posted
I wondered if anyone would think it was worth seeing a neurologist to rule out stuff like MS. I read someone else in a group who believes they are two different things and treating for lyme with MS can cause huge problems and vice versa seems the treatments are boosting the immune system (lyme), vs suppressing it (MS)...but what if you had both? Thoughts? I have tested positive for lyme on igenex
Posts: 53 | From Texas | Registered: Apr 2015
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posted
It could be dangerous to treat for "MS" if you really have Lyme. It may cause you to never be able to recover from the Lyme.
Treating for Lyme first will most likely fix the "MS." MS is a diagnosis of exclusion. There is no definitive test for it.
If I'm not mistaken, every single ALS patient who has been tested for Lyme has been found to have it. My thinking is that the same would be true for MS .. given that the testing was from a reliable lab and the results interpreted by a doctor who actually knows something about Lyme.
PS .. Neurologists are terrible at finding Lyme. For one thing, they think one must do a spinal tap and if it's negative, then everything is fine.
Nothing could be further from the truth. The spinal tap is about 20% accurate at finding Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Thanks for the response. Would this not be true then in treating for lyme when you also have mS if the two are in fact different things? Or if you had both. It is all confusing i guess. I think igenex testing is pretty reliable though? I am about to start lyme treatment and i have never been checked for MS, so i guess i get anxious thinking what if i have MS and lyme treatment actually makes me worse.
Posts: 53 | From Texas | Registered: Apr 2015
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Keebler
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Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
You might want to also take a look at http://cpnhelp.org/ There are a lot of MS patients on there. They are focused on eliminating the Chlamydia Pneumonia bacteria rather than Borrelia but some have reversed their diagnosed "MS" by taking antibiotics long-term. However their antibiotic protocol would probably kill other pathogenic bacteria like Borrelia too. It's likely most of these neurodegenerative conditions have some infectious component.
Posts: 131 | From CO | Registered: Jul 2015
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