me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Hi. I can't find a lot of info regarding Babesiosis. I was just diagnosed with Babesiosis.
Everything on the web says the same thing, but it doesn't give detailed info. Is there usually a major herx reaction?
I have an appt with my doctor next week, so I don't know how he is going to treat me. Apparently my blood smear came back "loud and clear." Is the usual treatment IV antibiotics?
Also, I read on one site that if you have Babesiosis along with Lyme, it can make your Lyme feel 3 times worse. Is this accurate?
Any information would be helpful.
Posts: 1431 | From USA | Registered: Mar 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
The best info is in the Burrascano Guidelines, pages 22-24.
Everything in this document is accurate. Forget what you read on other internet sites unless they are from lyme support groups.
The treatment is certain oral medications, not IV. Mepron, a liquid, is part of the standard treatment. It is extremely expensive--more than $1,000 for a month's supply. So, I hope you have insurance.
Instead of a major herx reaction, you could get weekly flares when you begin treating this disease. Mine were horrible and lasted 48 hours each time. Fortunately, they occurred on Friday night through Sunday night so I didn't miss work because of them.
Posts: 9931 | From Maryland | Registered: Dec 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I think Mepron is generic now so it's much less than $1000.
Good luck
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes, I think all the stuff you can get from ticks can make the others seem worse.
maybe they fight for top rank in side us, I don't know, but what I do know is that if you treat one, another one can feel worse.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
How does Alinia and Coartem compare with Mepron? I took Coartem for two months and noticed nothing. Dr prescribed Alinia and it is such a copay that I don't want to waste if it is not very good.
Me, did you have a positive Igenex for babesia? Mine were not for bart or babesia but something is going on, killing red blood cells and lymphocytes.
Posts: 294 | From southwest mi | Registered: Dec 2012
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
You can get alinia from the manufacturer for free. The doctor needs to sign some paperwork and it gets sent to his office.
Malarone and Mepron together helped me beat it. I couldn't tolerate the other drugs.
Posts: 2839 | From California | Registered: Jul 2012
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Thank you all for the information and support. I truly appreciate all of you.
Posts: 1431 | From USA | Registered: Mar 2015
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posted
Clint31 I haven't had my first LLMD appointment yet. I have only been tested positive for Lyme via western blot. My regular MD will not test me for co-infections. What a joke!
Anyway. Based on some research I have done on the co-infections I am pretty sure that I have Babesia as well. I do get hot flashes and chills.
More specifically I get really high fevers, drenching night sweats, dizziness, chills and shakes at the same time as the drenching sweats. I will also go from chills to hot flashes in a matter of seconds.
I am having many more symptoms too but these are the ones that I think seem to point to Babesia and don't seem to correspond to Lyme.
Posts: 66 | From New York | Registered: Sep 2015
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posted
I had babesia, along with lyme. Treat the lyme first and then babesia. I took Mepron for about 6 months along with Zithromax, if I remember correctly. I also did a round of Cotarem and sent away for it on an international online pharmacy as it was not available back then in the US. I did that after finishing the mepron. I also did Artimisinin while on Mepron, but took it two weeks at a time. There is something about building up resistance and you do not want to take it continuously.
Once you come off all the abx it will take awhile for your body to readjust.
I am in Houston too, but the LLMD I saw was old and is now deceased. The only other dr here is OK. If you see her be sure to know what you want before hand.
Best of luck to you.
Posts: 160 | From somewhere | Registered: May 2010
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posted
I've been doing the Buhner protocol for babesia for six weeks and my associated symptoms have greatly ameliorated. I plan on doing the protocol for five months because that is how long they had me on Mepron, which did not work. I make my own tinctures so it's much less expensive.
Posts: 705 | From WA state | Registered: Jul 2011
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