posted
I'm a couple of months in, and I still feel as bad as I did when I started. In fact, nothing has really changed. I don't think I've even herxed yet.
Since my symptoms are mostly joint related (joint popping), fatigue, and muscle twitching, I'm curious what a herx would even feel like?
Posts: 79 | From Austin | Registered: Jun 2015
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I felt a little better starting a few weeks in. Not much though.
Sometimes improvement is so slight that it can be hard to tell. I found it was helpful to chart my symptoms and how much activity I could handle, or to ask my husband if he noticed any improvement.
When improvement is going from feeling really awful to awful, I found it was sometimes hard to notice improvement even when it was there.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
Took me about 18 months to turn the corner on it.
Head up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
It took me about a year and a half, too.
I also charted my symptoms, so I could begin to see even small improvements. That helped my state of mind.
Posts: 2549 | From never never land | Registered: May 2005
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
It took me 18 months, as well, to see improvement. It helps finding the right abx and the correct doses which will speed things along.
Posts: 1954 | From Illinois | Registered: Aug 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It took me about a week to feel I was back to the world of humans. I didn't treat with abx though.
I could be in the sunlight again without fainting, I could even walk a bit. Till one week before starting dr. K's treatment, I couldn't.
From then on, my improvement was slower, with ups and downs.
Later (some months later) I discovered how much binders were important, and that changed a great deal too (I just kept adding binders, until I felt good).
At that point, I didn't even mind to be so sick with lyme. At least, I could even feel good some hours a day, after taking binders. Then binder effect would fade, I feel crap again, I take again more binders, then life was fine.
It is not the infection exactly that makes us feeling crap, but toxins.
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
A herx made me feel really tired. I had to back off of the amount of abx I was taking.
You could even address these symptoms with supplements, like a magnesium type for the muscle twitching.
I take bulk turmeric for my joints - I dip empty 00-size capsules into what I get at the health food store.
And try different things for the fatigue - like malic acid and magnesium, or try flower pollen, etc - you can do a search here for what people try.
Posts: 13116 | From San Francisco | Registered: May 2006
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
7-8 months aggressive IV and oral treatment.
Then I started to turn the corner.
Don't give up. And if something isn't working for you, ask your doc if you can try a different combo of antibacterials.
Sometimes switching it up, well, switches things up.
Good Luck
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
felt like total crap for the first 8 weeks on abx, then I saw a tiny improvement. still improving and one step forward, 5 steps back, haha , after a couple years. ? or is it only one year? I cannot even remember and too tired to look.
I really started to feel more like me this past spring, and then bam- rebitten and here I go again. so I think it was about 2 years to START to feel kinda normal for me. I think.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
OK so I see I registered here in 2013- so it is 2 years.
time flies when you're having fun
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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