The lower back pain and the pulsing vibrations are back, accompanied by much weakness, lethargy and difficulty walking
i notice those migrating pains, my limbs can feel numb from time to time, not sleeping that well, and sweats, but not bad like when they were drenching
i feel out of breath, and of course i'm depressed
i'm just waiting for the day when i can't get out of bed or out of my chair
i did take anti parasitics meds after a recent trip to Cuba, (i really wasn't feeling that well when i left the US) - amoeba histolyca was diagnosed when i got back but i think my stomach/gi system are back to normal, actually better than normal, and i was tested again and the results were negative
i know i have herniated discs but i really don't think i can take much more of this hesitancy walking and fatigue and feeling like i'm not going to be able to put one foot in front of the other
i was on BP med but stopped because i had this idea that like the cholesterol drugs i stopped this one was causing more back pain - i can't take statins - the pain is even worse
so the only thing i'm taking is probiotics
i had an appt with a neurologist but after making me wait an hour and a half, i walked out of his office
posted
Have you thought about medical marijuana? Legal here in CT, I've been getting about a 50% reduction in pain taking CBD oil capsules. I also have THC vapes, but I don't like the marijuana high. Ain't cheap.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
Rushing to infectious disease guy for a checkup bec had awful night He didn't check for Brucella not realizing I have been in Middle East - not recent but one been sick for years
Also checking for parasites again
And I'm going to look into med Mary Jane
Posts: 277 | From NY | Registered: Jun 2005
| IP: Logged |
quote:Originally posted by DanP: Thank you for the suggestion
Rushing to infectious disease guy for a checkup bec had awful night He didn't check for Brucella not realizing I have been in Middle East - not recent but one been sick for years
Also checking for parasites again
And I'm going to look into med Mary Jane
Myself, I've been aggressively treating for Lyme for over 7 years. Never treated for Bartonella until last year, cuz we weren't sure I had it. Now it's clear I've had it all along, and failure to treat Bart has resulted in many symptoms worsening over the years. Now on heavy-duty Bart protocol - Rifampin 1200mg/day and ceftin, and tinadazole.
Bart lesions were striking: long linear streaks which oozed blood like a knife wound. Also painful soles of feet.
I don't know much about brucella. Is it similar to Bart?
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
posted
interesting - the tropical disease guy I see in NYC is nearing the end of this career...he says when he started there were 30 md's in nyc doing what he does, which is take a sample of stool from you in his office and culture it and give you the results the next day!
He says that GI md's make more money on colonoscopies but the prob with that is the stuff they give you to drink flushes out the amoebae so their tests usually come back negative even when the patient is positive
so glad I found this guy but what am I going to do when he's retired?
and this isn't good news for sick people who have amoebae and have their regular GI guys test when they do a colonoscopy
Posts: 277 | From NY | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic