Ocean
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Member # 3496
posted
It's that wired, anxious feeling like you can't sit down. You can't really think any regular thoughts, can't calm yourself down, can't carry on a conversation because your body is just on this high that feels like caffeine has been injected into your veins. What do you do for it?
My first appointment with an LLMD back in 2008, I paced in his office the entire time. I apologized and I was pretty sure he thought I was nuts but I could not sit. The past several days I see things running by my peripheral vision that are not there. Friday I smelled odors that weren't there, yesterday I was slurring words, and felt slow but the nice thing my anxiety was gone because it was like my whole body had slowed waaaay down.
After this many years it seems like this shouldn't bother me so much anymore. But it does. I realize I am probably in a herx, low grade fever for two days and increase in symptoms, but the wired feeling I cannot stand. I'm generally a very calm, mellow person and this feeling doesn't jive with my personality.
What do you do for the wired feeling? I am afraid of making it worse. It isn't my heart, my pulse is in the 60's.
posted
Cat's Claw fixed me. I couldn't stay still and paced the floor wherever I was. I used to use NOW brand because some of their Cats Claw is concentrated. Now I buy the powdered form in bulk and make my own capsules using a device called Cap-M-Quick. I like herbs because the power is in your own hands to fix yourself.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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posted
I forgot to tell you in case you haven't taken herbs before. It takes about a week for them to kick in.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
I should get tested for copper, I have seen before that it can cause this feeling. although my two previous remissions of treating lyme made the wired feeling go away. I'm doing laser treatment, apple cider vinegar for biofilms, fresh garlic, and just added barley grass powder. within the last two weeks I was doing turmeric and olive leaf extract too. The wired thing went away yesterday after a few hours and is better today.
I do need to work on the binders.
Tulips, did you have any issues with cat's claw? I read of at least one account of tachycardia. I am hesitant if it affects my heart as I have had many episodes of SVT since getting lyme and co. My heart was recorded at 250 bpm, the longest it has lasted is 15 minutes and I worry if something sets it off and lasts a long time, I will have to go in to ER be cardio converted. Which can be fatal. Rare, but possible.
I do have samento, maybe I could try one drop.
Thanks for all of your suggestions. I tested negative for bart, but who knows...I might have it!
posted
Hi, I don't personally have any issues with Cats Claw. The first time the pacing and agitation happened to me, I went to an LLMD who put me on Minocycline and after a couple of weeks, added Flagyl and later, other abx and that fixed all of my Lyme
symptoms - like magic but after finishing treatment, Several months later, I relapsed. Lyme can do so many things to a person. It would be really good if you could find a good LLMD. I found a good one through the local Lyme Group. Going to
their meetings gives you a chance to see what the group thinks you should do. Do you have a Lyme group that you could go to?
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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I'm half crazy and I don't even know if I've got Lyme but the shoe fits, so I'm going to wear it. You are describing me up there,
I don't know if I want to live this way, if there's nothing better than going through this for the rest of my life. I sware to Gawd, I'm going to sue the **** out of every doctor who has treated me over the past two years and never mentioned Lyme, I didn't even know Lyme existed until last week.
Posts: 27 | From Nor Cal | Registered: Jan 2016
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posted
Ocean, in addition to Cat's Claw I've also found Scullcap to be very helpful. I'll note that I've had heart issues in the past but did not have any problems taking the herbs.
SwissPiggy, I feel ya! Must have seen over 12 doctors and even though I had classic symptoms of Lyme, I was never tested and had no clue about Lyme Disease. When I eventually was tested (along with a slew of other tests), the doctor was surprised "because I hadn't been the East Coast recently"... #*@! After many frustrating visits I finally sought out a good LLMD.
Posts: 114 | From California | Registered: Jan 2016
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posted
Swiss Piggy, if you feel like you are half crazy, I know what you are going through. Within the first week of infection (I've read) the spirochetes begin to invade the brain. Cats Claw kills them dead. Cats Claw is also a cyst buster so it gets them in cyst form too. If you don't remember the bite or didn't get the bulls eye rash, you need to be diagnosed clinically in order to
receive abx. Maybe your local Lyme group can give you the name of a good LLMD. Or you can go the herbal route with Stephen Buhner's books. Burrascano has a good checklist for Lyme. Also Schaller has a good book of checklists for Lyme, Bart and Babs.
Ocean, Dr S's list of Lyme symptoms lists a lot of heart problems on p. 114 of his book, "Checklists for Bartonella, Babesia and Lyme Disease" 2012 edition.
**edited name of LLMD**
[ 02-02-2016, 02:36 PM: Message edited by: Lymetoo ]
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Thank you! I will look into Scullcap as well. I had one episode of SVT after taking a supplement in 2007. I did not know yet I had SVT except it felt like a machine was in my heart pushing it hard. So every new supplement I tend to worry.
Tulips, right now I am not employed and my ex husband stopped paying child support (illegally and they will make him pay eventually), I have 100% custody of our three kids as he is not a safe person. So I have no money to see an LLMD. I had a stash of money from selling my home but nothing left now. I am an RN, but my brain is too screwy to work and usually I am up from 2-5 every night which makes my brain even worse/foggy.
SwissPiggy, I'm sorry you are on this rollarcoaster. I hope you can find an LLMD soon.Thanks all for your help!
posted
Ocean, if you can't afford an LLMD, maybe you should try a very small dose of something like Cats Claw. When trying a new herb, I empty all but 1/4 of the herb out of the capsule the first day and increase it each day. I take 3 Cats Claw capsules in the morning and 2 at night.
When I take Samento I take 30 drops (have worked up to that) and add 10 drops of Banderol into it. I add it to about 2 oz of water and 1/2 tsp white grape juice or purple grape juice. It makes it palatable.
Dr. S's checklist is in the Internet and you can pull it up and read the whole thing. I added it to my computer and by using the Control - find option, I can search the document for symptoms. It is extremely well researched. There are many, many book references.
In view of your heart issues, I know you'll want to be careful. If you look at the Lyme symptoms ( in the back of th book) I think you might find a lot of your symptoms. Cats Claw hits Lyme but, in my experience, not the coinfections. You have to use different herbs for them.
**edited name of LLMD**
[ 02-02-2016, 02:35 PM: Message edited by: Lymetoo ]
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Bartonella. It felt like my body was a tuning fork with the vibrating, caffeinated, awful feeling. They finally pumped me with enough valium to put me out. It's Bart. It will go away eventually. Have you ever taken any benzodiazepines? They can have an awful rebound effect When they wear off.
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