posted
I never thought that i would be going through so much all at once.
I am sure many of you know i had a baby while sick with Lyme last year. She was born two months early and besides being under weight and winter colds and flus she has been doing good generally.
She is 15 months old adjusted age and when she was around 8-9 months she stopped eating solids all of sudden.
I didn't think anything of it and just coped with it with just giving her milk and waited to get professional help
She started evaluation a week ago in which there are a lot of red flags for autism.
Flapping hands crossing two fingers no words at all doesn't respond to her name all the time doesn't sit still always on the go doesn't imitate language
Though she babbles all day long. smiles cuddles solves puzzles loves to play hide and seek and play with a ball back and forth.
She for some reason is obsessed with rocks, sand, dirt. Things that she can feel in her hands she loves it.
She is on her way for getting a underlying condition in about two weeks. as time is passing i am becoming weak and helpless because and breaking apart.
I have been enjoying her so much and all of sudden my world is falling apart.
I have not treated her for lyme or any other infection. I went to germany to see doctor W and he tested her with energy testing and she was negative and he made me relax by reassuring that she doesn't have it.
Now where is thing going and where this will end i don't know. I just need some help....some hope some guidance
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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posted
You are close enough to see the brilliant LLMD that I go to. She is in Virginia. If you want her name, please PM me.
Congratulations on your new baby. And I hope that you are taking either prescription antibiotics or following an herbal protocol such as the one described in the book, "Healing Lyme" by Stephen Buhner. With such a wonderful responsibility as a child, you need to keep yourself well.
I think if you google Lyme and ADHD, you'll find something about it because I've seen it. This sounds like, if this is true, it is bad luck, but if your baby has ADHA but it is caused by Lyme
that's good news because once the Lyme is cured or at least, beaten back, then your baby will be cured of ADHD.
Let me know if you want information on my LLMD.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Is she getting vaccines?
At age 2, many kids become autistic (mostly boys though) due to overcharge of vaccines (according to dr. K).
Vaccines create inflammation.
If you look into autism: take a look into brain viruses, then heavy metal (these kids usually are loaded with aluminium, mercury, lead..), they have disturbed detox pathways).
If you think about heavy metals, think about electrosmog: the more heavy metals one has, one becomes an antenna for EMRs.
If I could come back in time, I would never have vaccinated my baby so early. Specially not with combo vaccines. I have no doubt about that today. Mine was not autistic, but had soo many food allergies!
Look, your baby stopped eating food. Mine, was such a fussy eater, until today (she's 11). She still reacts to many foods. ANd when you say allergy of food, read more INFLAMMATION.
Such kids are fighting a lot of inflammation, all over the body (GI tract and brain included). Poor little things.
If I could come back in time, I would just do one vaccine at a time, and ONLY later, after 4 years old.
Vaccines can be so damaging, even for adults. Imagine for a newly born baby...
I think we should be glad ours survived these vaccinations, while other parents had not that same luck.
It's my opinion of course. Dr. K. does not speak openly about vaccines. But I don't think he vaccinated his girl (if one can read between lines). He's not allowed to speak openly about vaccination avoidance.
Posts: 6200 | From Brussels | Registered: Oct 2007
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posted
no more vaccines, treat Lyme, she HAS it, Autism is one of the symptoms of pediatric LD
Posts: 532 | From Texas | Registered: Oct 2004
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posted
Chemical overload. Very scary. I know someone who gets the flapping hands thing. I do believe she has mentioned autism ... but also other things like copper imbalance. Do you have someone who could evaluate her copper levels?
My heart breaks for you .. but I agree, no more vaccines and do what you can to get her detoxed.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Sonee, my heart goes out to you too and I'm a strong believer in the premise that everything can be fixed. There's an article that you can pull up on the web if you type in Scientific American/Mothers can pass Lyme Disease on to their children. I've also read about this in the past in other publications. And when you pull this website up, you'll see that there are other websites about the same subject. I think you should find a pediatric LLMD
and make an appointment for your baby to be tested. If you can't locate a pediatric LLMD, make an appointment with a good LLMD.
I know from personal experience, when a baby stops eating, it's a cry for help from a little person who can't talk. And asking ourselves what could be wrong - putting two and two together.
You carried her with Lyme but couldn't help it - it's what happened. You gave her life - that's the greatest gift. Search the Internet, you'll find that many sources say, it can be transmitted through the placenta. It's logical that she probably has Lyme - but she can be fixed.
You said you are getting weak. Your baby needs an LLMD. Maybe the LLMD could treat both of you.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I think there is a LL pediatrician in no nj
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Sonee, I was not sure if I should post my thoughts/ideas because they may sound far fetched but then I thought what if it could help even in some small way. So here goes.
Please keep in mind these are just what came to my mind and you can keep what you want and disregard the rest. (My background is in Child Psych.)
These are some ideas that came to mind after reading your post. You said; "She for some reason is obsessed with rocks, sand, dirt. Things that she can feel in her hands she loves it."
That brings to my mind a behavior called, PICA. Which could/may then indicate that she is low on iron or zinc.
If she is low in iron or zinc it could also lead her body to pick up other metals to replace what her body needs.
Which then made me think about heavy metal poisoning and/or even Arsenic induced autism.
Then when I read this part of your post again; "She is 15 months old adjusted age and when she was around 8-9 months she stopped eating solids all of sudden.
I didn't think anything of it and just coped with it with just giving her milk and waited to get professional help
She started evaluation a week ago in which there are a lot of red flags for autism.
Flapping hands crossing two fingers no words at all doesn't respond to her name all the time doesn't sit still always on the go doesn't imitate language"
This also makes me think that these Autism like behaviors could/may possibly stem from Heavy Metals/Arsenic poisoning.
This is a description about Lead and children "Young children, less than 6 years old, are a population at high risk for lead poisoning because they are dispro-portionately exposed to environmental contaminants and generally exhibit more severe health effects than adults. This is attributed to age-related behaviors, such as hand-to-mouth activities, PICA, and playing on or near the ground.42,51 Children are commonly exposed to lead through the ingestion of contaminated soil or dust and paint chips from deteriorating lead paint." http://labmed.ascpjournals.org/content/42/12/735.full
Anyway.... just some thoughts. If it were me I would seriously consider getting her tested for heavy metals and arsenic.
Then again, I could be way off but it's an idea. Your in my prayers, Sue
-------------------- Lyme, Bart, Babs D, FL1953 I am just sharing my thoughts and experiences - I'm not a medical professional. Posts: 69 | From Midwest | Registered: Mar 2010
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posted
Thank you everyone for very good suggestions.
I do understand that she may have problems detoxing through her body for all the toxins.
Does anyone know if there is any natural treatments for toddlers that we can use?
Of course i will speak to her pediatrician as well.
It is taking two weeks for the diagnosis because we go to a psychiatric center everyday for few hours for her eating disorder. There she is getting all the tests related to her mental development as well and they will give us a official diagnosis on sept 11.
I do believe that there is definitely something off. She has regressed in matter of weeks. i just haven't seen her so in her own world before.
Thanks
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
My son has ADHD, learning disabilities, seizures and Asperger's (Dx'd in that order).
He didn't talk at all until age 2...then all of a sudden...sentences! It is as if we just had to give his brain "time" to make the neuro connections.
GET GENETIC TESTING DONE! See if there is a MTHFR mutation and/or a CBS (upregulation) problem. Either way = increase in ammonia which will use any available BH4 -> urea cycle at the expense of BH4 used to make/release several neurotransmitters.
There are work-arounds both Rx and supplements that DO HELP - a LOT - though the doses will have to be significantly lowered and will require the help of a very knowledgeable pediatrician - neurologist.
Early intervention by the school system (starts at age 3), really helps - many new approaches!
My niece's son (age 7 now) is autistic too and only will eat French fries and chicken fingers....really picky eater.
There are autistic camps which are wonderful.
Don't despair. Autistic children, while challenging, are so incredible! My son has been a true blessing.
[ 08-29-2015, 12:06 PM: Message edited by: Marnie ]
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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The Na-K-Cl cotransporter (NKCC) is a protein that aids in the active transport of sodium, potassium, and chloride into and out of cells.
(Bb has a Na-K ATPase and if I remember correctly Bb uses NaCl for motility.)
GABA - (brain brake) vs glutamate (brain accelerator). The conversion requires vitamin B6 dependent GAD (2 forms) and we can make antibodies to GAD = glutamate in full swing.
What if the mother of an autistic child had a low level of B6 or other -> too little oxytocin?
Oxytocin is decreased by any negative stress, chronic excess stress, excess corticol, excess water, social isolation, detachment, bad social experiences, fear, anger, and drug and alcohol abuse.
OT = oxytocin
Certain nutrient deficiencies can lead to OT depletion.
The release of OT is promoted by having adequate amounts of the precursor nutrients needed for its formation in the body.
Oxytocin is formed from a sequence of the nutrient precursor amino acids, cysteine-tyrosine-isoleucine-glutamine-asparagine-proline-leucine-glycine-amine.
So we could assume amino acid deficiencies could lead to an oxytocin deficiency.
Since the pyridoxal-5-phosphate (PSP)form of vitamin B6 is also essential for any amino acid functioning in the body, we could assume a P5P deficiency would lead to less OT formation.
The oxytocin receptors require the presence of adequate amounts of magnesium and cholesterol to function properly, so a deficiency of either of these could cause a malfunction.
Oxytocin is produced by a series of enzyme reactions one of which requires Vitamin C as a necessary co-factor so we can assume a vitamin C deficiency could deplete oxytocin.
It has also been found that Vitamin C can directly stimulate OT production.
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