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» LymeNet Flash » Questions and Discussion » Medical Questions » Confused About Herx Reactions

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Author Topic: Confused About Herx Reactions
AndyR
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Member # 46432

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So I have been on Doxycycline ever since August 17th. I took two weeks of it and had about 2 days of feeling noticeably better. I continued it for another 3 weeks and I went downhill again for awhile but had about 3 days of feeling noticeably better towards the end of those 3 weeks. My LLMD then added on Tinidazole which I've been taking since September 15th. Shortly after starting the Tinidazole I went downhill again and have had some of my worst days yet. I have not bounced back but continue to have bad days. What does this mean exactly?

Am I having continuous herx reactions or one long one?

Posts: 87 | From Massachusetts | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
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You will herx approximately every 3-5 wks .. so you seem to be right on track.

As for the tini .. it can make you feel horrible all the time. Do be cautious about possible side effects. If you begin to have nerve pain, let your doctor know about it ASAP.

I know I always felt like I was herxing every single day.

--------------------
--Lymetutu--
Opinions, not medical advice!

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AndyR
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Well my point is I've felt worse then usual for the past 5 weeks. I have not bounced back ever since starting the tini. I'm starting to question if it's actually doing anything.
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Lymetoo
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It's a rough drug. Many side effects. Might want to discuss how you feel on it with your LLMD.

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--Lymetutu--
Opinions, not medical advice!

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dal123
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What's the dosage? for Lyme it should be at least 400 mg daily. less that that will keep you half alive and feeling badly.
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Keebler
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You might need to adjust your liver support plan.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Hopefully, your doctor has shared all this. Some other Rx also require keeping torso upright for a while after taking, too.

Doxycycline cautions:

1. Even autumn or winter sun, even early morning or late afternoon sun can burn. "Doxy burns" can be very rough.

avoid sunlight on your skin (even "bounced" sun - or through a window) even for weeks after stopping doxycycline if you go onto a different antibiotic.


2. Food with doxy is vital to protect stomach. But no dairy. Do not take with any multi minerals, either. The food minerals will lessen the medicine level and make it not as effective.

A substantial meal, in the middle with some food before and after the doxycycline really matters.

Protect stomach but do not take a PPI - proton pump inhibitor (they have some negative effects). take doxy with a substantial snack or meal - in the middle so you've got some food before and after

Avoiding gluten can help with the stomach, too.

3. keep torso as close to upright as possible for at least 30 minutes after doxycycline taken so as to help protect esophagus from the irritation it can cause if lying down.

Depending upon the angle of the particular chair, the most upright position of a recliner MIGHT be okay if you must rest your head or put your feet up, just don't slink down.

PROTECT EARS / HEARING - when taking certain Rx, the ears need protection. Ear plugs with a hair dryer . . . decibel rated muffs with a blender, vacuum, lawn equipment, etc.

Careful around loud music and best to avoid in the ear pods. There is a link in the Liver Support thread that explains why.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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