posted
With my friend, taking so many supplements, and it seems that she is herxing all the time, how would I really know if she is herxing or poisoned by some of the stuff she is taking?
I am so scared for her.
Posts: 50 | From KY | Registered: Jan 2016
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TNT
Frequent Contributor (1K+ posts)
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posted
There are plenty of stories about pharma drugs even killing people. Supplements are almost never toxic, and I know of no case where they harmed or killed someone.
I don't think it is anything she is taking that is causing this, but please be aware of interactions between drugs particularly. Drugs.com has an interactions checker at the top of the page where you enter each drug and see if there are any adverse interactions. I've used this many times and it is pretty reliable.
From reading your other thread, I honestly think she is getting worse because of the infections. She is probably not addressing one. But, I would have to know what she is taking and what infections she has tested positive for to give a better opinion about this.
It is necessary at times to briefly stop all treatment to see what happens. If overload (and toxicity), symptoms will probably improve. If things worsen, it could be because infections are not being addressed and were not being addressed properly before stopping treatment.
I hope this all makes sense, and is helpful. I am speaking from my own experience over the past 7 years of fighting these infections.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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posted
If I get a copy of her lab results, and a list of all she is taking will that help? I could send it privately minus the names. Trying to do this right, but not sure what is ok. Could you tell me what Dr helped you and where? I am willing to drive her or fly with her where ever to get help.
Posts: 50 | From KY | Registered: Jan 2016
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TNT
Frequent Contributor (1K+ posts)
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posted
Anything you can post here anonymously will get very good feedback from us. Most of us are by necessity "pros" at this. The collective wisdom here is incredible!
It looks like you got some help with referrals on one of your other threads.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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Catgirl
Frequent Contributor (5K+ posts)
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posted
AngieGigi, I wouldn't worry about all her supplements. Most of us herx and it's not easy but that's a good thing. It means she's killing the bacteria.
I take tons of supplements and I'm fairly sensitive. They are not the issue, it's killing bugs/bacteria. It's a good thing.
Lyme patients typically get worse before they get better because of the die off. The die off is what causes the herx. I can tell you that for me a herx feels like I'm being poisoned, so I have to detox daily. Is she detoxing daily?
Does she do Burrascano's exercise (light weights or pilates)? It's necessary to get well.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Keep in mind that many supplements are powdered food and it may take many capsules for the best support.
I do assume she's gotten good brands and good guidance. Good brands matter tremendously.
To become more familiar with the kinds of support methods that are actually necessary to help during treatment:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sammy
Frequent Contributor (5K+ posts)
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posted
Some herbal supplements and even antioxidants can cause interactions with medications.
Remember, they can be processed by the liver in the same manner as certain medications. This can greatly increase or decrease the concentration of the medication in your body.
So before adding something new, I check many references to make sure that there will be no drug- supplement interactions with what I currently take.
Posts: 5237 | From here | Registered: Nov 2007
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bluelyme
Frequent Contributor (1K+ posts)
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posted
Consider muscle testing or art ? I would up detox...herxin hard for too long aint good .
There is a practioner here that does test supplements. Some times body needs it some times it dont..ask brussels about binders
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
So many great responses here. I am glad I found you all. I did get a list of supplements from her yesterday. I will check today for conflicts. I will also check to see if she is on the "B" protocol. I have not been involved enough but she recently told me that she can't think clear anymore and she needs help. She and my son are engaged, have been together 5 years. I didn't want to interfere too much but "it is on". This soon to be mother in law is going to take a charge at this demon that has possessed her body. I have seen too much of it. She is 37 and needs a cane to get to the bathroom. I found the other doc, but didn't do enough research first. But at least she did get blood work done and a diagnosis from a lab in CA. I guess that was a step.
Posts: 50 | From KY | Registered: Jan 2016
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sixgoofykids
Honored Contributor (10K+ posts)
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quote:Originally posted by TNT: It is necessary at times to briefly stop all treatment to see what happens. If overload (and toxicity), symptoms will probably improve. If things worsen, it could be because infections are not being addressed and were not being addressed properly before stopping treatment.
I agree with this! My LLMD had me stop everything once in a while to see where my baseline was.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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TF
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Member # 14183
posted
Tell us the antibiotics she is on and the dosage of each and how many times per day of each. For example, 1,500 mg of amoxicillin (3 capsules of 500 mg each) 3 times per day.
Then, I will tell you if that lines up with the Burrascano protocol or not. And, that will tell us what diseases the doctor is targeting.
Since Dr. Burrascano is retired, we are allowed to use his name on the public board.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
She is not against anything that will help. But just was given some kind of drops that really really make her herx, and all kinds of other supplements, but no antiobotics.
Posts: 50 | From KY | Registered: Jan 2016
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[ 02-02-2016, 06:03 PM: Message edited by: faithful777 ]
Posts: 50 | From KY | Registered: Jan 2016
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droid1226
Frequent Contributor (1K+ posts)
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posted
I see Dr D. He's great. I'd pull back on all the supplements. Or straight up stop everything for a week. The best llmds are pulsing now anyway so stopping is required in a lot of their protocols.
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I do better with less supplements than more. There's only so much the body can handle. I think I was taking over 70 pills a day at one time.
Less is sometimes better when your body is a wreck.
Another thing to consider is the supplements might not be helping because her Lyme is so bad.
Sometimes we're so desperate to feel better, we throw everything in our bodies.
If she isn't thinking straight, I hope she has an honest practitioner to work with. When I first became ill, I got taken in by a con-artist practitioner who sold me a bunch of supplements.
When I finally saw an MD with and alternative background, he looked at the supplements and said there wasn't enough of anything in them to make a difference. I couldn't walk at the time and I just got worse for the 1 1/2 years working with the con-artist practitioner (he did muscle testing, so that doesn't work for everyone).
She might need a completely different protocol of a few supplements and some antibiotics.
Also, not everyone has a herx to get better. I had so many adverse drug reactions (not herxes), one left me permanently disabled.
I had trouble walking after levaquin. See if she's taken any fluoroquinolones (cipro, levaquin, avelox). Those cause the symptoms you described for years AFTER stopping the med. I'm still dealing with damage from years ago.
Posts: 2839 | From California | Registered: Jul 2012
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WPinVA
Frequent Contributor (1K+ posts)
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posted
From reading your other post, it is quite possible she isn't herxing, but is just getting worse and worse since she isn't being treated effectively for Lyme.
Completely agree with others that she needs to see a much better LLMD. The first thing is to figure out what she has, and then to get her on an effective treatment regimen with antibiotics.
Shortness of breath is common with babesia, a serious co-infection.
She is really lucky to have you. You get the MIL of the year award!
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
Thanks for all the help. She seemed to feel a little better just getting the Potassium in the ER this week. We are hoping to see Dr. D in April. It is the earliest we can get in. We will be checking for cancellations as well. I watched "Under Our Skin" this morning. It makes me so sad, and mad at the same time. I love her and I love my son, and I will do all I can to get her help.
Posts: 50 | From KY | Registered: Jan 2016
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Judie
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Potassium helped me after my first round of taking levaquin and not knowing what happened to me. Levaquin made it so I couldn't walk for a couple years because of pain.
Posts: 2839 | From California | Registered: Jul 2012
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posted
THE Dr B .. way better than just about anyone.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Judie
Frequent Contributor (1K+ posts)
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posted
quote:Originally posted by AngieGigi: What was the leviquin for? Is that a supplement?
Levaquin has been commonly given for UTIs and sinus infection over the past several years.
It is also a treatment for bartonella.
It has devastating reactions because it acts like a chemo drug, making it impossible for the body to heal after taking it. The body literally breaks down.
I traced a lot of my disabilities to taking it several years before being infected with Lyme. Lots of similar symptoms, but a completely different cause.
Levaquin is handed out like candy at the doctors office.
It has 3 black box warnings now and an $800 million dollar RICO lawsuit against Johnson and Johnson.
Levaquin users slap J&J with $800M RICO suit, claiming pharma giant hid serious side effects
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