posted
Does Dr Vincent keep Lyme patients on abxs while doing LDI? Does it hurt or help? I understand the LDI helps balance the immune system and doesn't really kill Lyme. Thanks for the input.
Posts: 315 | From USA | Registered: May 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What is LDI?
Might you mean LDN? Low dose naltrexone is an immune modulator. But that is not a shot or IV as what you ask about sounds like it might be (as you ask about it hurting). LDN is oral.
Most immune support will not address infection. Just be very careful as to the definition of "support" so that is it not suppressing. Be sure it's not a "biologic" or any kind of steroid.
Hope you find your answers. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Oh, with a simple search for:
LDI, Vincent
I see that it's "Low Dose Immunotherapy"
- several links and YouTube videos pop up from that search so you might also find more answers in those - along with those who may reply here.
If you are looking for immune modulation, you might consider a variety of approaches, especially with an ILADS educated LL ND. Medical mushrooms can be splendid and so much easier to tolerate than LDN (don't know about LDI). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
I tried LDN yrs ago, it didn't help me and made my insomnia worse. I will post feedback If I try LDI .
Posts: 315 | From USA | Registered: May 2005
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posted
For a reason i don't entirely remember, Dr V contends that anitbiotics are not compatible with the LDI therapy.
I am on an herbal Lyme treatment and doing LDI, which is apparently acceptable, but i have also had a very comprehensive Lyme treatment previously.
I'm doing the LDI to hopefully address Autoimmune issues that I've been left with.
I am also taking LDN (18 months) which has been a great benefit to me. I had the insomnia but was able to work through it; i'm on a 3mg dose (not traditional 4.5).
LDI and LDN are in fact compatible according to Dr V.
The theory as i understand it at this point, for people who have been treated for Lyme (especially those left with Autoimmune problems), is to calm the immune reaction which will help the system recognize and focus the real problem (the Lyme), or, realize the threat (Lyme) is gone.
Additionally (as i understand it), there is a theory about people who will live (despite treatment) indefinitely with Lyme, who benefit from LDI by helping the body calm down about the reaction, the idea being potentially teaching the body to live with a low level of Lyme (and not freak out).
Not sure what i think about that. Be the first to say, it's kinda weird. But, this is undeniably cutting edge Science and with that we have to accept that the answers are just not clear.
TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Some doctors do permit antibiotic therapy together with LDI therapy -- even though Dr. Ty Vincent does not. I'm guessing that Dr. Vincent's reason for not permitting antibiotics is that he doesn't want the confusion of not being able to discern whether an increase in symptoms is caused by Herxing from the antibiotics or whether it is caused by giving too high a dosage of LDI.
I spoke with the mother of a newly diagnosed late-stage pediatric Lyme patient who is starting antibiotics with an ILADS doctor and who is also starting LDI with an LDI doctor at the same time -- with the knowledge and blessings of the cooperating ILADS doctor.
Their idea is that since the LDI dosage is given only once every 8 weeks, that they will be careful not to make any changes in antibiotic combinations or dosages at the time of the LDI dosage in order to minimize the possibility for confusion in interpretation of what's causing what when it comes to Herxing vs. an immunological response from the LDI treatment.
If it starts to get too complicated or confusing, then they will decide to forego the LDI therapy until after the antibiotic treatments have been completed.
In other words, there does seem to be some degree of flexibility with this decision, depending upon the skill and clinical experience of the treating physician(s).
Posts: 4563 | From TX | Registered: Sep 2002
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