posted
Hi all, Im new to this forum, and lyme disease (if it is lyme disease that's making me sick).
late last summer I began having occasional heart palpitations and outbursts of rage, and pain in my feet, but I didn't think too much of it.
Heart palpitations got worse and i developed new anxieties (flying on planes, being in boats, driving over large bridges) still didn't think much of it.
When I went home for thanksgiving my family said I looked like crap, and after they mentioned it i realized that i had felt sort of crappy all fall, like i had a low grade flu or something. meanwhile my heart palpitations continued to get worse.
In early december I had a very strange illness for about 4 days. my symptoms were racing heart/palpitations/chest pain, arthritis in feet, hands, knees, elbows, severe brain fog and anxiety, and muscle weakness.
Since then i've only felt normal for one day. I've had new symptoms that come and go. I did some research and it seemed like all of this fit the bill for lyme disease, and the fact that i am a farmer in coastal maine, also fueled my suspicions.
Anyhow, i tested neg on an elisa, but from what i read, that doesnt mean anything. I had a holter monitor on for two days and am following up with the cardiologist on wednesday. I've been to the ER twice and they said all the blood tests and x rays were normal.
I have heard great things about the Vitamin c and salt protocol, and I want to start doing this, since i dont have an appointment with an LLMD for another month and a half.
My question to all of you is this: Will the Herxheimer reaction from vit c/salt affect my heart enough to kill me? My heart issues have been scaring the crap out of me, and I would begin taking things into my own hands except for the fact that i don't want to die from heart stopping.
Thanks for reading, Tom
.............................................
(breaking up the post for easier reading for many here)
[ 01-18-2016, 05:53 PM: Message edited by: Robin123 ]
Posts: 3 | From Maine | Registered: Jan 2016
| IP: Logged |
posted
Hi Tom - yes, these symptoms sound like Lyme disease, as well as a co-infection called bartonella - google for symptoms of that one too.
You've come to the right place! Many experienced patients here who can give you some feedback.
My immediate feedback would be that there are other treatment to pursue, like antibiotics, I think, first of all, plus others.
People don't always do well with salt/C so I don't think it should be a 1st line of defense. Others will be along to respond to your question re mixing heart symptoms and salt/C.
Good to read that you have an upcoming appt with an LLMD! They should also do blood tests to see your body's chemistry.
Treatment for Lyme falls in three areas - kill/deter the organisms, detox, and fortify the body.
You can read through the Burrascano guidelines at the top of Medical Questions. You can also use the Search function at the top of the page to type in any word or phrase and archived posts will come up that you can read through.
Just know we're all different and respond differently to treatments. The trick is to find what each of us responds to. During this waiting period before seeing the doctor, you can study up on Lyme, and I think you're showing symptoms of bartonella as well.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
You mentioned in your post that you have an appointment with a LLMD in a month and a half. You should call to see if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Because of the heart issues you might want to see an LLMD. Below is salt/c info and also Buhner's book on herbs for lyme. That said, treating parasites has greatly improved my heart issues, but I have an LLMD.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Buy Buhner's book as Catgirl suggest. He has great suggestions for lyme treatment, and they are usually not too costly, if you buy herbs in bulk.
You can take Vit C. Buhner suggests something called C-salts, which are easy to take, cheap and good. Vit C is a good start for antioxidation.
Linus Pauling was taking 20 grams a day of Vit C!!! He lived very long.
Since I started treating lyme, my heart issues faded pretty fast. Cardiologist never believed in lyme, never found anything wrong with my heart, on the contrary: he thought I was great.
I wasn't! Buhner's herbs were already a great help, really.
Posts: 6200 | From Brussels | Registered: Oct 2007
| IP: Logged |
posted
Funny you say that because I was just at the cardiologist today and they said nothing was wrong with me!! But obviously there is something wrong with me.
That is good to hear that your heart issues went away fast after starting treatment. Hopefully that is the case with me because my heart problems are definitely scaring me the most out of all of my syptoms
Thanks all for your responses. I guess I'll hold off on the salt C as I was finally able to get an appointment with an LLMD that wasn't 3 months away, just 2 weeks away.
Posts: 3 | From Maine | Registered: Jan 2016
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Pigman, I forgot to add that I had chest pain, palps and saw a cardio too who found nothing and told me I was over lyme with my first round of abx (clueless).
I also tried salt/c and I felt better. It was really good for my adrenals. The only way people know is to try it. Now would be a good time for those who want to as parasites are particularly active before the full moon (during and a few days after).
I've been treating parasites for a while now and chest pain is gone. You might check out the PARASITE WARRIORS THREAD too.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Pigman really sounds like LD and what I go through. You should not wait two weeks before starting some kind of antibiotic like Doxycycline. Its already affecting your vagus nerve I believe.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
You may wait 3 months, or just start informing yourself.
LLMD won't have all the answers anyway. They are just human beings.
Salt and C gave me the worst tinnitus ever. It was because I didn't know about BINDERS when I just started Salt C out of desperation (waiting for appointments too).
If I were you, I would take binders like chlorella, clay, just to ease herxheimer reactions .
Be careful with blood pressure, keep measuring, as salt C can influence blood pressure if you continue on it. People taking salt C say that only bad salts cause high blood pressure: it is not true.
I could take salt initially, but later it did increase my blood pressure (I was taking himalayan salt). Intake of normal amount of himalayan salt daily for more than a decade does NOTHING to my blood pressure.
But EXTRA salt needed for salt C protocol caused that increase. The lyme doc I followed said that Salt C is good, if it doesn't increase blood pressure (but it won't cure lyme, in most of the cases....).
Anyway, these are only tips from those who have been in your shoes long ago (I did salt and C in 2005!).
buying a cheap book like any Buhner's book can be of GREAT help, much more than going see a lyme literate doctor alone (because anyway the doctor has only limited knowledge too)
Posts: 6200 | From Brussels | Registered: Oct 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic