Often, the extra detail can be very helpful. Your story contains a lot of good info, so I'm glad you provided lots of details.

I don't like getting too verbose but I do hope that what I wrote will help others. Main thing I wanted to emphasize is that the end result can be recovery.

I was very fortunate in that when I lived in NJ, my MDs wound up being LLMDs and I was treated aggressively once the diagnosis was made. When I moved to Pennsylvania, I never changed doctors. Just wound up making the hour's ride back to NJ. This was easier as they already knew my history.

Linda

I as headed in this direction but I have taken a turn.....hope it is just a detour....

and here;
http://flash.lymenet.org/ubb/Forum1/HTML/025992.html
"Nestle
Frequent Contributor
Posts: 61
From: Cincinnati, OH, USA
Registered: Mar 2001
posted 24 June 2004 10:59
--------------------------------------------------------------------------------
Tammy,
I have been treated for Lyme for over 10 years. All of my neuro symptoms are gone. In the 10 years I have been on so many different abx but I think my biggest neuro improvement happened when I was on high doses of flagyl and Biaxin for over a year.

Also, my LLMD said that Lyme is tougher to treat if you took steroids in the past. I was also dxed with MS in the beginning and I, too was placed on steroids at the time.

Karen www.wildernetwork.org "

I'm sure there are others too. This was just a quick search.

I would really like to give back to all or any of you that may have questions about the regimen that I felt finally helped me.

I was one of those chronic Lyme cases that was diagnosed SO late (28 years late) that my LLMD put me on IV rocephin for 8 months.

This killed the migraines but it "might" have increased my candida problems. Then, for the next year I was on ceftin, zithromax plaquenil and doryx (not at the same time).

I couldn't stomach biaxin AT ALL and until I got the candida under control through diet and probiotics, I couldn't stomach the zithro.

I think the abx played a huge role in killing the majority of the keets, however, I truly feel that I started turning the corner when I started alternative therapy.

This included joining a program called AIM (which I'm still on...please do a search under my name for "can't hurt&might help" title where I wrote in detail about the program when I began it last year).

The second thing I started using was something called Master's Miracle de-tox products. I took long baths in this ph balancing soap/neutralizer every day. That helped tremendously.

At that point (last October), I was off ALL abx and trying to conquer the horrific candida symptoms. I used diflucan, nystatin, florastore, bifidus but my gut was clearly still in bad shape.

I also struggled with mild headaches, fatigue, tremors and nausea.

My LLMD told me about a product called Primal Defense (made by a company called Garden of Life). I noticed some slow improvement and so invested in some of their other products:

1) fungal defense
2) Perfect Food (green food powder or pills) that equal up to 5-10 servings of the important raw veggies you need to kill the candida
3)living multi-vitamin

On a comical note, I ended up meeting a guy (thru internet dating) and he worked for this company. We were not a match but he brought me a whole box of their products after I told him about my struggles with Lyme and my belief in the products.

Scarily enough, I was more psyched to have all of these free vitamins/supplements than to have a second date!

Anyway, I just want to give hope to the newcomers and people still struggling. There is a light at the end of the tunnel.

I think different protocols work for different people but I want you all to know that I'm living a healthy happy life and it is possible to get this wretched demon out of your bodies!

I'm starting a new job on January 3rd. I exercise 3-5 times a week. I sleep soundly through the night. My obsessive compulsive issues are down to the bare minimum.

The only remaining lingering symptom is an occasional pop in my jaw when I open my mouth really wide. I was fitted for a night guard so, hopefully, that will alleviate that problem.

Do I believe there's some keets still lingering in my body? Absolutely. The difference is, though, they're not having a party. They're sitting in the corner wearing a dunce cap.

If anyone would like to contact me directly with questions, or even just to vent, chat or cry, you can contact me at [email protected].

I want to be strong for all of you the way you were strong for me.

With love & hope,

Susan

Thanks for your post. I am so happy for you.

I have had Lyme undiagnosed (Late Stage) for a long, long time. Typical horror story. I have only been on abx for 4 months and I think I will be a success story. I came here and pleaded for help...never believing I would feel better. Terrible herxing. I was about to end it all every day. I almost did...was obsessed with death.

Yes....I am well.

I started here Sep of 2002....Got a bunch of information and it saved my life.

How can I ever say thank you enough to all of you.

My life, my eyesight, seeing my children grow.....I owe it all to those that helped me, supported me & cheered me on.

Yes, life does go on, yes it can be better, yes build your strength from with in.

God bless to all.