bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Hi LN, I have the opportunity to do some iv and was wondering peoples experience on rocephin.? Is there another iv that will hit bart /myco that i should request ?.
I am doing bvt ,rife herbs,h202 and some orals but i feel like its not enough for my als like symptoms. Does bart have a cell wall?
I was told by art tester that bart and viruses are up front , i know i am playing with fire and feel like i got one shot at this ..my llnp is awesome but i do not know what to ask for
Any help advice experience is appriciated thanks
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
People usually tolerate rocephin. You need to take it with actigall to protect your gallbladder.
I tried IM (intramuscular) injections of rocephin. It or actigall made me very ill (constant stomach upset) so I couldn't continue.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
posted
Someone I know turned their Lyme infection around with 10 months of IV rocephin.
Posts: 13117 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
I would recommend it only if your insurance will cover you more than 30 days. Otherwise it not worth the cost of a PICC and the rest of the routine.
If you are paying for it on your own, look into Infuserve America in FL. They have the best prices around.
Posts: 119 | From ground zero | Registered: Mar 2014
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Thank you ,infuserve was very nice on the Phone...i got the port in, its a might as well i got everything to gain...has any done clindamycin? Or other iv?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
posted
I did a total of 8 months of combination Antibiotics that culminated in 2 months of IV Rocephin. I felt GREAT on IV Rocephin, best i had felt in years (by far). Although i have had a return of some sytmptoms, it's nothing like the extent before Rocephin treatment. I'm currently doing LDI to try and clear what remains, which includes Autoimmune issues.
I did end up having to have my Gallbladder out despite using Actigall. But, all things considered, i would do it again for sure.
It was a big effort to get 2 months covered by insurance, and, the med is very expensive and Homecare to have the PICC line checked etc is critical. For me this was covered as part of the Rocephin treatment.
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Thank you ll, just got actigall rx what was syptoms of sludging ? Also i have done some iv curcumin with some good results in reducing the autoimmune inflammation cascade...i hope the ldi works for you , have you tried the ldn?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Blue - did you get a gallbladder scan? (or was it an ultrasound of GB?)
I think I had to do something like that before starting Rocephin.
Did you start Rocephin? IIRC there was a deal about getting bags of saline? (for the Rocephin I assume - ?)
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
posted
When i had the Gallbladder issue it was fast and really acute (barely functional) with really extreme upward pressure, vomiting, intense pain etc. An Ultasound revealed stones. Although there is some opinion to the contrary, the opinion of LLMD, Internist and general surgeon was the only way to get rid of the stones is to have the Gallbladder out.
I've had no problems post removal although i do eat a really good diet (but i did that before as well).
Still, i think plenty of others have done IV R (with Actigal) and been fine, and as i said before, even though i had that complication it was totally worth it. I pretty much got launched into wellness on R.
Re LDN; yes taking LDN, have been since beginning of the Lyme treatment and have stayed on it (about 3 years now?). It's a wonder drug in my opinion. I was on 4.5mg as prescribed by LLMD (i went straight to that dose because it was what was prescribed and i didn't know any better, was in such a sea of symptoms i don't think i could have noticed if it had trouble with the dose) but have since realized my sweet spot is 3mg.
My all consuming Hay Fever is almost resolved, i very rarely get sick, and def get an overall wellbeing sense from it in general.
Honestly, i think everyone could benefit from being on LDN. The limit of course for many would be the alcohol liimitation although i drink minimally on it and i'm fine.
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Susank, i did have an ultrasound of gb and liver last fall when ducs where clueless and thought it was hep...said all clear . I am loads of digestive enzymes.i dont process protiens and fats well..may have to do with the wasting
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic