posted
Has anyone been dealt with a weird feeling in front of head which makes it hard to concentrate and makes you feel like you have balance problems.
I had igm p23 present on western blot.
But also did get a ignex and the IGG was positive does this mean i do have Lyme? any input would be appreciated.
I am going to go to a lyme specialist for more testing.
Posts: 5 | From Iowa | Registered: Aug 2015
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posted
Band 23 is a Lyme band. What do you mean by the IgG was positive - which bands? Many feel that even one band that is Lyme-specific is enough.
I think it means you need treatment!
Posts: 13171 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say that you "going to go to a lyme specialist for more testing." Be sure it's really the right KIND of lyme doctor.
[Just looked at your posting history and glad to see that you have posted in "seeking" - hope you get some leads. Also find your area lyme support groups for doctor leads.]
You do not need another lyme test. You should be assessed for other tick borne infections, though.
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.
Very common with lyme, other TBD (tick borne disease) for a variety of reasons.
And, either due to lyme / TBD or on its own, the inner ear / middle ear (vestibular system) is usually also connected.
When the vestibular system is taxed, inflamed, otherwise off kilter, it can be very hard to think, read, walk and even talk. And that can be even without lyme in the picture. Add lyme and it becomes more complex.
Add to that, with certain Rx, the vestibular system is further taxed. This is why it's vital to have liver support on board. It helps the ears, too.
PROBIOTICS are important as candida overgrowth can contribute to trouble thinking, etc.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
How to determine if the Rx, OTC products, chemicals, are ototoxic.
What helps. -
[ 08-07-2015, 07:44 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome to LymeNet. Sorry for why you are here, of course. Yet we all hope you find the information and support you need here so that this need not be more than a detour. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, the way you are feeling is common for a lyme patient.
If you can, try to read the Burrascano Lyme Treatment Guidelines found here:
Look at pages 9-10 which is a list of symptoms. Mark all that you have. This is the most important thing you can take to your lyme doctor appointment besides your positive lyme test.
Read as much of this document as you can. Read a little at a time. It is not an easy read because it was written by the world's top lyme doctor to teach other doctors about lyme disease and the other diseases the ticks give us.
An educated lyme patient has a much better chance of getting cured. If you study this document, you will understand more of what the lyme doctor is talking about, and you will be able to evaluate the treatment you are given.
Don't just sit back and wait for the magic to happen. Those who do that often don't get better. Get involved in your treatment. Learn all you can about the things the patient must do to have a good outcome from treatment.
Do all the things Burrascano says to do and don't do the things he says not to do. This is all very important.
I don't know if you know it or not but there is no standard treatment for lyme disease. A lyme specialist is free to do what he wants. So, some use only herbs, some give very low doses of antibiotics for very long times (5 or more years, etc.), some follow one doctor's protocol or another doctor's protocol, some "do their own thing" (whatever they have discovered that seems to help people) and some follow Burrascano.
For that reason, it pays to understand what protocol a lyme doctor believes in before going to him. This way, you know how your lyme will be treated.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of lyme simultaneously--requires at least 2 different antibiotics to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections the patient has(including babesiosis, bartonella, ehrlichia, mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and exercise as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. If possible, you want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. He was the most successful lyme doctor on the planet. They came from every country in the world to be treated by him.
Good for you for finding Lymenet and asking for a doctor here! We will help you all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes, I had this same feeling. make sure you get treatment that works for you. this will mean some trial and error on your end. stay tough and don't give up! think positive and trust your instincts. come back here and ask often for help if you need it.
best of luck to you
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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posted
The igg was the ignex test was positive but western blot cdc was negative.
Posts: 5 | From Iowa | Registered: Aug 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Since the IgG from Igenex was positive, you have lyme disease.
If either the IgG or IgM is positive, you have lyme. Ignore the CDC criteria as those criteria are not to be used for diagnosis. You can read that on the CDC website and any lyme doctor knows it also.
If you still doubt this, call Igenex. They are very friendly. They will be happy to tell you that you are positive for lyme disease.
Posts: 9931 | From Maryland | Registered: Dec 2007
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