TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Menopause. (It turned out it was a false menopause induced by lyme disease.) Once I was given good treatment for lyme, I was again pre-menopausal.
Also dry eye, dry mouth (had to doctor for both).
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I went to RSI groups for years - repetitive strain injury - made as much sense as anything...also TOS - thoracic outlet syndrome.
Basically, wherever your symptoms show up, they'll give you a label for it.
Posts: 13116 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- assuming you are referring to your friend when you ask about " Immune Thrombocytopenic purpura"
& you say you are "trying to find help for a friend that is now going in for a third blood transfusion within the last 10 days. She is high risk for tick bites." (end quote)
BABESIA should be considered. Yes, lyme and other tick borne disease, too but Babesia really jumps to mind here.
And, if she has no spleen, speed is of utmost importance. Still, the spleen can be very much damaged by babesia.
Cross search at Google (then also put in all the other tick borne infections one by one. Use borrelia & lyme, separately as you might get different results with each):
"Immune Thrombocytopenic purpura" Babesia
One very important article pops up. It's not accessible to the public but you can get a hospital patient support / library to print it for you most likely. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks Keebler, She has her spleen. I was checking
out Anaplasmosis and I stopped dead in my tracks
thinking that was probable. So I'll look at
Babesia
next. I'll also try to find her a good LLMD. I'm
not too familiar with who's still practicing in
this area. I'm certain my Dr. won't take her on.
Thank you for your reply.
Posts: 158 | From PA. | Registered: Jul 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You might post in "seeking" for where she lives, if different than the state you list for yourself.
If you can work from the coinfections, you have a better chance of doctors listening to you and she might improve enough to then make it to a LLMD for a full assessment.
Good luck to you and your friend. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey there Kennedy!
Babesiosis and Theileria come to mind. Just started writing up a new page for Theileria tonight, not at all complete, sorry, but here is the link for it to get you started.
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Did she take anything that would suppress the bone marrow?..i have thrombocytopenia but she is not making any platelets.!.
.if it is systemic infection causing it sounds like it is really deep rooted...unfortunately the blood transfusions make them more succeptable to other infections...
I will keep your friend in my thoughts and prayers
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
Borrelia and many co-infections (Ehrlichia, Anaplasma, Brucella, Babesia, RMSF, etc) can indeed cause thrombocytopenia. Some Lyme patients experience these problems. Treatment is difficult and mostly consists of trying to eradicate the infection with antibiotics and that may take a long time.
The doctors may perform a bone marrow biopsy. Either she isn't making enough platelets in the first place, or the bone marrow is producing enough platelets but they are being destroyed later on.
Sometimes they propose to remove the spleen, or use steroids or other immunosuppressants, both are not a good idea if the patient has an unknown infection. So be careful with that.
I remember that Bea Seibert had some experience with thrombocytopenia and she knew an LLMD who treated blood disorders caused by tick borne infections. She hasn't been here for a while I believe, but you could try to contact her at her email address: seibertbb (at) yahoo (dot) com Perhaps she can help to find a good doctor for your friend.
Best of luck.
Posts: 109 | From The Netherlands | Registered: May 2014
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