I have just started treatment with a new LLMD. I was seeing another LLMD but due to him retiring i had to find a new one. With the old doctor i was on minocycline x2 daily at 100mg. On day 4 i felt so out of it to where i couldn't walk in a straight line and felt like i was going to topple over. I also had head pressure that was so bad i ended up going to the ER twice.
My doctor just told me he thought i had a bad herx and to power through. I was concerned about Intracranial Hypertension so i went to a Neuro Ophthalmologist who checked my optic nerves for swelling, but there wasn't any.
She also sent me to a neurologist who told me that i should not take minocycline anymore and it was probably just a bad reaction. I saw my new LLMD and did explain all of this, but he said intracranial hypertension was pretty rare and it probably was just a bad herx and he wanted to try minocycline again at a much lower dose, only 50mg every other day.
I started again and once again the head pressure is back and i'm not sure what to do. Has anyone taken this medication and had this reaction? I am still really concerned i may have intracranial hypertension.
Posts: 4 | From United States | Registered: Oct 2015
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posted
It can definitely make a person dizzy. I don't know why your LLMD won't try a different drug. It's not like minocycline is a huge player in Lyme disease.
- moving to medical questions
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Hope your LLMD has shared all of this with you but just in case they have not:
posted
chan80 - I had a similar reaction to the minocycline, but it wasn't strong enough to make me want to visit a specialist. I was walking sideways for a few days. I felt like those old V8 commercials: https://www.youtube.com/watch?v=XiWFF1cT144
And I also felt the head pressure. The doc told me it was herxing, so I pushed through. I kept taking it twice a day and I haven't had those side effects again. I've been on it for about two months now.
Posts: 2 | From Tallahassee, FL | Registered: Oct 2015
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How long did you have the head pressure for Camellia? Was it constant? Haha. That commercial was funny!
Posts: 4 | From United States | Registered: Oct 2015
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