properties of minocycline.
For some, that passes or improves. Some cannot tolerate minocycline, though, but the most important thing is that
liver support MUST be as good as possible to help protect ears / inner ear / vestibular system from damage. Do not push a harsh detox, though, it needs to be very good steady liver / kidney support.
B6 seems to also help. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- You can read more about minocycline and the inner ear in the Tinnitus thread that is within this set, too:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
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Thanks! I can't tell if it's the mino or the dysautonomia given the extreme heat we have here. I skipped the mino this AM and took two thermatabs (1 more than usual) and am improving.
If it's the mino, it took over a week to kick in so it would make sense if it's a toxicity issue -- perhaps it just took that much time to build up. My herx'es usually come much sooner than this.
I have a message into my LLMD to see if he wants me to try to push through with the mino or switch to Levaquin...
Posts: 1737 | From Virginia | Registered: Aug 2011
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Keebler
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posted
- Uh . . . "switch to Levaquin..." ?
Whoa, Nelly ! Much worse risks involved in that. Please do not even consider that. There have got to be better choices that don't have such high risk.
I've not checked but levaquin could also be on the ototoxic list. (Web search: "Rx name" Bauman, ototoxic)
First, though, and why IMO this drug should never be given unless absolutely life threatening reason and then zero other option:
Fluoroquinolones (Levaquin, Cipro, Gemifloxacin / Factive, etc.) - LINKS set
For a more detailed look into this topic, it's alarming that so many have experienced devastating effects. It's not unusual at all. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- I hate to imply that there is ever a safe way to take Fluoroquinolones. However, if there may be some particular support methods to possibly lessen risk, a naturopathic doctor might best know.
But that would have to come in advance. After the fact, there may be nothing that can reverse damage. Some things may help but no guarantee. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Do you know someone with a rife machine? Might you be able to possibly consider getting one for yourself? Just consider. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
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I am open to rife, but I don't know anyone with a rife machine. how would one go about getting started?
This would all be longer term though... no way I can get it going quickly enough to get rid of the acute cpn infection. for now I am on levaquin.
I could NOT tolerate the dizziness with mino.
Posts: 1737 | From Virginia | Registered: Aug 2011
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