posted
After being treated 10 years ago with IV Rocephin for one full year and orals/bicillin shots for another full year, it's back.
I have had an occurrence of lyme every other year for the last 8 years after my original treatment starting in 2005.
Do any of you out there do maintenance treatment? If so how many antibiotics are you on. I am currently taking four and honestly feel it's too much for my body. I have a lyme literate Dr. and will be speaking with her Monday.
I am having to treat almost every other year for three full months but it's brutal.. I am wondering if taking one or two antibiotics every day would be a better way to manage this disease.
Your thoughts?
Posts: 281 | From san francisco | Registered: Jun 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Are you doing the Burrascano exercise requirement? It is one continuous hour of weightlifting every other day.
This will boost your immune system and is essential to avoid relapses. My lyme doc told me I would NEVER get well if I didn't do this.
The folks I know who haven't been able to get rid of lyme have gone on one week of antibiotics every month. It is simple and keeps lyme away.
Then, at some point, the doc has them stop it.
I know one doctor who requires the patient to take antibiotics one week per month for 2 years. Then, they can stop it.
So, that is what I am familiar with.
Believe me, the weightlifting is amazing. It gets results. Hope it helps you get rid of lyme permanently.
Read about it in Burrascano, including why he thinks this works so well.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I am familiar with Dr. Burrascano's guidelines, even had the chance to meet him at a lyme conference.
For some reason the weightlifting is not familiar to me. I know he was adamant about exercise but I'll have to revisit his guidelines to learn more about the weightlifiting. Thanks for the information..
Posts: 281 | From san francisco | Registered: Jun 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For those with joint or tendon / grip or grasp issues who may not be able to life weights, something like Qi Gong or Tai Chi . . . or gentle Pilates can be very helpful as good non-aerobic movement, each with a variety of major benefits.
posted
Can someone explain the weightlifting? I tried reading the guidelines, but my brain fog was bad and I got confused.
What size weight? Do you switch sides? Just arms? I don't have a gym membership so suggestions would be helpful!
-------------------- *Man did not weave the web of life, he is merely a strand in it. Whatever he does to the earth he does to himself- Chief Seattle, 1854* BullsEye 2005 Dx Lyme, Babesia, Bartonella, EBV Posts: 41 | From New England | Registered: May 2015
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
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I had that same problem of multiple relapses. I could reach remission, but after a few months without treatment, I either got bitten again or relapsed. I could never stay more than 4 months in remission.
I was getting madly desperate, and then my daughter relapsed in winter 2009. She just turned 5 when that happened, and got back to wheel chair. I was desperately looking for solutions, more for her, than for myself, then had the idea to try photon therapy, just because I was desperate.
As we had a waiting time for the treatment (about 4 months), I decided to try the treatment at home. In 5 days, her swollen knees were totally gone, she went back to kindergarten, and when the time of our appointment for the photon treatment came, I cancelled it, as we were both in full remission. In 4 months, both daughter and I were in full lyme remission.
That was in May 2009. Since then, she relapsed twice but her symptoms lasted, each time, ONE DAY. I treated her immediately with photons and homeopathy, like always, and in 2 to 3 treatments (that make in TOTAL 20-30 MINUTES), she was done.
So in a year, she gets less than one day of lyme symptoms, despite MULTIPLE bites, that we still continue to have, every single year. She gets treated then an average of 15 minutes a year... Which is totally fine. Never misses a day in school.
I think I once had a bit of lyme symptoms coming back, but I wonder from which bite, from which year, but I barely notice any symptoms, as I immediately treat with photons again.
Cost of treatment: zero. We bought the machine in 2009 for 1,300 dollars, the nosodes for a couple of dollars, and we STILL use the same stuff when relapses happen.
That is the only thing that worked for us, to keep us in remission. You can do a search here, under Photon Therapy or BIonic 880.
Posts: 6199 | From Brussels | Registered: Oct 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Explanation of the weightlifting requirement:
The following quotes from the Guidelines (pages 31-32) explain the weightlifting requirement:
"The goal is to exercise intermittently, with exercise days separated by days of total rest, including an effort to have plenty of quality sleep."
"The program must evolve into a graded, ultimately strenuous exercise program that consists of a specific regimen of non-aerobic conditioning- see below."
"gym-based exercise program outlined below."
"Use minimal resistance but a lot of repetitions in any exercises prescribed. At the start of the exercise program, especially if the patient is weak, avoid free weights, bands and large exercise balls, and favor machines (especially hydraulics) that can guide limbs through a prescribed arc; free weights, etc. can risk hyperextension and uncontrolled movements that may cause or add to injuries."
"Please work one muscle group at a time"
KEY SENTENCE: "a whole-body exercise program, consisting of light calisthenics and/or resistance training, using light resistance and many repetitions."
"Each session should last one hour. A gentle hour is preferable to a strenuous half-hour. If the patient is unable to continue for the whole hour, then decrease the intensity to allow him/her to do so. 4. Exercise no more often than every other day. The patient may need to start by exercising every 4th or 5th day initially, and as abilities improve, work out more often, but NEVER two days in a row. The nonexercise days should be spent resting."
How it looks in real life:
You go to the gym and use various weight machines, going from machine to machine until you have exercised arms, legs, back, abs, butt, chest.
You may spend 5 minutes on one muscle group, then move to another muscle group, etc. until you have lifted weights for 1 continuous hour.
You use VERY light weights so that you are able to do this for an hour.
I was so extremely weak that at first I could only lift an empty bar twice and do 2 leg lifts.
It took me months to work up to 30 minutes.
My #1 lyme symptom was extreme muscle weakness, so to do this form of exercise seemed impossible to me. I could only stand for 1 minute, hold the phone to my head for 30 seconds, and could not hold my mouth open to have my teeth cleaned.
Still, I persevered until I was able to do it. I credit this weightlifting to my recovery.
At a gym, they will have machines that work various arm muscles, leg muscles, chest, etc. You are going from machine to machine.
I had a weight bench in my basement and it had a bench press and leg lift. I also had free weights for exercising arm muscles.
My husband fashioned some pulleys using some of the weights. This way, I was able to exercise some more upper body muscles.
I also did crunches (abs) and back exercises that did not require weights. These are calisthenics which you will see in the quotes are another form of weightlifting. You could do push-ups, for example, also.
Posts: 9931 | From Maryland | Registered: Dec 2007
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WPinVA
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Member # 33581
posted
I am interested in this too. Also wondering if anyone out there takes herbals for maintenance?
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
Isn't a recurrence inevitable if you don't treat the cysts and intracellular forms of Lyme? I believe that Rocephin and bicillin only treat the cell wall form.
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