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» LymeNet Flash » Questions and Discussion » Medical Questions » Babesia? Facial, jaw and skull pain? What are YOUR symptoms for babesia?

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Author Topic: Babesia? Facial, jaw and skull pain? What are YOUR symptoms for babesia?
Haley
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I am trying to figure out what I believe to be my final infection. My doctor can look at my labs and tell me that I still have infection, but he doesn't know which one.

I believe it is Babesia or some type of malarial infection.

What are your Babesia symptoms? What has been the most effective treatment for you?

Mine are as follows:

pain and crawling at the crown of my head

facial and jaw pain
headaches

severe cognitive impairment

I do notice getting hot at night (you know what I mean) and rapid heart beat, but don't know if it is considered night sweats. My head gets burning hot.

[ 10-19-2015, 11:06 PM: Message edited by: Haley ]

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LymeNotLymes
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Head pressure
Swimming feeling in head
PVC's (heart skipping)
Night sweats
Frequent BM's (not candida/c-diff, etc)

--------------------
CDC positive for: Lyme & Babesia duncani
Clinical diagnosis of: Bartonella

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Lymetoo
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Feeling like I was on a boat, muscle pain, chills, headaches.

--------------------
--Lymetutu--
Opinions, not medical advice!

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LymeNotLymes
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I forgot extreme, treatment resistant insomnia and spine pain.

--------------------
CDC positive for: Lyme & Babesia duncani
Clinical diagnosis of: Bartonella

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Haley
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So Lymenotlymes... when you treat the Babesia do those symptoms get better? What are you using to treat it? Did you test CDC positive through labcorp or Igenex? Just curious.
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LymeNotLymes
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I tested CDC positive through the Sonoma County Health Department. Igenex used to send blood there for the duncani test

When I treat, I get worse. I'm not sure why, however, because you're not supposed to herx Babesia, just get better.

I've had to stop treatment to focus on healing my gut. I was doing herbs. Duncani is extremely resistant to standard treatment.

--------------------
CDC positive for: Lyme & Babesia duncani
Clinical diagnosis of: Bartonella

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mlg
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It sound like babesia like organism. I did artemisinin high doses with Mepron and zithromax. Then the days I was off art I would do crypto. You could look for my old posts. Antiparasitics and detox support the body. PEMF, infrared sauna, probiotics.
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Bitten in Bergen
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My babesia symptoms were:
anxiety
panic attacks
shortness of breath
extreme fatigue
palpitations
heat intolerance
dizziness upon standing
night sweats

Was on long-term mepron + zithromax, then malarone. Didn't help.

Later went on herbals, detox, and lymph support. Some pulsed artemisinin (in different forms) but also multi-ingredient herbals that were specifically formulated for babesia and its varieties.

Improved so much so that I was able to wean myself off of paxil, which I had been put on 15 years earlier when I first started having my babesia symptoms that were misdiagnosed as anxiety disorder. (The shortness of breath was initially diagnosed as asthma and I was put on 7 different medications including 3 inhalers as well, which did nothing.)

Almost every other babesia symptom is gone. [Smile]

Mild palpitations remain, but I do have mitral valve prolapse, which can cause that. Cardiologist not concerned.

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Haley
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Wow this is all great information.

Thank you.

Mlg I will take a look at your other posts.

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