Topic: This site needs some help and needs cleaning up.
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
quote:Originally posted by LymeNotLymes:
quote:Originally posted by prconn: Catgirl,
I understand that powerlines,cell phones, landlines and wi-fi emit electrical waves. We are electrical beings and emit our own waves. Research has proven it all to be true and fact based.
I just don't understand what your position is. We live in a world that is polluted by things that are much more dangerous and savage than electrical waves.
Let's bring this back to finding a cure and help for people with LYME! Lyme and other diseases have been around since the beginning of time and human existence.
Every aspect of being diagnosed,treated and hopefully finding a cure for Lyme need electricity,landlines,cell phones,computers and wi-fi. Without these tools we will never find a cure.
Thus I am still confused how this is related specifically to Lyme. These same conditions exist for every human disease and are not just specific to Lyme.
Just seems like a dog chasing it's tail.
I could not agree more. Of course the last time I agreed with someone my post was deleted. Yes, lots of things make Lyme worse. They make everything worse. Still, the main problem is Lyme and it's coinfections.
So we should not do what we can, avoid what we can, to manage symptoms so we can manage to earn enough money to pay for lyme treatment ... that's it, just get lyme treatment that works on lyme, do nothing else at all supportive or ancillary ??? ??? ??? ???? ???????????????????????????????????????????????????????? ?????????????????????????????????????
Posts: 1927 | From se usa | Registered: Mar 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
quote:Originally posted by koo: OP, I understand what you are trying to say. I think there is a fine line between having an opinion and being opinionated on this board.
I would hope we could also agree that there are no absolutes when dealing with lyme and they shouldn't be expressed as such...."you will never get better if....".
Lymetoo, you are correct...discernment is in order. I think desperate people do desperate things and try all ideas floated out there.
I have a friend who was cured, yes, cured, of late stage lyme with nothing other than ABX and some initial supplements . She probably doesn't know what a heavy metal is, didn't pull out mercury fillings, and is not gluten free. She is around 15 years out from treatment, parties hard in her fifties, had a husband go through cancer, and never recurred.
Great for her! And then obviously not everyone is so fortunate.
Posts: 1927 | From se usa | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Michael,
Hear you very clearly, down to the exasperation in every punctuation mark and wide eyes that surely go along with this. Well expressed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I agree with you, Michael. For many, there is more to the illness, or at least to what is keeping us ill, than infection(s).
Why reduce something complex to abc? In any case, a forum like this is here to exchange opinions and experiences; not to provide cut-and-dried, one-fits-all medical solutions.
Posts: 1647 | From UK | Registered: Nov 2008
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posted
Free speech and the free marketplace of ideas---- is positive, helpful and important to our nation--- and especially to the Lyme disease community. Many ideas that were considered "out there" 10 years ago are helping people recover today.
Why "clean up" these "threatening" ideas?
Today's "Offense Free Comfort Zones" are diametrically opposed to our sacred and valuable concept of free speech.
"Offense Free Comfort Zones" are being pushed heavily in the media and on college campuses today--- much to ALL of our disadvantage!!
We need a rich marketplace of ideas in America--- and in the Lyme community--- and this is very healthy.
"Cleaning up" forums that make a couple of people uncomfortable is a very unhealthy way to find a cure--- and there is almost certainly some sort of agenda behind those who would try to force people to be quiet by pulling out the "cleaning up" meme.
Topics like mHBOT, EMFs and also "Controlled Opposition" may ultimately help us find a cure. Why?
Because, for example, understanding an important concept like "Controlled Opposition" helps Lyme victims to be extra careful about WHICH Lyme organizations that they contribute money to.
If we all contributed to only those organizations that are PROVEN to support non-denialist research and education, we might eventually find a cure. Handing money to organizations that support Chronic Lyme denialists will probably never help us find a cure-- even if 90% of the work seems decent. And it enables and empowers Chronic Lyme denialists.
Censorship of ideas is very unhealthy-- it is a feature of totalitarian nations like the former Soviet Union--- and it is essentially un American.
Posts: 696 | From New York | Registered: Aug 2006
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Agreed, WakeUp!
In addition, it would be helpful on this site if we were able to discuss both negative and positive experiences we have had with LLMD's, in a respectful way.
In my opinion, this information is invaluable in helping others make more informed decisions and avoid possible costly mistakes that may be deleterious to their condition.
Doctors are often vehemently defended here JUST because they have an LLMD label. An LLMD label doesn't necessarily guarantee anything about that doctor's motives, ability or success in treating patients. I learned this the hard way...why should others have to?
Although it is allowable to discuss (and even "trash") non-LLMD's, this subject appears to be taboo on this site, as I have personally had several posts that I felt were helpful to others censored by deletion, no matter how respectfully worded.
Lyme Net is a very helpful site in many ways, but to truly be a non-biased source of information this policy needs to change...
Posts: 2083 | From Earth | Registered: Jul 2013
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I can't believe what I read here today. I read it with a smile.
More and more people are now speaking out what no one was, in the past, here in lymenet.
In the past, there were God-like LLMDs and God-like protocols, and people DID believe on these FIXED practitioners and protocols.
With experience, years gone, failures, and experience exchanges, we see that there is no clear cut answer for anyone.
When I finally started getting out of lyme, I was SCREAMING to you all: I don't know how you guys can come out of lyme in a reasonable amount of time without energy test.
Of course I was bashed, and still am. But I only tell you what I think saved my life, my daughter's life.
Only going to do ART and muscle test once a month helped people out IN THE PAST, but in my case, I needed energy tests DAILY!!!
I swear I wouldn't be here alive, and not at all cured (even the word cured is bashed here) had I not learned energy testing. Dr. K is bashed for that, many people are.
But the reality (my reality at least) is that out of the box methods, techniques, can help many of us out of deep hell.
Had I not my energy testing, I wouldn't have found my own specific babesia protocol, bartonella protocol, and all binders, all anti viruses, all symptom relief acupuncture points, etc etc.
Posts: 6200 | From Brussels | Registered: Oct 2007
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Although I realize it comes with the disease, it saddens me sometimes that there is such depression of spirit, pessimism, and disbelief in a cure in Lymeworld...that the methods utilized by those of us who ARE cured are so often immediately rejected and dismissed by the majority...
If it has happened, it is possible!
Posts: 2083 | From Earth | Registered: Jul 2013
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
quote:Originally posted by Keebler: p. 342 tells how Ben Luft, infectious disease specialist and Daniel Dykhuizen, evolutionary biologist, working together at Stony Brook went out into the field collecting ticks and analyzing Borrelia.
A few years later, they had a graduate student travel the Eastern seaboard as far north as New Hampshire and south through the Carolinas collecting ticks infected with B. burgdorferi spirochetes.
p.343 “The Borrelia were duly isolated and compared for differences in their genes.
Eventually the researchers focused on twenty strains, each with a different version of the changeable OspC. Working with those twenty strains, Luft learned that six didn’t infect humans and ten caused only a rash.
Only four of the twenty could leave the skin to invade other tissue like the heart and joints or the brain.
The most virulent of the strains turned out to be the prototypical B31, the version of B. burgdorferi … ultimately isolated by Burgdorfer and Barbour at the Rocky Mountain labs in 1981.
The implications are profound.
It's not a surprise...., but, OMG, The implications ARE profound!!!
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
LLMDs are not discussed here because the board owners want this to be a board about support from other patients. It is a forum for members, it is not inhibiting free speech as you are welcome to use more public forums to voice your opinions on LLMDs, just not here. We keep a positive environment so people feel supported and get their questions answered. There are other venues for other needs.
If you have complaints about what is allowed on the board, voicing them on the board doesn't get your complaints to the right people. You would need to contact the board owners, but they are not going to change their mind. The moderators do not make the rules.
Part of the reason we don't allow negative discussions about LLMDs is that only half the story will be heard .... the LLMDs are not going to be coming on here to defend themselves. Plus, we all know, only the negative stories will be voiced here, so they'll all look bad. And any person in business has negative stories from some unsatisfied person. None of us are perfect. That negative atmosphere is not what we want here.
Also, we don't give people parameters on what they discuss. If you find it irrelevant, just scroll on by.
I'm moving this to general support since it's not a medical question.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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