I have been on Dr. J's abx protocol for 2 years. I can withstand high doses of Mepron, Omnicef, Zithromax, Rifabutin, and anything else, but Minocin *kicks me to the curb*.
Just one day of the minocin (100mg, 2x/day) and I have to abort the whole week. Then do coffee enemas every day for a few days.
I have bad babesia, and in the past had anaplasma/erlichia (maybe still have it) and never officially tested positive for lyme. (which doesn't mean anything, of course).
After begging and pleading, and getting my local doctor to intervene, the minocin was reduced from M-F, to MWF.
After more pleading, it was reduced to 50mg 2x/day MWF, instead of 100mg 2x/day. Its still too much, and I have a terrible herx and feel like getting hit by a train (flu, heavy head pressure, debilitating exhaustion, just awful).
Thank You Guys.
Posts: 28 | From US | Registered: Nov 2008
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posted
We can be drug-specific sensitive. I think the trick is to discover what it is we can handle. Btw, mino and doxy are related drugs.
Posts: 13116 | From San Francisco | Registered: May 2006
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Try another drug. I couldn't tolerate many, but Ceftin/cefuroxime was the best drug I could tolerate, and it also worked the best.
Posts: 1954 | From Illinois | Registered: Aug 2007
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Yep, the dizziness was awful for me. Why the insistence that you stay on it? I've had bad reactions to a few meds and there is always another option.
Posts: 1737 | From Virginia | Registered: Aug 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Or maybe its getting something nothing elsewas getting
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I do fine of doxycline, but terrible on mino.
I couldn't get up off the floor, the body heaviness was so bad.
Posts: 2839 | From California | Registered: Jul 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Because minocycline is ototoxic (many Rx are) but in some unique ways, some people just can't do it at all (or for other reasons).
Be sure liver support is full on board to hopefully help protect ears, too (with ANY treatment protocol). Still, for some, minocycline is just not a good fit so another option is needed.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS . . . Ototoxic drugs and what may help -
Posts: 48021 | From Tree House | Registered: Jul 2007
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