posted
Do you have an appt with an LLMD? Sometimes it seems darkest before things start to turn around. Many of us went years and years without knowing what we were dealing with. It takes a lot of hanging on - that's the work - hanging on through the symptoms to get somewhere eventually.
Your image is very strong here - impressive image, actually, re a python - maybe there could be another image you could generate to help get you through till you get some more physical assistance?
I actually did that process in art therapy sessions at a pain rehab place once - no one had any idea why I was there, including myself! I loved the art therapy sessions. They had paints, crayons, etc, and we got to express how we were feeling on large sheets of butcher paper.
I remember painting black for quite a while, then other strong colors of protest. I got that out of my system.
Then I asked myself, what is my image of myself if I am not painting black and angry red and those strong expressions?
And I came up with a bird of many colors, as my name is Robin - lots of colors for all the vibrant interests I had, and its head was down, with its eyes closed.
It was about three feet long and I hung it up on the closet door in my room. Someone saw it and said to me, "Some day that bird will fly again."
And it did. That was 1993, at a rehab place. I found out in 2006 that I had Lyme.
At least you know what you've got, or hopefully you know - maybe that too will be part of the process. But you are further along than I was, for knowing at least which ball park you're playing in, so to speak.
So I advise you to hang on, like my bird did, and find your way, whether that means ER IV nutritional feeding if you have wasting, or least testing anything to see if anything else is causing the wasting -
other things could, and it's important to find out what you're dealing with so you can deal with it better. I'd say you're in a diagnostic phase, with need to feed your body during this time.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
A plasminogen deficiency is possible.
Some strains of Bb have a *receptor* for plasminogen (OspC type A) which it uses for its own benefit.
OspC = outer surface protein, C. This is what Bb expresses when leaving the tick and this is the protein that binds to other proteins in the tick's saliva to selectively inhibit our immune response - buying Bb time to invade.
OspC is DOWNREGULATED when Bb is hanging out
in the tick's stomach
awaiting a blood meal.
It is also downregulated by a pH level of 8.0.
(Very alkaline water.)
"The Lyme disease spirochete expresses several plasminogen-binding proteins.
Bound plasminogen is converted to the serine protease plasmin and thereby may
facilitate the bacterium's dissemination
throughout the host by degrading extracellular matrix."
Plasminogen deficient mice have reduced body weight compared to age and sex-matched wild-type animals.
This difference is not only observed at later stages of life when the
***plasminogen-deficient mice develop a wasting syndrome,***
but is observed during the growth phase in the animals and is due to a reduced rate of adipose tissue and whole body fat accumulation.
The pro and the con...
Pro...less plasminogen = less Bb dissemination.
Con...Plasminogen deficiency that runs in families appears to be an uncommon but recognized cause of an inherited clotting disease.
Your blood level of plasminogen can be measured.
But...sorry, but I must remind you of something you already know...a sudden and significant weight loss is one sign of cancer.
OspC type A is a plasminogen RECEPTOR.
"The present review focuses on the importance of plasminogen receptors in activation of the plasminogen system, which plays a key role in cancer progression and metastasis.
Thus, blocking plasminogen receptors may be a promising strategy to counteract invasion and metastasis."
Persons exposed to Bb that has OspC type A (plasminogen receptor) have a very strong inflammatory response.
And ongoing inflammation is strongly linked to cancer.
If plasminogen levels drop, there is no plasminogen to lock onto its receptor, right?
Mono...oh, yea...Bb looks to trigger latent EBV and also possibly CMV to reactivate!
In the following link...scroll down to risk factors - see EBV?!
AP-1, and enhances cell motility via ets-1 activation.
LMP-1 also induces vascular endothelial growth factor
through cyclooxygenase-2 activation and interleukin-8
through NF-κB activation.
You may need to be tested for CMV also. Different antiviral is used in addition.
EBV and CMV can indeed both reactivate and both are "common" normally latent viruses in humans.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
| IP: Logged |
lymeboy
Unregistered
posted
2 years back, I had Pneumonia. I got it again about 3 months later. Since then, I have had swollen lymph nodes. My EBV levels were way up, as they are now. I don't know if they have really gone down at all. I do know that EBV is a cause of Lymphoma.
Right now I can't even get my insurance co to approve the screens that the Hematologist ordered. I am highly overwhelmed to say the least.
IP: Logged |
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Periactin (for weight gain) maybe beneficial/helpful for those who have low MAOA levels and thus
***already high levels of serotonin***.
(Oddly...PTSD persons also have low levels of MAOA.)
Low levels of MAOA (which breaks down serotonin, norepinephrine and dopamine) = high levels of those.
MAOA R297R (Risk Allele: T)
Slower breakdown of Serotonin.
Can lead to high/low cycling of neurotransmitter.
***This enzyme requires B2 (riboflavin) in sufficient levels to function normally.***
Mutations are associated with mood swings, aggressive behavior, depression, anxiety, OCD
and intolerance of methylfolate (which increases neurotransmitters that can't be broken down by MAO A,causing feelings of overstimulation).
ACE deletions will also increase anxiety and lower frustration thresholds. Because this is on the X chromosome, males will have only one allele.
A better choice other than B2 by itself is Now (Brand name) P5P (active B6) that also contains B2 and Mg and Ca. it is not expensive.
If possible...try this very beneficial probiotics:
posted
Okay Marnie well I have to admit that I don't agree with the whole Prozac thing, but I do have low MAOA (TT) as well as the ACE deletions. So I find your above post interesting.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic