phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Any suggestion to help with the horrible fatigue of Chronic Lyme? I am getting non functional due to the fatigue I also have the body aches to the bone, anxiety/depression.
Haven't been on in awhile as I lost my husband to cancer.. I always thought I would go first as he was taking care of me. He was Dx on his birthday and 5 wks later gone. I am simply heartbroken It has been 9 mo and I did okay taking care of him and up until about 3 mo ago, now all the symptoms are back full force.
I do not have a doctor nor can afford one. My GP doesn't know what to do he is saying its grief and depression, that is true but I know my lyme symptoms. I was retested and my test came back negative.. Western Blot..
So any help please. My granddaughter is getting married, its out of town and I so don't want to miss her wedding as my husband was going to give her away,( she lost her Dad)..
Sorry for the rambling..
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I am so very sorry for your loss. Your husband sounds like a wonderful man.
For the fatigue, have you ever tried COQ10 or Researched Nutritionals NT Factor Energy?
Posts: 1737 | From Virginia | Registered: Aug 2011
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
WPinVA, no I haven't but have some will give it a try.. ty
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
posted
Phyl, were you ever diagnosed with Babesia too? That can cause fatigue.
I'm very sorry you lost your husband.
If you wan to private message me I will send you a list of all of my supplements that I believe are helping a lot.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
SacredHeart, I was tested twice through Igenex for Babesia and both negative. Now all test are coming back negative. I am wondering if the fatigue etc is coming from my grieving .. The doc says depression/ grief..but I have little faith in most doctors..
Too, not only did I lose my husband my son-in-law died in March, suddenly, and my 23 yr old granddaughter has been dx with stage 4 cervical cancer.. She has had one surg and the doc thought they got it all but he called and he didn't she goes tomorrow to see what her options are. Needless to say I am a basket case in sooooo many ways..
Thank you and any info about your supplements please PM me..
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I am so very sorry about the loss of your husband. I know that must be so hard to get through. prayers and hugs to you.
on the fatigue... I had linguring tiredness and achy muscles, etc, and felt like I had to plop on sofa all day long- then my dr said it was my adrenals and after taking adrenal stuff it got so much better.
I hope you find relief. there may be a fatigue center nearby? I see there is one near me. maybe you have one to . even if they don't know about lyme or tick disease they might help with getting through the wedding at least.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic